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:: Maria's Pizzeria : Arlington, MA ::
Andrina - Leben mit einer 10p Deletion
Bei unserer Tochter Andrina wurde im August 2012 im Alter von 15 Monaten eine seltene Krankheit diagnostiziert: Ihr fehlt ein Stück des Chromosoms 10p. Weltweit sind von der Wissenschaft nur rund 50 Fälle mit einer solchen Deletion beschrieben worden. Und da bei jedem Patienten verschiedene Chromosomenabschnitte oder unterschiedlich grosse Stücke des Chromosoms fehlen, ist jeder Betroffene einzigartig. Einzigartig anders.
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