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Bienvenue | Marfans
ACCUEIL - Bienvenue - 25 Octobre 2021 marfan, marfans, syndrome marfan, syndrome marfans, syndrome de marfan, syndrome de marfans, dilatation aorte, anévrisme aorte, ectopie c...
Marfan-Informationen hören, sehen und verstehen - Marfan Mediathek
Marfan Mediathek: hören, sehen und verstehen Sie über unsere Mediathek das Marfan-Syndrom.
Marfan Europe Network - Your #1 place for Marfan Syndrome in Europe
We are a coalition of Marfan Syndrome patient organisations within Europe, aiming to support and encourage each other by exchanging and sharing information. Get to know us.
Startseite - Marfan Hilfe (Deutschland) e.V.
Marfan Hilfe (Deutschland) e.V.: Der Verein für Menschen mit Marfan - Syndrom oder anderen mikrofibrillären Erkrankungen. (Selbsthilfegruppe) MFS: Eine genetische Bindegewebserkrankung.
Home - Michelle O'Sullivan Occupational Therapist (Hypermobility)
A therapy service for adults with hypermobility conditions and professionals working with them, including Ehlers-Danlos Syndrome, Marfan & Loeys-Dietz Syndromes
Home
Living with Marfan Syndrome is what this site is all about. The life story of Jon, and how he has learned to cope over the years.
Marfan sekatavarakauppa | marfansekatavarakauppa
marfan korjaamo, marfankorjaamo, marfan sekatavara, marfan sekatavarakauppa, marfa, sekatavara, Tapanila, kalevalainen jäsenkorjaus, pyykkietikka,
INICIO
Canal Marfan | Información sobre el síndrome de Marfan para pacientes y facultativos
Goodpastures Syndrome a personal encounter
Goodpastures Syndrome a personal encounter by a patient
Morquio in Canada | Hope, Bravery, and Resilience.
AN ONLINE RESOURCE FOR MORQUIO A SYNDROME PATIENTS AND THEIR FAMILIES
Alport Syndrome Foundation - Hope, Action, Support
Alport Syndrome Foundation is a patient-led non-profit dedicated to improving the lives of those affected by Alport Syndrome.
Home - Exstent
ExoVasc® Personalised External Aortic Root Support The ExoVasc® Personalised External Aortic Root Support is a revolutionary new device. It is designed to manage aortic dilation in people with Marfan syndrome and related genetic conditions. The ExoVasc® is placed around the ascending aorta where it provides support to the patient’s own aorta and aortic valve and […]
Johns Hopkins Jerome L. Greene Sjögren’s Syndrome Center
Sjögren’s Syndrome information, medication resources and patient materials from the Johns Hopkins Jerome L. Greene Sjögren’s Syndrome Center
Long Island – EDS Group
Local Support Group (Long Island, NY) for patients with Ehlers-Danlos Syndrome (EDS) or benign hypermobility syndrome
Home | Marfan Foundation
Marfan Syndrome is a life-threatening genetic disorder affecting our connective tissue. Connective tissue keeps our body cells and tissues together and helps control how our body grows and develops.
Marfan Südbayern
Informationen zum Thema Marfan
Marfan Stiftung Schweiz
Marfan Stiftung Schweiz
e-book A Familys Guide to Tourette Syndrome
Providing authoritative and up-to-date medical and scientific information about Tourette syndrome, A Family's Guide to Tourette Syndrome speaks to patients.
interstitial cystitis, painful bladder syndrome, IC/PBS, PBS/IC
interstitial cystitis, painful bladder syndrome, patient information, books, support groups, patient associations, pain management
Other sites like marfan be
EM Action - Communauté francophone des patients atteints par l'Encéphalomyélite Myalgique / Syndrome de Fatigue Chronique
Communauté francophone des patients atteints par l'Encéphalomyélite Myalgique / Syndrome de Fatigue Chronique
Author: EM Action
Belangenvereniging voor mensen met het marfansyndroom - Contactgroep Marfan Nederland
Vereniging voor mensen met het syndroom van Marfan.
Lynch Syndrome Hereditary Cancer Foundation | AliveAndKickn
Hereditary cancer foundation, lynch syndrome, non-profit, patient advocacy organization, colon cancer, endometrial cancer, genetic mutation, AliveAndKickn AliveAndKickn is a patient advocacy organization for individuals and families with Lynch syndrome hereditary cancer genetic mutations.
Långtidscovid
Kunskapsöversikt om långtidscovid. Framtaget av läkare för läkare som möter långtidssjuka patienter. Information om covid, post covid-syndrom, POTS, utredning och andra syndrom vid covid under lång tid.
Magyar Marfan AlapĂtvĂĄny
A Magyar Marfan AlapĂtvĂĄny hivatalos honlapja
Dravet Europe | Dravet Syndrome European Federation
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Dravet Syndrome European Federation (DSEF) is a non-profit organisation, a federation of European organisations, active in the field of Dravet Syndrome and driven by patients and patients’ caregivers. Together we have built a strong European community of people living with Dravet Syndrome. We are this community’s voice and, directly or indirectly, we fight against the impact of Dravet Syndrome.
Author: DSEF
Chiropractor Winston-Salem - SALAMA CHIROPRACTIC CENTER of North Carolina (NC) - Treating Patients From Winston-Salem, Clemmons, Kernersvil
Our Winston-Salem chiropractor, Dr. Lee Stafford, DC treats patients from Winston-Salem, Clemmons, Kernersvill, Lewisville & more. New patients are seen immediately! Salama Chiropractic Center's chiropractors treat: Auto Accident Injury, Back Pain, Neck Pain, Arthritis, Headaches, Sciatica, Carpel Tunnel Syndrome, TMJ syndrome and Facet Syndrome.
MDS Patient Support Group: Information & Help for those affected by MDS
UK charity giving support on Myelodysplastic Syndromes: Helpline, Specialists Centres, Patient Stories, Medical Research News, Patient Forum, Local Meetings
Support & info for and by Canadians affected by VHL 2021-26
🍁 von Hippel-Lindau VHL Canada Canadian patients disease syndrome not Canadian VHL Alliance social-emotional and disease-related patient info
locked-in.eu The Locked-In Syndrome website for the whole world
Locked-in.eu: The startpage for Locked-in Syndrome and related deseases! Links to books and homepages of locked-in patients
VIBERZI (eluxadoline) CIV | Official Site
Learn about VIBERZI (eluxadoline) for the treatment of Irritable Bowel Syndrome with Diarrhea (IBS-D) in adult patients.
APSSII : page d’accueil du site internet de l'association des patients souffrant du syndrome de l'intestin irritable (ou colopathie fonction
L'APSSII est une association de patients souffrant du syndrome de l'intestin irritable. Elle a pour but d'informer, de sortir de l'isolement et de promouvoir la recherche
QIAstat-Dx – the next generation of syndromic insights.
Allowing you to harness the full potential of multiplex syndromic testing. When diagnosing patients with uncertain disease, ambiguity is not an option.
ME-föreningen – föreningen för Myalgisk Encefalomyelit, kroniskt trötthetssyndrom
ME-föreningen är till för att representera patienter med myalgisk encefalomyelit (ME), ibland kallat kroniskt trötthetssyndrom (KTS) eller chronic fatigue syndrome (CFS)
CEDSA Home
CEDSA helps patients and families who are diagnosed with Ehlers-Danlos Syndrome by providing advocacy, medical resources, and additional help.
Phoenix Rising ME/CFS Forums
Phoenix Rising forums are for patients with myalgic encephalomyelitis / chronic fatigue syndrome, as well as for ME/CFS caregivers, researchers and doctors.
Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support
The Autoinflammatory Alliance is a non-profit dedicated to increasing awareness, care and treatment for patients with Cryopyrin-Associated Periodic Syndromes, including: NOMID/CINCA, Muckle-Wells (MWS) Familial Cold Autoinflammatory Syndromes (FCAS), and other autoinflammatory diseases.
Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support
The Autoinflammatory Alliance is a non-profit dedicated to increasing awareness, care and treatment for patients with Cryopyrin-Associated Periodic Syndromes, including: NOMID/CINCA, Muckle-Wells (MWS) Familial Cold Autoinflammatory Syndromes (FCAS), and other autoinflammatory diseases.
Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support
The Autoinflammatory Alliance is a non-profit dedicated to increasing awareness, care and treatment for patients with Cryopyrin-Associated Periodic Syndromes, including: NOMID/CINCA, Muckle-Wells (MWS) Familial Cold Autoinflammatory Syndromes (FCAS), and other autoinflammatory diseases.
Welcome To The Community Of NephcEurope! - NephcEurope
On behalf of all patients, mothers and fathers of the European patient-organization & fundraising foundation NephcEurope, we welcome you on our website! NephcEurope is a European patient organization and foundation in the field of Nephrotic Syndrome. We cover not only the interest of European patients but try to also reach out to …
What else marfan.be alternative websites
IBS Health Info & Community
Find out about irritable bowel syndrome including symptoms, diagnosis, treatment, patient stories, support, and more from an IBS community perspective.
Author: Elizabeth Alvarez about
Patients - EnteraGam
Home page for patient information about EnteraGam for irritable bowel syndrome with diarrhea (IBS-D) and inflammatory bowel disease (IBD).
DICER1 Syndrome Information Network - Online resources for all
Up-to-date information curated by world experts in DICER1 Syndrome. Resources for physicians, researchers, patients, and families of individuals affected.
Marfan syndroom, Funs Lemmens, operaties, dagboek, klinische genetica
Openbare Facebooksite: De levens ervaringen van diverse marfan patiënten en of familieleden en kennissen
Curetis fast & simple syndromic testing for better patient treatment
Curetis fast & simple syndromic testing for better patient treatment with different samples for various severe infectious deseases for faster treatment
Les Apnées du Sommeil Genève - Les apnées du sommeil
Les apnées du sommeil, c’est quoi Un trouble du sommeil courant et fréquent, syndrome d’apnée du sommeil (SAS), chez les patients qui ronflent (snoring)
ENS@T - home
ENS@T is the acronym for European Network for the Study of Adrenal Tumors. ENS@T aims to improve the understanding of the genetics, tumorigenesis and hypersecretion in patients with adrenal tumors and syndromes.
Oak Ridge Salama Chiropractic Center - Chiropractor Oak Ridge, North, Carolina (NC) Stokesdale - Kernersville - Summerfield - Walkertown -
Oak Ridge, North Carolina (NC) Chiropractors - Salama Chiropractic Center welcomes patients from Stokesdale, NC, Kernersville NC, Summerfield, NC & Walkertown, NC. Dr. Boudreau treats: Auto Accident Injuries, Back Pain, Neck Pain, Arthritis, Headaches, Sciatica, Carpel Tunnel Syndrome, TMJ syndrome and Facet Syndrome. Offering DRX9000 spinal decompression treatment, acupuncture and soft tissue massage. New patients are seen immediately!
Syndrom.se – Information om olika syndrom
Information om olika syndrom: Tourettes, Aspergers, Down syndrom, Gullain barres syndrom, Williams syndrom, Turners syndrom och Prader-willis syndrom.
Home | Strengthening EDS Connections!
Our mission is to provide support and resources for patients and medical professionals about Ehlers-Danlos Syndromes and related disorders via education and research.
Vascular EDS is a life limiting rare genetic disorder
UK registered charity supporting patients & families touched by Vascular Ehlers-Danlos syndrome. Vascular EDS is a rare genetic disorder and is life limiting.
Holkje van der Veer
Holkje van der Veer. Is Dominicanes, Agoge, theologe en auteur / schrijfster. Actief bij dominicanenklooster in Huissen. En heeft de ziekte van Marfan.
Mal de Débarquement, Debarkation Syndrome | MdDS Foundation
Mal de Débarquement, Disembarkment or Debarkation Syndrome is a disorder that leaves patients with a constant feeling of movement, as if on a boat. The MdDS Foundation advocates for and seeks treatments to end the suffering from MdDS. Learn more!
Author: MdDS Foundation
FDA-Approved Rx Cannabidiol Official EPIDIOLEX® HCP Site
Discover the first and only FDA-approved prescription cannabidiol (CBD) for Dravet syndrome or LGS in patients 2 years of age and older. See Important Safety Information.
Phyla | Gut Health Testing | IBD & IBS
Phyla helps patients with inflammatory bowel disease (IBD) and irritable bowel syndrome (IBS) understand how their diet, lifestyle and symptoms are connected - all from the comfort of home.
Lawndale Dr. Salama Chiropractic Center - Acupuncture Greensboro, North Carolins (NC) - Dr.Michele Kin, D.C. - Chiropractor & Acupuncturist
Dr. Michele KIn, is the Salama Chiropractic Center chiropractor in our Lawndale Drive Office in Greensboro, North Carolina NC. Dr. Kin, a NC licensed chiropractor and certified acupuncturist welcomes patients from Summerfield, McLeansville, Browns Summit, Whitsett, and Gibsonville. New patients are seen immediately! Dr. KIn treats: Auto Accident Injuries, Back Pain, Neck Pain, Arthritis, Headaches, Sciatica, Carpel Tunnel Syndrome, TMJ syndrome and Facet Syndrome. Offering DRX9000 spinal decompression treatment, acupuncture and soft tissue massage.
EpilepsyDiagnosis.org
The International League Against Epilepsy (ILAE) Diagnostic Manual's goal is to assist clinicians who look after people with epilepsy to diagnose the epilepsy syndrome and (if possible) the etiology of the epilepsy. Arriving at the correct epilepsy syndrome and/or etiology allows better decision-making about treatment and improves patient care.
Fetal Health Foundation: Hope for Families Experiencing Fetal Syndromes
The Fetal Health Foundation gives hope to families who are hearing a fetal syndrome diagnosis. We understand the scary moment when a parent hears their baby is in danger. We connect patients with world-class maternal fetal medical centers, and fund fetal syndrome-related medical research.
Carlos Porras - cirugía cardiovascular reparadora - Málaga
Cirujano cardiovascular especializado en la reparación valvular aórtica, mitral y tricúspide, aneurismas de aorta, Marfan y la miocardiopatía hipertrófica
ProHealth - News, Research & Supplements - Fibromyalgia, ME/CFS, Lyme Disease
ProHealth is a nutritional supplement company dedicated to patients with Fibromyalgia, ME/Chronic Fatigue Syndrome, Lyme Disease and other chronic illnesses. We sell the supplements patients and doctors recommend most, and we report on research and news daily and in our monthly free newsletters.
Author: Average
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Spine and Pain Specialists - Top Spine and Pain Doctors - Shreveport Bossier City Louisiana - A Part of the Willis-Knighton Physician Netw
At Spine and Pain Specialists, we are passionate about using state of the art treatment options for our patients with back pain, neck pain, or other chronic pain syndromes.
Down-Kind Halle (Saale) e.V., Halle (Saale) - Home
Downsyndrom Halle, Down-Syndrom Halle,Info Down-Syndrom, Elternverein Down-Syndrom, Selbshilfegruppe Down-Syndrom, Selbsthilfegruppe Downsyndrom, Halle Down-Syndrom, Halle Downsyndrom, Halle Selbshilfegruppe, Selbsthilfegruppe, Verein, Verein Halle, Stadt Halle Down Syndrom
Treatment | ACS | Acute Ischemic **** | CAD | BRILINTA® (ticagrelor) tablets | For HCPs
BRILINTA® (ticagrelor) is an **** prescription indicated for patients with acute ischemic ****, history of myocardial infarction, high-risk coronary artery disease and acute coronary syndrome.
Fynn-Fuchs Angelman Syndrom
Angelman-Syndrom, auch Happy-Puppet-Syndrom genannt
Author: Fynn Fuchs
Reflexologist Randburg | Reflexology Body Balance
Holistic approach to patient management. I work alongside standard medical care. Reflexology Lymphatic Drainage (RLD) benefits patients with primary or secondary lymphoedema, Neuroflexology relieves sciatica and restless leg syndrome (RLS), Therapeutic Reflexology and Meridian Therapy offered in the same treatment.
Assostefano Bambini E Marfan | Problemi di Salute in Italia!
Assostefano Bambini E Marfan: Scopri tutto quello che non vogliono farti sapere su problemi di salute in Italia: Regime, Maternità e Emorroidi.
Gorlin Syndrome Alliance – Treatment | Symptoms | Basal Cell Carcinoma
The Gorlin Syndrome Alliance serves people with Gorlin syndrome (Gorlin Goltz syndrome) and their families with disease information, support and research.
FIRDAPSE® (amifampridine) | Healthcare Professional Site
FIRDAPSE® (amifampridine)—the only FDA-approved, evidence-based treatment for adult patients with Lambert-Eaton myasthenic syndrome (LEMS). Please visit the website for Important Safety Information and Prescribing Information.
Kinésithérapie Respiratoire à Rennes - Ille-et-Vilaine
Le cabinet de kinésithérapie respiratoire situé à Rennes (35) prend en charge les patients atteints de pathologies respiratoires aigües et chroniques (bronchiolite, bronchite, asthme, BPCO,mucoviscidose, syndrome d'hyperventilation, sténose laryngée...)
#EDS4IRE | Ireland
Ireland has no qualified consultant for Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorders appointed by the HSE. Patients are suffering, travelling to the UK out of their own pocket. This has to change. Sign the petition and get involved #EDS4IRE
FIRDAPSE® (amifampridine) | Official Patient Site
FIRDAPSE® (amifampridine) is the only FDA-approved, evidence-based treatment for adult patients with Lambert-Eaton myasthenic syndrome (LEMS). Please visit the website for Important Safety Information and Prescribing Information.
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Home - Saint Dominic Catholic Church
JOIN OUR COMMUNITY MASS SCHEDULE Saturday (Vigil): 5:00PM Sunday: 7:45AM | 10:00AM | 12:30PM (Español) Mon-Fri: 7:00AM | 10:00AM Sat: 8:00AM Holy Days: 6pm Vigil | 7am | 10am Daily Readings CONFESSION TIMES Saturday 3:00PM to 4:45pm By Appointment Call: (850)785-4574 to schedule After-Hours: Please leave your name and number Examination
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Club Rent | Noleggio Auto Lungo Termine
City car Compact car Berline Station Wagon Mini SUV SUV KM Illimitati Veicoli commerciali Veicoli allestiti Autocarro N1
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Hull CVS – Empowering the community
In line with its core aims, Hull CVS delivers a range of free support and advice to help in the start up, development and sustainability of local voluntary and community sector organisations. Hull CVS offers a range of low cost tailored support and services to both voluntary sector organisations and small
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Teach English in China - Latest ESL Teaching Jobs in China for 2021
Teach English in China - the latest TEFL / ESL teaching jobs in China for 2021. Apply today and start your teaching adventure abroad.
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Christian Church San Diego | Canyon Springs
Canyon Springs is a Christian Church in Scripps Ranch, San Diego, CA that is filled with friendly and passionate people of all ages that are following ****. 
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Site Oficial | Eu Empresa - Liderança, Gestão e Planejamento
Liderança, Gestão e Planejamento Estratégico Consultorias, Palestras, Mentorias e Cursos POR QUE FAZEMOS O QUE FAZEMOS? Para que você, executivo, viva o seu propósito, obtenha mais resultado e tenha mais tempo!
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Advanced Skin & Beauty Clinic | Melbourne's Premier Skincare Clinic
MELBOURNE'S PREMIER AESTHETIC DESTINATION At Advanced Skin & Beauty our experienced paramedical therapists attend extensive training through various highly regarded institutes to ensure that you get optimum results. We utilise only the latest registered technology, safe medical-grade equipment and
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Home - East Gate Church
A Church of God's Presence & PowerIs Your Life Running On Empty? Free Fill ups Here Every Sunday Guaranteed!We are embracing the fullness of the Father’s goodness, and the manifestation of ****’s glory on the earth through His people.We are being established by the Father as an East
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Hoan Marketing empowers nonprofits and social entrepreneurs to reach more supporters online with a spectrum of design and technology services.
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