Top 19 alternative sites to afm-telethon.com
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jessesjourney.com
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iamd.in
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neurogene.com
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huntingtonstasmania.org.au
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pndassoc.org
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ukkidney.org
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rareconnect.org
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mdda.org.au
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catabasis.com
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southcoasthospice.co.za
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bostonkidney.com
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hdani.org.uk
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comradis.biz
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classkids.org
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mteyes.com
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projectalive.org
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functionalgenomics.pl
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dixieroadmedicalassociates.com
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familyeyecareassociates.com
Jesse's Journey | Duchenne Muscular Dystrophy | Canada
Duchenne Muscular Dystrophy (DMD) is a progressive genetic muscular system disease that affects 1 in every 5,000 boys.
Indian Association of Muscular Dystrophy Solan | Symptoms | IAMD
Muscular dystrophy is a progressive neuromuscular genetic disorder. Know more about its initial symptoms & what indian association of muscular dystrophy does to provide relief.
Neurogene | Developing life-changing Genetic Medicines
Neurogene is focused on developing life-changing genetic medicines for patients & families affected by rare, devastating neurological diseases.
Huntington's Disease Association Tasmania
What is Huntington's Disease? Huntington’s Disease (HD) is a degenerative brain disorder that results in the progressive loss of mental and physical capacities. The hereditary and complex nature of HD means that it’s not just patients, but an entire community that’s affected. Read more... Who we are Huntington’s Disease Association
Author: HD Association Tasmania
PND Association
The PND association website is a resource for families affected by dopamine related pediatric neurotransmitter diseases (PND's).
Rare Renal | The UK Kidney Association
It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.
MDDA | Metabolic Dietary Disorders Association
Metabolic Dietary Disorders Association (MDDA) is a national self-help group founded in 1996 by parents to support other families and individuals affected by Inborn Errors of Metabolism (IEMs). Rare genetic disorders including Phenylketonuria (PKU), Urea Cycle Disorders, Galactosaemia, Tyrosinaemia (TYRO). MDDA supports and represents families and individuals affected by a genetic Inborn Error of Metabolism whereby treatment involves a medically controlled diet.
Catabasis
Our mission is to bring hope and life-changing therapies to patients and their families affected by rare diseases, and our primary focus is Duchenne muscular dystrophy.
South Coast Hospice - Home Page
South Coast Hospice, a non-profit organisation, is committed to serving the community of the UGU District by providing specialised palliative care for patients with severe progressive diseases, as well as their families.
Commonwealth Nephrology Associates | Expert Kidney Care
Commonwealth Nephrology Associates is devoted to caring for patients with kidney diseases and associated conditions such as hypertension, kidney stones, and electrolyte disorders. Our kidney specialists offer an aggressive approach to slowing the progression of chronic kidney disease and improving outcomes.
Huntington’s Disease Association NI providing support to individuals, families and carers living with Huntington’s disease
Huntington’s Disease Association Northern Ireland is a NI registered charity which supports people affected by Huntington’s disease. We provide information & advice to families and professionals.
Author: Platypus Consultancy Limited
Comradis
AMICULUM Comradis is a specialist healthcare communications and commercialization consultancy. Our priority is to ensure that patients and families affected by rare diseases and uncommon cancers receive the best possible care and support
HOME | C.L.****. Children's Liver Association For Support Services Monaca, PA 15061
Children's Liver Association For Support Services (C.L.****.) is a non-profit volunteer organization dedicated to addressing the emotional, educational, and financial needs of families with children affected by liver disease and transplantation.
Montana Optometric Association
Montana Optometric Association - Affliliate of the American Optometric Association. Doctors of optometry (ODs) are the primary health care professionals for the eye. Optometrists examine, diagnose, treat and manage diseases, injuries, and disorders of the visual system, the eye, and associated structures as well as identify related systemic conditions affecting the eye. Founded in 1907. Our mission is "continuously elevate and enhance the profession of optometry and the quality of care to patients served".
Home Page - Project Alive
We Believe a Cure Is Within Reach Hunter Syndrome (MPS II) is a rare genetic disease that affects less than 500 boys in the United States. These boys are missing an enzyme used to break down cellular waste. When that waste builds up, it leads to progressive damage throughout their little bodies. Some never develop speech, … Continue reading "Home Page"
home - FunctionalGenomics
WELCOME TO PAWEL LISOWSKI RESEARCH WEBSITE SOLVING MEDICAL MYSTERIES THROUGH GENOME ENGINEERING TECHNOLOGY Decoding of undiagnosed and rare diseasesHealthcare providers are unable to discover the cause for hundreds mysterious diseases every year. Our research study aims to provide answers for patients and families affected by these undiagnosed conditions. We focus on decoding of unknown and...
Dixie Road Medical Associates | Accepting New Patients | Family Doctors
Welcome to Dixie Road Medical Associates Your Family Doctors For Generations Notices All up to date notices and information about COVID-19 and how it affects our operation Book Appointment Patients of Dr.Attalla, Dr.Baeshu and Dr.Barwell can now book appointments online, [...]
Family Eyecare Associates, Best Eye Doctors in Reno & Sparks
Call 775.358.1020 to Schedule an Appointment Today! COVID-19 OFFICE HOURS At Family Eyecare Associates, we care deeply about doing what we can to keep our patients and staff safe at this unprecedented time. We continue to closely monitor the updates and changes of COVID-19 and how it affects our practice. As of now all patients […]
