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Welcome to M S F A | Moebius Syndrome Foundation Africa (MSFA)
Moebius Syndrome - Many Faces of Moebius Syndrome Awarness
The worlds largest all volunteer Moebius Syndrome non profit. Our goal is to educate and create awareness about this syndrome so there is better understanding.
Author: Administrator
ASBL Syndrome Moebius Belgique
Découvrez le syndrôme de Moebius et l'association créée en 2012 pour aider les personnes atteintes en Belgique.
Author: Kaiser Christophe
Moebius-Syndrom Deutschland e.V.
Über zwei Jahrzehnte haben die Verantwortlichen des Vereins im Kontakt mit den Menschen mit dem Moebius-Syndrom eine Kernkompetenz aufgebaut.
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Home - Dravet Syndrome Foundation
Your Content Goes Here More News Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form
Author: Admin
Barth Syndrome Foundation : Home
Home - Williams Syndrome Foundation
Cloves Syndrome Community | Cloves Syndrome Community
CONTACT REGISTRY COMMUNITY We have a rapidly growing community of people with CLOVES and a network of supporters who want to learn more. SUBSCRIBE TO OUR MAILING LIST RARE AS ONE We’re part of the Chan Zuckerberg Initiative’s Rare As One Network — a group of 30 patient-led organizations that are accelerating research and driving
Angelman Syndrome Foundation | Welcome
Angelman Syndrome Foundation
Author: Angelman Syndrome Foundation
Irlen Syndrome Foundation
Visit the post for more.
Noonan Syndrome Foundation
The Noonan Syndrome Foundation: created to help support, educate, & advocate for and on behalf of all those who have bee affected by Noonan Syndrome.
Utah Down Syndrome Foundation : Home
Author: John M Simmons
Home - Phelan-McDermid Syndrome Foundation
Improving lives affected by Phelan-McDermid Syndrome Join Donate Newly Diagnosed International DataHub Upcoming Events Resource Library It is the mission of the Phelan-McDermid Syndrome Foundation to improve the quality of life of those affected by Phelan-McDermid syndrome worldwide by providing family support, accelerating research, and raising awareness. Latest News & Blog Post We are Phamily […]
Barth Syndrome Foundation of Canada - Home
The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research - Home - The Cute Syndrome Foundation
Learn more about The Cute Syndrome Foundation and the SCN8A Epilepsy and PCDH19 Epilepsy Research we fund
Home - Welcome to the Post-Finasteride Foundation - The Post-Finasteride Syndrome Foundation
FAST (Foundation For Angelman Syndrome Therapeutics) - Home
FAST is committed to assisting individuals living with Angelman syndrome to realize their full potential and quality of life.
Author: Gerardo Duenas
Welcome to Loeys-Dietz Syndrome Foundation Canada | Loeys-Dietz Syndrome Foundation Canada
Central Pain Syndrome Foundation -
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Shwachman-Diamond Syndrome Foundation
What is SDS? Shwachman Diamond Syndrome (SDS) is a rare blood disorder that affects the pancreas, bone marrow, and skeleton, but other organs may also be affected.
Loeys-Dietz Syndrome Foundation
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical information and personal support to assist you and your family on your journey with Loeys-Dietz Syndrome. Learn more about our foundation and
False Memory Syndrome Foundation
The False Memory Syndrome Foundation is a 501(c)(3) organization founded in March, 1992 to seek the reasons for the spread of the false memory syndrome, to work for ways to prevent the spread of the false memory syndrome, and to aid those who were affected by the false memory syndrome and bring their families into reconciliation.
Welcome « Stevens Johnson Syndrome Foundation
Stevens Johnson Syndrome Foundation
Kiwanis Down Syndrome Foundation
Indian RETT Syndrome Foundation
Foundation For Angelman Syndrome Therapeutics
PHACE Syndrome Community
A website dedicated to supporting families and those with PHACE Syndrome.
Home – Moebius Limited
Legal Practice Management software, Fiduciary Services,Document Management, Company Capital Management, Billing and Expenses, Time Recording
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Home - Moebius Networking
Moebius
Moebius is an interactive media production and publishing platform made for designers with no previous coding experience.
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Aspergers Syndrome - Community for people with Aspergers Syndrome
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Home - Community Foundation
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Home - Your Community Foundation
Home - The Community Foundation
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Home - Community Foundation
Our mission is to mobilize philanthropy by matching donors and resources with community needs for the benefit of the Southcoast MA region.
Oxfordshire Community Foundation home - Oxfordshire Community Foundation
Author: Oxfordshire CF
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Home - Caledonia Community Foundation : Caledonia Community Foundation
Helping Caledonia Community Dreams Come True
Reye's Syndrome | National Reye's Syndrome Foundation | United States
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Gould Syndrome - COL4A1 - COL4A2 genes - Gould Syndrome Foundation
Gould Syndrome Foundation a 501(c)3 Nonprofit, exists to provide hope and help to children and adults with the Ultra Rare Disease, Gould Syndrome; affecting COL4A1 and COL4A2 genes.
Author: Jselser
FNMS Home Page | The Foundation for Nager and Miller Syndromes
The Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe **** and limb anomalies, but do not usually affect intellect.
Home Page - Koolen-de Vries Syndrome Foundation | KDVS
Koolen-de Vries Syndrome Foundation's mission revolves around Awareness, Education and Research. Learn more about the syndrome, research and upcoming events
Mal de Débarquement, Debarkation Syndrome | MdDS Foundation
Mal de Débarquement, Disembarkment or Debarkation Syndrome is a disorder that leaves patients with a constant feeling of movement, as if on a boat. The MdDS Foundation advocates for and seeks treatments to end the suffering from MdDS. Learn more!
Author: MdDS Foundation
| FAST (Foundation for Angelman Syndrome Therapeutics)
FAST España es una fundación, sin ánimo de lucro, creada por familias españolas con hijos afectados por el Síndrome de Angelman, con la finalidad de concienciar a la comunidad española y trabajar juntos por promover el desarrollo de terapias que propicien la cura y llevar el tratamiento a la práctica médica, actual, lo más rápido posible.
The National Fragile X Foundation | Fragile X Syndrome
The NFXF serves all those living with Fragile X, including awareness, research, and community for individuals and families at all stages of life.
Homepage | International Rett Syndrome Foundation
Author: Kassie Morell; Mom; Kaylie age 4
Proteus Syndrome Foundation - Support and Education
The Proteus Syndrome Foundation's goals are Supporting / Educating Families of individuals living with Proteus Syndrome, public education, research funding
Pallister-Killian Syndrome Foundation of Australia
Pallister-Killian Syndrome Foundation of Australia
Author: Catch Themes
Smith-Magenis Syndrome Research Foundation
Restless Legs Syndrome Foundation Blog
Support for those affected by restless legs syndrome (RLS). For more info visit www.rls.org.
Author: Restless Legs Syndrome Foundation
Home - Charlotte Community Foundation
Home - Jewish Community Foundation
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Home - California Community Foundation
The California Community Foundation (CCF) is a vibrant and enduring resource committed to fulfilling the promise of Los Angeles County. We are steadfast advocates for those who struggle. We are trusted stewards of charitable passions. And we are thoughtful investors in systemic change.
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