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Home - RETT Syndrome Association of Australia
Rett Syndrome Association of Australia
Author: Gary Grocott
L'association - Les rêves de Lucie : Association Syndrome de Rett
Association créée pour aider Lucie atteinte du syndrome de Rett.
Welcome | Rett New Zealand
This website provides information and support for families affected by Rett syndrome. You will find here information about Rett New Zealand, a brief description of Rett syndrome, links to current research and links to other useful sites.
Rett Syndrome Society of British Columbia : Rett Syndrome Society of BC
Rett Syndrome Rett Syndrome is a unique developmental disorder impacting mainly females and begins to appear in early childhood. Symptoms can include regression in communication skills, motor skills and other health issues. Learn about Rett Syndrome Our Mission Our mission is to support, educate, and empower those that live with Rett Syndrome and their families. […]
Rett Syndrome Research Trust: The Trusted Source for Rett Syndrome Information
Rett Syndrome Research Trust advances medical research, news and information about Rett Syndrome. A singular guide for parents and the scientific and medical community.
Down Syndrome Ireland
Down Syndrome Ireland offers support and services to people with Down syndrome and their families throughout Ireland.
Headlines Craniofacial Support Group - support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and as
Headlines is a charitable organisation based in the UK which aims to provide support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and associated conditions.
Manitoba Rett Syndrome Association - Home Page
Rett Syndrome (RS) is a neurological disorder seen almost exclusively in females and found in a variety of racial and ethnic backgrounds. The cause of Rett Syndrome has been traced to a defective gene on the X chromosome called MeCP2.
The HMSA | The Hypermobility Syndromes Association
The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.
Rett Syndrome Resources and Support for Families | Girl Power 2 Cure
Girl Power 2 Cure is a non-profit organization supporting families dealing with Rett Sydrome; a severe neurological disorder that affects children
Syndrome de Rett - La Vie selon Noémie - La Vie selon Noémie
Le Syndrome de Rett est une maladie rare d'origine génétique qui provoque un polyhandicap. Association La Vie selon Noémie
Down Syndrome Association of Wisconsin
The Down Syndrome Association of Wisconsin supports individuals with Down syndrome and their families through education, information, programs, services, and the exchange of ideas and experiences.
Welcome to The Canadian Association for Williams Syndrome
Get to know The Canadian Association for Williams Syndrome. Find out how you can get involved in the annual walks, how you can donate or shop today and find support for those with Williams syndrome.
Bodywhys | The Eating Disorders Association of Ireland
Bodywhys, the Eating Disorders Association of Ireland, is the national voluntary organisation supporting people affected by eating disorders
Home | Downs Syndrome Association
The Down's Syndrome Association are here to support and walk along life's journey with both old and young people living with Down's Syndrome.
Noonan Syndrome Awareness Association
Help us raise to rise! Join us in raising funds so we can all help more people rise above the challenges of living with Noonan Syndrome Donate What is Noonan Syndrome? Noonan syndrome (NS) is a genetic condition that affects many areas of the body that occurs in between 1 in 1000 to 1 in…
Down Syndrome Association of Simcoe County - Home
This is the community website for the Down Syndrome Association of Simcoe County, a group offering support to those with a family member living with Down syndrome. Here you will find information...
Cornelia de Lange Syndrome Association (Australasia)
The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA) is a family support organisation. We exist to support you and your family, with emotional support, a community, and quality information so you can make informed decisions. We also work to assist the accurate diagnosis of CdLS and promote research into the cause and manifestations of the syndrome.
Turner Contact Group Ireland - TCGI
Providing information, resources and support for those affected by Turner Syndrome
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Down Syndrome Association of Toronto, DSAT Non-Profit Charity
Down Syndrome Association of Toronto, DSAT mission is to support and empower individuals with Down Syndrome and their families throughout the GTA.
Author: Dsat1
Home - International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME)
IACFS/ME is dedicated to the research of people affected by myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS), fibromyalgia, and other related conditions.
Wellington Down Syndrome Association for the Greater Wellington Region
The Wellington Down Syndrome Association supports, educates and advocates for people within the Down syndrome community in the greater Wellington Region.
Author: Colleen Brown
Down Syndrome Association of Kingston - DSAK - Kingston
The Down Syndrome Association of Kingston, is a non-profit charitable organization community support group for persons with Down Syndrome and their parents, guardians, relatives and care workers.
Home – Li-Fraumeni Syndrome Association: LFS Patient Advocacy | Support | Research | Awareness
LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li-Fraumeni Syndrome.
Author: LFS Association
Romania Ireland Business Association
The Romania Ireland Business Association (RIBA), under the auspices and with the support of the Embassy of Ireland in Romania.
GAIN Charity: Guillain-Barré Syndrome (GBS) & Associated Neuropathies
GAIN is the only organisation dedicated to helping people affected by Guillain-Barré syndrome (GBS), CIDP and the associated inflammatory neuropathies throughout the UK and Ireland. Contact our helpline on 0800 374803 (UK) or 1800 806152 (RoI) between 8am and 3pm, Monday to Friday
FNMS Home Page | The Foundation for Nager and Miller Syndromes
The Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe **** and limb anomalies, but do not usually affect intellect.
Fragile X Syndrome | Fragile X Society | UK
Information and support on Fragile X syndrome for families, carriers and people living with the condition in the UK. Read more about the Fragile X Society.
International Mosaic Down Syndrome Association
We are The International Mosaic Down Syndrome Association. A community that supports the awareness of Mosaic Down Syndrome via content publishing, sharing of resources and annual conferences. Providing support for families and individuals whose life has been touched by Mosaic Down Syndrome. We are continuously pursuing research opportunities and increasing awareness in medical, educational and public communities throughout the world.
SOFT UK - Support Organisation for Trisomy 13 and Trisomy 18
SOFT UK provides information and support to families affected by Trisomy 13 (Patau's Syndrome) and Trisomy 18 (Edwards' Syndrome) and to associated professional
Association Mahé de la tête aux pieds - Syndrome de Joubert - Accueil
Association Mahé de la tête aux pieds - Informer sur le syndrome de Joubert - Soutenir la recherche - Aider Mahé au quotidien
Non-Profit Social Service Agency Singapore | Down Syndrome Association
Down Syndrome Association is a non-profit social service agency in Singapore that aims to educate the community about the genetic condition. Visit our website today!
Prader Willi Syndrome Association Ireland – Supporting people with Prader Willi Syndrome, their parents and carers in all aspects of their c
Supporting people with Prader Willi Syndrome, their parents and carers in all aspects of their care, education and well-being
Author: Emwa
Childminding Ireland - National Childminding Association
Supporting Ireland's Childminders; Minding Ireland's Children. Childminding Ireland is a National Voluntary Childcare Organisation and the National Childminding Association. We support all childminders to provide quality home based childcare.
Author: Admin
N.R.F.A. Ireland | National Retained Firefighters Association of Ireland
Welcome to the National Retained Firefighters Association of Ireland. The National Retained Firefighters Association is a group set up to help improve the working conditions of lives of Irish Retained Firefighters and their families.
Author: Terms; Conditions Privacy Policy website by dmac media
Migraine Association of Ireland: Not Just Another Headache
Migraine Association of Ireland.A patient charity providing support, education, information & advice to people suffering from migraine or headache disorders
Author: DNM
Loeys-Dietz Syndrome Foundation
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical information and personal support to assist you and your family on your journey with Loeys-Dietz Syndrome. Learn more about our foundation and
ACT ME/Chronic Fatigue Syndrome - Providing support for people affected by ME/CFS
Welcome Thank you for visiting. We provide support and information for people affected by Myalgic Encephalomyelitis (ME) /Chronic Fatigue Syndrome (CFS) and Fibromyalgia Syndrome (FMS) in the Canberra region. Build a Better Me: Arthritis, Pain Support & ME/CFS ACT is a not for profit, self help organisation which provides support services such as monthly information … Continue reading "ACT ME/Chronic Fatigue Syndrome"
Waterloo Wellington Myalgic Encephalomyelitis Association
The WWMEA provides support group meetings and information for those affected by CFS (chronic fatigue syndrome), M.E. (myalgic encephalomyelitis), CFIDS (chronic fatigue and immune dysfunction syndrome)
Author: Waterloo Wellington M E Assoc
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KLEEFSTRA SYNDROME FRANCE association loi 1901
Association pour le soutien des personnes atteintes du syndrome de Kleefstra. Créée depuis le 6 Aout 2016, née de la nouvelle amitié de 3 familles touchées par une mutation/ délétion génétique 9q34.3 EHMT1 sur l'un de leur enfant : le Syndrome de Kleefstra. Nos actions: soutenir, informer, faire connaître, aider financièrement .... En collaboration avec des associations dans le monde entier
Huntington’s Disease Association NI providing support to individuals, families and carers living with Huntington’s disease
Huntington’s Disease Association Northern Ireland is a NI registered charity which supports people affected by Huntington’s disease. We provide information & advice to families and professionals.
Author: Platypus Consultancy Limited
Association de victimes des médicaments,syndrome de stevens johnson ,lyell
Avimedi, association de victimes des medicaments offre des informations thérapeutiques et juridiques concernant les médicaments incriminés dans les cas de syndrome de stevens johnson et lyell.
London Down Syndrome Association – Supporting and Enriching Lives!
Established in 1983, the London Down Syndrome Association is a volunteer-run charity, raising funds to provide responsive, compassionate support services to children, youth, adults and families living with Down syndrome in London, Ontario, and surrounding areas. Providing support within the counties of Elgin, Huron, Middlesex, Oxford and Perth. LEARN ABOUT US
Author: Kristen
interstitial cystitis, painful bladder syndrome, IC/PBS, PBS/IC
interstitial cystitis, painful bladder syndrome, patient information, books, support groups, patient associations, pain management
Home - Aerotoxic Association
We are the Aerotoxic Association Dedicated to supporting those affected by Aerotoxic Syndrome FollowFollowFollowFollow Click here to read the first paper on Aerotoxic Syndrome published on 20th October 1999 by Dr Balouet, Dr Hoffman, and Prof. Winder Click Here for Dr. Balouet - Resume His involvement within the Aerotoxic association will be sadly missed What […]
Author: John Hoyte Org
Lennox-Gastaut Syndrome | Living With LGS
Get to know Lennox-Gastaut Syndrome. Find useful information to help you learn about treatment options, caregiver support, and more.
Angelman Syndrome Association of WA – Providing support in Western Australia since 2007
Our mission is to support, inform, educate, network, and advocate for families with a child with Angelman Syndrome
Down Syndrome Association of the Northern Territory Inc (DSANT) – a little eXtra
Please visit our facebook pages for latest news and upcoming events. Ways to Donate Please help us by donating to Down Syndrome Association Northern Territory Find Out More Supporters
Author: Mammax
HOME - Down Syndrome Association of Greater St. Louis
We’re Here Every Step of the Way The Down Syndrome Association of Greater St. Louis serves, supports, and celebrates the lives of individuals with Down syndrome and their families, through every stage of life. Become a Member Upcoming DSAGSL Events Monday-Friday Virtual Programming on Zoom and Facebook DSAGSL has virtual programs every day of the […]
Irish Men's Sheds Association | Mens Sheds Ireland
The Irish Men’s Sheds Association exists to support the development of Ireland’s network of over 450 men’s sheds. Established in 2011, the IMSA has overseen
Home - **** Recovery Association NSW
The **** Recovery Association advocates for and provides a range of support and information services to people affected by ****.
Home - Arthrogryposis Association of Ireland
Arthrogryposis Association of Ireland is a voluntary national support group of people who have an interest in Arthrogryposis Multiplex Congenita (AMC) including people with AMC, their families, and parents of children with this impairment
Author: Arthrogryposis Association
Marfan Europe Network - Your #1 place for Marfan Syndrome in Europe
We are a coalition of Marfan Syndrome patient organisations within Europe, aiming to support and encourage each other by exchanging and sharing information. Get to know us.
Wellbeing Ireland
Wellbeing Ireland is the Leading On-line Health, Wellbeing & Wellness Resources in Ireland. Get Information on a range of Conditions and Complementary Therapies or use our Search Facility to find a Complementary Health Therapist or Health Spa in your area.
Congenital Melanocytic Naevi - Caring Matters Now Ireland
Welcome to Caring Matters Now Ireland. A charity supporting those affected by Congenital Melanocytic Naevi (CMN) – a genetic condition, consisting of a dark brown hairy birthmark covering up to 80% of the body. The condition can also grow internally, which in the worst cases can be fatal.
NF Association of Ireland - Information, help & support for those who need it
Our primary aim is to inform sufferers and their families of the disorder, supporting them and letting them know they are not alone with the condition.
Ireland Canada Business Association - Connect | Communicate | Influence
Connecting members doing business between Ireland and Canada. Informing members on key developments and engaging policy-makers and influencers to support increased Ireland Canada trade.
Author: Chris Collenette
MEI – Marketing English in Ireland – The leading association of quality accredited English language schools in Ireland
73 MEMBER SCHOOLS The leading association of quality accredited English language schools in Ireland. WHAT WE DO We Drive ELT Standards in Ireland We Work with Government and Industry Partners We Promote and Support Our Member Schools We Promote Ireland, Travel, Meet & Collaborate NEWS
Author: Meireland
Sahmel & Associates | Just another WordPress site
Welcome To Sahmel & Associates SERVING SAN DIEGO SINCE 2000 Located in Banker's Hill, Sahmel & Associates, Certified Public Accountants is a professional full-service accounting firm serving…
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The Australian Council of Stoma Associations Inc – The Australian Council of Stoma Associations Inc
Important Message - COVID Update September 2021 The continuing COVID related lockdowns and travel restrictions continue to affect our member associations located in Melbourne, Sydney and Canberra. Associations located in these areas are continuing to operate within COVID Safe conditions. Please contact your association directly for information about their current operating conditions including arrangements for obtaining
Author: Admin
Galvanizers Association Ireland Galvanizing Association Galvanisers Association
The Galvanizers Association in Ireland and UK has been providing free authoritative information about hot dip galvanizing since 1949. Contact us on +44 (0) 121 355 8838 if you need any assistance on design, specification or advice on performance.
DSAI | Direct Selling Association Ireland | Official Website
Direct Selling Association Ireland official website. Information and advice for Direct Selling companies, start-up companies and Direct Selling customers.
Alberta Homeschooling Association
Alberta Homeschooling Association provides information, help, how-to-get-started support and advocacy on homeschooling and home-education in Alberta.
Dealing with the Devil | Just another WordPress site
A graphic fantasy bildungsroman by Aisha Thiessen in which an ordinary girl gets caught up in a war between Heaven and **** to find her way back home.
RSPBANI : Royal Scottish Pipe Band Association Northern Ireland
Bagpipes | Drums | Pipe Bands | Drum Majors. Welcome to the Royal Scottish Pipe Band Association, Northern Ireland Branch website. An information centre for all things Pipe Band, Drum Major, Competition and Results
Dermatology Education | Just another WordPress site
Dermnet is the largest independent photo dermatology source dedicated to online medical education though articles, photos and video. Dermnet provides information on a wide variety of skin conditions through innovative media.
CBE Staff Association
Through Communication Comes Understanding CONTACT US FOR MORE INFORMATION Welcome The Calgary Board of Education Staff Association was founded in 1968. We proudly represent close to 5,000 support staff employees who work in various capacities to support the education of CBE students. The Purpose of the SA is to achieve the best possible working conditions […]
Handly - Just another WordPress site
When it comes to reliability, we are the one you need! One stop solution for all home appliances problem – Handly.in Know More Request Callback Please complete the form [wpforms id=”6″] Quality work through dedication One stop solutions for home, office split and windows air condition, refrigerator service, washing machine and microwave repairing etc. Get … Home Read More »
Home - Acoustic Neuroma Association
Acoustic Neuroma Association (ANA) is a designated 501(c)(3) non-profit organization. The mission of ANA is to inform, educate and provide national and local support networks for those affected by acoustic neuromas, and to be an essential resource for health care professionals who treat acoustic neuroma patients.
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Einedrahn | Das Wienerlied im Heumarkt
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