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Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Zogenix - Therapeutic Solutions for Rare Diseases
Zogenix is committed to developing and commercializing transformative therapies to improve the lives of patients and their families living with rare diseases.
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
Rare2Aware – Bringing hope to people with rare diseases
Rare2Aware is a place to learn about rare diseases and bring together patients, their family, caregivers, healthcare professional and advocates
Rare Genetic Diseases | Ultragenyx
Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases. Founded in 2010, the company has rapidly built a diverse portfolio of product candidates with the potential to address diseases for which the unmet medical need is high, the biology for treatment is clear, and for which there are no approved therapies.
Changing the game - The Nathan Project for Rare Diseases
Kids with rare diseases often fall through the cracks of healthcare systems, causing serious problems for patients, their families, and the doctors who treat them. We are developing a needs assessment tool to help doctors and researchers find and fix these gaps, transforming the lives of these families. Left: Our ambassador, Nathan Garcia […]
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ವೈವಿಧ್ಯತೆಯನ್ನು ಕಾಯ್ದುಕೊಳ್ಳುವ, ಪರಸ್ಪರರನ್ನು ಗೌರವಿಸುವ ಸಹಜ ಆಶಯಕ್ಕೆ ಮತಾಂತರ ದೊಡ್ಡ ಹೊಡೆತ. ರೋಮನ್ನರು ಜೆರುಸಲೇಂ ಮೇಲೆ ಆಕ್ರಮಣ ನಡೆಸಿ, ಹತ್ಯಾಕಾಂಡಕ್ಕೆ ಇಳಿದಾಗ ಯಹೂದಿಗಳು ತಮ್ಮ ಪ್ರಾಣ ಉಳಿಸಿಕೊಳ್ಳಲು ತಾವಿದ್ದ ನೆಲವನ್ನು ತೊರೆಯಲೇಬೇಕಿತ್ತು. ಅನಿವಾರ್ಯವಾಗಿ ಗುಂಪು ಗುಂಪಾಗಿ ದೇಶಾಂತರ ಹೊರಟರು. ಆಗ ಯಹೂದಿಗಳ ಒಂದು ತಂಡ ಭಾರತದ ಕೇರಳವನ್ನು ಅರಸಿ ಬಂತು. ಆ ವೇಳೆಗಾಗಲೇ, ಯಹೂದಿಗಳು ಕೇರಳದ ಜತೆ ಅನೇಕ ವರ್ಷಗಳಿಂದ ಸಮುದ್ರ ಮಾರ್ಗದ ಮೂಲಕ ವ್ಯಾಪಾರ-ವ್ಯವಹಾರದ ಸಂಬಂಧ ಹೊಂದಿದ್ದರು. ಹಾಗಾಗಿ ಭಾರತದಲ್ಲಿ ಆಸರೆ ಸಿಗಬಹುದು, ಅನ್ನ-ನೀರು-ಸೂರು ಸಿಕ್ಕರೆ ಹೇಗೋ ಬಾಳ್ವೆ ಮಾಡಬಹುದು ಎಂಬ ದಯನೀಯ ಮನಸ್ಥಿತಿಯಲ್ಲಿಯೇ
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Ananda Balaga, Bangalore | anandabalaga.org
The concept of uniting like minded people from the District of Dakshina Kannada was conceived by the founding fathers in the year 1988 with an idea of impressing their presence in the city of Bangalore.
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Uttarakhand
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Alva's College, Moodbidri
Alva’s First Grade College established in the year of 1998. Alva’s College is known for integration of cultural and sport activities with academics. We have been recognized as a premiere institute under Mangalore University.
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Shakthi Education Trust - Mangaluru
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Shakthinagar, Mangalore
Steira - Technovations
Technovations
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