Top 71 alternative sites to dravet.org.uk
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myositis.org.uk
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Homepage - Dravet Syndrome
Dravet syndrome is a rare and severe form of early onset epilepsy beginning in infancy characterized by ****-resistant seizures and by other disorders.
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Home - Dravet Syndrome Foundation
Your Content Goes Here More News Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form
Author: Admin
Dravet Europe | Dravet Syndrome European Federation
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Dravet Syndrome European Federation (DSEF) is a non-profit organisation, a federation of European organisations, active in the field of Dravet Syndrome and driven by patients and patients’ caregivers. Together we have built a strong European community of people living with Dravet Syndrome. We are this community’s voice and, directly or indirectly, we fight against the impact of Dravet Syndrome.
Author: DSEF
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
The Global Down Syndrome Foundation is dedicated to improving the lives of people with Down syndrome through research, medical care, education and advocacy.
Alport Syndrome Foundation - Hope, Action, Support
Alport Syndrome Foundation is a patient-led non-profit dedicated to improving the lives of those affected by Alport Syndrome.
Home - Phelan-McDermid Syndrome Foundation
Improving lives affected by Phelan-McDermid Syndrome Join Donate Newly Diagnosed International DataHub Upcoming Events Resource Library It is the mission of the Phelan-McDermid Syndrome Foundation to improve the quality of life of those affected by Phelan-McDermid syndrome worldwide by providing family support, accelerating research, and raising awareness. Latest News & Blog Post We are Phamily […]
Noonan Syndrome Foundation
The Noonan Syndrome Foundation: created to help support, educate, & advocate for and on behalf of all those who have bee affected by Noonan Syndrome.
PHACE Syndrome Community
A website dedicated to supporting families and those with PHACE Syndrome.
Supporting Families who have Children and Adults with Smith-Magenis Syndrome - Smith-Magenis Syndrome Foundation UK
Help us support a fulfilling future for everyone living with Smith-Magenis syndrome We want to bring more families together, provide education and awareness training, and sponsor research into SMS. But we can’t do it without your help. We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with …
Headlines Craniofacial Support Group - support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and as
Headlines is a charitable organisation based in the UK which aims to provide support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and associated conditions.
Down Syndrome Education USA
We support scientific research and deliver evidence-based advice and information to improve educational outcomes for children with Down syndrome.
Proteus Syndrome Foundation - Support and Education
The Proteus Syndrome Foundation's goals are Supporting / Educating Families of individuals living with Proteus Syndrome, public education, research funding
The Down Syndrome Development Trust (DSDT)
Down Syndrome Development Trust exists to improve the lives of people living with Down syndrome. Including support to individuals and their families via research-based training workshops, outreach, educational enrichment and social groups for children and young people living with Down syndrome.
Author: Dsdt Updates
Angelman Syndrome - UK Support, Education and Research Trust - Angelman Syndrome
UK Support, Education and Research Trust
Home - Myositis UK
Myositis UK is a small national charity providing information to those affected by myositis and funding research to improve diagnosis and treatment.
Down Syndrome Research Foundation | DSRF UK
The DSRF UK Is A National Charity Formed By Parents Of Down’s Syndrome Children Who Want Greater Emphasis Placed On Medical Research.
Author: Down's Syndrome Research Foundation
Living LFS: Li-Fraumeni Syndrome
At Living LFS, we encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Author: Living LFS
Turner Syndrome Support Society (UK) - Home
The Turner Syndrome Support Society is a national charity caring for the needs of those with Turner Syndrome throughout the United Kingdom.
Other sites like dravet org uk
FNMS Home Page | The Foundation for Nager and Miller Syndromes
The Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe **** and limb anomalies, but do not usually affect intellect.
Home | Zen Tea Lounge Foundation
We are dedicated to improving the lives of those affected by domestic violence, abuse and isolation.
Down Syndrome Association of Simcoe County - Home
This is the community website for the Down Syndrome Association of Simcoe County, a group offering support to those with a family member living with Down syndrome. Here you will find information...
Fragile X Syndrome | Fragile X Society | UK
Information and support on Fragile X syndrome for families, carriers and people living with the condition in the UK. Read more about the Fragile X Society.
Home - International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME)
IACFS/ME is dedicated to the research of people affected by myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS), fibromyalgia, and other related conditions.
Polycystic Kidney Disease Charity
Polycystic Kidney Disease (PKD) Charity - UK charity and patient support group dedicated to improving the lives of everyone affected by all forms of PKD. Support, help, research.
International Mosaic Down Syndrome Association
We are The International Mosaic Down Syndrome Association. A community that supports the awareness of Mosaic Down Syndrome via content publishing, sharing of resources and annual conferences. Providing support for families and individuals whose life has been touched by Mosaic Down Syndrome. We are continuously pursuing research opportunities and increasing awareness in medical, educational and public communities throughout the world.
KIF1A.ORG | KIF1A Associated Neurological Disorder
KIF1A.ORG is dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder and accelerating research to find a cure.
The Ehlers-Danlos Society
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.
Down Syndrome Education International
We are an international charity that supports scientific research and delivers evidence-based advice and information to improve outcomes for children with Down syndrome worldwide.
Melanoma Know More - Education. Research. Prevention. Support.
Melanoma Know More strives to reduce the impact of melanoma through awareness, education, support of medical research, and assist those affected.
NDA UK
We are a socio-professional and charitable organisation which promotes and supports medical education and health improvement projects, through independent and collaborative efforts in the UK and Nepal.
Home | Down Syndrome Limerick
We support families and individuals with Down Syndrome throughout their life, with a range of Social, Education and Development activities.
Author: Bluescope
Rett Syndrome Society of British Columbia : Rett Syndrome Society of BC
Rett Syndrome Rett Syndrome is a unique developmental disorder impacting mainly females and begins to appear in early childhood. Symptoms can include regression in communication skills, motor skills and other health issues. Learn about Rett Syndrome Our Mission Our mission is to support, educate, and empower those that live with Rett Syndrome and their families. […]
Brain Research UK | Funding world-class brain research
We fund brain research to help those affected by neurological disorders. Brain Research UK – inspiring progress, together.
LuMind IDSC Foundation - Home Page –
We accelerate research to increase availability of therapeutic, diagnostic, and medical care options and we empower Down syndrome families through education, connections, and support.
Home - SATB2 Gene Foundation
OUR MISSION The SATB2 Gene Foundation, Inc. was established to enrich the lives of individuals with SATB2-associated syndrome, including those diagnosed with the condition and their families, through support, research and education. Our mission will be met by raising awareness about the characteristics of SATB2-associated syndrome, providing support to families, and supporting research in
Author: Brett Garwood
Irritable Bowel Syndrome and Digestive Health Support Forum
A forum community dedicated to Irritable Bowel Syndrome and Digestive Health Support. Come join the discussion about treatment, diet, health, lifestyles, spirituality, medication, research, recovery, and more!
World Endometriosis Society | The World Endometriosis Society is leading the way in endometriosis and adenomyosis
WES Mission WES advances evidence-based standards and innovations for education, advocacy, clinical care, and research in endometriosis and adenomyosis, in collaboration with its stakeholders and global partners to improve the lives of those affected and their families.
Loeys-Dietz Syndrome Foundation
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical information and personal support to assist you and your family on your journey with Loeys-Dietz Syndrome. Learn more about our foundation and
What else dravet.org.uk alternative websites
Freedom From Fear: Anxiety and Depression Resource Organization
The mission of FFF is to impact, in a positive way, the lives of all those affected by anxiety, depressive and related disorders through advocacy, education, research and community support.
Independent, Expert-led Support for the UK’s Medical Cannabis Clinicians
The MCCS is dedicated to bringing medical cannabis treatments to patients in the UK by educating and supporting our clinicians.
British Liver Trust - Pioneering Liver Health
We are the UK’s leading liver health charity working to improve liver health for all and supporting those affected by liver disease or cancer
Author: FIND OUT MORE
Home - The Brain Cancer Group
The Brain Cancer Group is a collaborative team of leading brain cancer specialists. We apply insights from frontline patient care to inform activities across research, support and education, to ensure we are making a difference in the lives of those affected by brain cancer.
Home | St David's Medical Foundation
We are the Charity supporting Medical Research and Medical Education in Wales.
Author: Waters Creative Ltd www waters-creative co uk
MS-UK
This is the home page for MS-UK, About us MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full. We put people affected by MS at the heart of our work. We provide high quality, professional services to support people living with multiple sclerosis, and we listen to
National Center on Shaken Baby Syndrome - Home
The National Center on Shaken Baby Syndrome (NCSBS) is a non-profit 501(c)3 public charity with a mission to “Prevent shaken baby syndrome and promote the well-being of infants generally through the development and implementation of programs, policy and research; and to support and educate families, caregivers and professionals.”
Schizophrenia Society of Saskatchewan
The Schizophrenia Society of Saskatchewan (SSS) is a non-profit organization founded in 1982 by families and friends of people with schizophrenia. We are here to improve the quality of life for those affected by schizophrenia and psychosis through education, support programs, public policy and research.
Home - Charcot-Marie-Tooth UK
Charcot-Marie-Tooth UK is the United Kingdom's only charity dedicated to supporting people affected by Charcot-Marie-Tooth disease.
Author: Emma Estridge
Lupus CanadaHome
Lupus Canada a national voluntary organization dedicated to improving the lives of people living with lupus through advocacy, education, public awareness, support and research
Home | Strengthening EDS Connections!
Our mission is to provide support and resources for patients and medical professionals about Ehlers-Danlos Syndromes and related disorders via education and research.
Home - The Migraine Trust
The Migraine Trust is dedicated to helping people affected by migraine. We are the only UK migraine charity providing information and support, campaigning for awarenessand change, and funding and promoting research.
SRUK – Scleroderma & Raynaud’s UK | SRUK
We are SRUK, the UK’s only health charity dedicated to improving the lives of people with scleroderma and Raynaud’s phenomenon.
Welcome to the Cluster Headache Support Group! - The Cluster Headache Support Group
CHSG is dedicated to improving the lives of those patients with cluster headache by providing patient-directed support and education, collaborating with health care systems to drive research, and empower patients to advocate for and raise awareness of cluster headache.Read More →
Author: Gillean Dean
Home - Aerotoxic Association
We are the Aerotoxic Association Dedicated to supporting those affected by Aerotoxic Syndrome FollowFollowFollowFollow Click here to read the first paper on Aerotoxic Syndrome published on 20th October 1999 by Dr Balouet, Dr Hoffman, and Prof. Winder Click Here for Dr. Balouet - Resume His involvement within the Aerotoxic association will be sadly missed What […]
Author: John Hoyte Org
The Desmoid Tumor Research Foundation- DTRF
The mission of The Desmoid Tumor Research Foundation is to aggressively fund research to accelerate the development of improved therapies, and ultimately find a cure for desmoid tumors. We collaborate with dedicated researchers and clinicians worldwide to improve the lives of patients through education, awareness and support.
Home - TMS - The Mast Cell Disease Society, Inc
The Mastocytosis Society is a non-profit organization dedicated to supporting patients affected by Mast Cell Disorders via research, education & advocacy.
Home Page
The Eczema Society of Canada is dedicated to meeting the needs of those suffering with eczema by providing support, offering education, raising awareness and supporting research.
Home - Libellas Foundation
fundación LIBELLAS Hope propels us into the future Michel Montaigne. Contact us WELCOME TO fundación LIBELLAS ABOUT US Fundación Libellas is an international, nonprofit patient advocacy organization dedicated to improving the lives of children affected by NALCN ion channel-related diseases, through research, family support programs and education. OUR GOALS To provide support and funding for […]
Supporting Cutting Edge Medical Research - Rosetrees Trust - UK Charity
Rosetrees Trust UK Charity - Supporting cutting edge medical research for more than 30 years. The aim is to improve the health and wellbeing of society.
Author: CW
Other websites similar as dravet.org.uk
Home
We are one of the UK's most exciting, contemporary schools, delivering innovative and rigorous medical education and research.
Home | The George Institute for Global Health UK
The George Institute for Global Health UK is a leading medical research institute focused on the biggest health challenges and improving health for all
Home I Al Jalila Foundation, Dubai - UAE
Al Jalila Foundation is a not-for-profit organisation dedicated to transforming lives through medical research, education and treatment in the UAE. Learn more.
CMV Action | EDUCATE . VACCINATE . ERADICATE
CMV Action is the only UK charity offering advice and support to families affected by congenital CMV. We can advocate for families affected by cCMV and support them in ensuring they receive the best service from providers. We work with medical professionals and we support much needed research.
identity
independent Swiss not-for-profit foundation dedicated to improving living conditions and life prospects for the most vulnerable across the world by supporting education, integration, social entrepreneurship, health, and technological, medical and ethical research, environmental preservation and culture.
Home - HDR UK
Welcome to HDR UK – the national institute for health data science. We are uniting the UK’s health data to enable discoveries that improve people’s lives.
Flight Medic UK - Worldwide Medical Repatration - Home
Flight Medic UK Ltd is a medical repatriation company based in the United Kingdom. We help those who need medical help to get home.
Depersonalization Support Forum
A forum community dedicated to support for those living with depersonalization disorder. Come join the discussion about treatment, health, life styles, spirituality, medication, research, recovery, and more!
Welcome
Welcome to Diabetes Solutions of Oklahoma! Our mission is to improve the lives of those affected by diabetes through education, programming and support. ABOUT US Camp Endres 2021 Registration for the Camp Endres 2021 season is now available! Register Here!
Author: T; S Online Marketing
BC Epilepsy Society
Since 1959 the BC Epilepsy Society has been providing education, advocacy and support to those affected by epilepsy. We offer lectures and seizure awareness workshops, information materials, support groups, hospital and school outreach and other initiatives to help improve the lives of people with epilepsy.
Homepage | Westat
Westat offers innovative professional services to help clients improve outcomes in health, education, social policy, and transportation. We are dedicated to improving lives through research.
Author: - Scott Royal; Ph D; Westat President; CEO
Home
The Hope House Memphis mission is to improve the quality of life for ****-affected individuals and their families by providing high quality early childhood education and social services. Hope House will be a catalyst for life-long change in the lives of those affected by **** and poverty.
