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BioMarin Pharmaceutical Inc.
BioMarin is a world leader in developing and commercializing innovative biopharmaceuticals for rare diseases driven by genetic causes.
BioMarin Pharmacuetical Inc. | Europe, Middle East, and Africa (EMEA)
BioMarin is a world leader in developing and commercializing innovative biopharmaceuticals for rare diseases driven by genetic causes.
Home - Rhythm Pharmaceuticals
Learn more about how Rhythm is changing how rare genetic diseases of obesity are diagnosed and treated.
Parkinson’s Disease & DUOPA™ (carbidopa/levodopa) | Official Patient Site
Learn about DUOPA™ (carbidopa/levodopa), a treatment for motor fluctuations in advanced Parkinson's disease, as well as benefits and risks.
Rare Disease Surveillance » Australian Paediatric Surveillance Unit
The Australian Paediatric Surveillance Unit (APSU) conducts national surveillance of rare uncommon diseases in childhood.
Comradis
AMICULUM Comradis is a specialist healthcare communications and commercialization consultancy. Our priority is to ensure that patients and families affected by rare diseases and uncommon cancers receive the best possible care and support
Welcome to OnePath.com
Takeda's OnePath® is committed to providing personalized product support services to patients and their caregivers affected by rare diseases. Learn more about how we can help.
Home - EMENA
Find out more about multiple endocrine neoplasia, a rare endocrine disease.
hATTR Amyloidosis | The Bridge®
Learn about a rare, inherited condition called hATTR amyloidosis by exploring information about the symptoms, treatment, and living with the disease.
Hybrid AF™ Therapy | Atricure
A new treatment for atrial fibrillation offers hope for patients with long-standing persistent Afib. Learn more about Hybrid AF™ Therapy.
Home | OverStitch™ Endoscopic Suturing System
Learn more about the OverStitch™ Endoscopic Suturing System, enabling advanced endoscopic procedures.
Carion Fenn Network - Syringomyelia, Chiari Malformation, Rare & Chronic Diseases and Seniors Support.
Welcome to Carion Fenn Network. A place to share, learn & support. (Syringomyelia/Chiari Malformation/ Rare & Chronic Diseases & Seniors)
Author: Subscriber SM; CM
knowHAE | Get to know hereditary angioedema (HAE)
Learn more about the rare disease hereditary angioedema (HAE), including signs and symptoms, how it’s diagnosed, treatment options, and more.
Rare2Aware – Bringing hope to people with rare diseases
Rare2Aware is a place to learn about rare diseases and bring together patients, their family, caregivers, healthcare professional and advocates
knowHAE | Iepazīt hereditāra angioedema (HAE)
Learn more about the rare disease hereditary angioedema (HAE), including signs and symptoms, how it’s diagnosed, treatment options, and more.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
Vertex GPS™ | Guidance & Patient Support
Learn about Vertex GPS™, a patient program for people who have been prescribed Vertex medicine. Find information about insurance, co-pay, and reimbursement support in addition to educational resources.
Home - Cognitive Behavioral Therapy - Spiler Psychotherapy™
Empowering Attitude of Choice, Learning, Flexibility, Growth and Possibilities Spiler Psychotherapy™ is an Online Mental Health Private Practice that offers Psychotherapeutic Services and Coaching. About Us » Spiler Psychotherapy™ primarily focuses on Personality Disorders, and Couple and Family Conflicts. We offer a variety
Author: Spiler
News, Insight, and Clinical Perspective
Rare and genetic disease publisher and learning platform.
Author: Peter Ciszewski
Other sites like biomarin-rareconnections com
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
PSC Partners Seeking a Cure | Education, Research & Treatment
PSC Partners Seeking a Cure provides education and support to people directly affected by this rare liver disease. Learn about primary sclerosing cholangitis and how we’re striving to find treatments and a cure.
CLN2 disease information for families and caregivers
Learn more about CLN2 disease, how to care for children with CLN2 disease, and the various advocacy groups that support families and caregivers.
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
InstantGMP™ | All-in-One Good Manufacturing & Quality Software
InstantGMP™ offers a comprehensive manufacturing software to reinforce good manufacturing processes for your business. Learn about our software solutions today!
Genius™ 3D Mammography™ exam | For Professionals : MyGenius3D
Learn more about Genius™ 3D Mammography™ exams, including clinically proven benefits, how to request a rep, and where to find a facility.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Kidney School™
Kidney School™ is an interactive, web-based learning program designed to help people learn what they need to know to understand kidney disease and its treatment, adjust to kidney disease, make good medical choices, and live as fully as possible. Kidney School is a program of Life Options and was developed by Medical Education Institute, Inc.
Author: Medical Education Institute; Inc
SMA Support Inc., Home of Spinal Muscular Atrophy
Dedicated to providing information, support and help for anyone facing the incurable genetic disease Spinal Muscular Atrophy (SMA). Learn about the disease, research, treatments, and life with the disease, speak with others in similar positions.
Home - Lucas John Foundation
Impacting the lives of children diagnosed with rare diseases by funding research and offering scholarships for alternative therapy. DONATE NOW in the news … Lucas was recently featured on Good Morning America! Visit Lucas’s page on GMA RESEARCH Research for Rare Disease There are approximately 7,000 known rare diseases in the United States, with an…
Author: Lucasjohn
Home
Learn the facts about Fabry disease including causes, symptoms, Fabry disease in women, and why family members should be tested for Fabry disease.
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Learn how only CEQUA™ (cyclosporine ophthalmic solution) features NCELL™ technology, which helps improve the ocular **** of cyclosporine. Change the outlook for dry eye disease.
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
Front Page - BensFriends.org
Safe and Supportive Communities for Rare Disease Patients Donate Today
The Isaac Foundation | Love, Laughter, and Hope
Providing support and advocacy for patients and families coping with rare diseases.
Home - SewGood™
EVERYONE CAN LEARN TO SEW! Now offering curbside pickup for all items in our store! SHOP NOW SewGood™ specializes in sewing classes designed for the absolute beginner! Named Home Based Business of the Year by the Chamber of Commerce, New Westminster 2017 At SewGood™ you start at the very beginning and learn proper sewing techniques. Many…
Author: – Leah Bettger
Uncommon Travel Guides
Uncommon Travel Guides are brightly written urban guidebooks devoted exclusively to what is original, exclusive and rare about a place.
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Home | Community Living Elgin
Strengthening Community Support & Services At Community Living Elgin Residential Support Learn more about Residential Support Learn more about Residential Support Day Programs & Services Learn more about Day Programs and Services Learn more about Day Programs and Services Group & Supported Living Learn more about Group and Supported Living Learn more about Group and...
Recycling Counts™
Welcome to Recycling Counts™, an online global community from Plastipak to promote, support and educate about recycling in our communities.
Scleral Lens Springfield | See-Green®™ Products | Dalsey Adaptives
Dalsey Adaptives in Springfield, MA provides scleral lens patients with See-Green®™ products. Contact us today to learn more about the products we offer.
Get the Facts About Meningitis B
Meningitis B is an uncommon but potentially fatal disease. Learn how it spreads, the symptoms, and how to help protect yourself with meningitis B vaccines.
CloudBra™
CloudBra™ proudly offers comfortable bra that is supported with all the essential elements of fit and comfort for each individual's needs.
Author: Cloudbra UK
.: A M I R I N A™ :.
.: A M I R I N A™ :. " همه چيز در مورد " All things about " AMIRINA "
What’s new?
Learn about periodic fever syndrome and rare autoinflammatory diseases including CAPS, SJIA, AOSD, FMF, TRAPS, HIDS/MKD and Gout. Understand the science, hear expert insights and read patient stories about what it is really like to live with the disease. Visit our website to learn more today.
RDNZ | Home
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues.
What is Gaucher disease? Visit GaucherDisease.info
Visit GaucherDisease.info to learn about the rare genetic disorder, Gaucher disease (or Gaucher’s). Symptoms include enlarged liver and spleen, bleeding and bruising, and joint pain.
고셔병이란? - GaucherDisease.kr
Visit GaucherDisease.info to learn about the rare genetic disorder, Gaucher disease (or Gaucher’s). Symptoms include enlarged liver and spleen, bleeding and bruising, and joint pain.
What is Gaucher disease? Visit GaucherDisease.info
Visit GaucherDisease.info to learn about the rare genetic disorder, Gaucher disease (or Gaucher’s). Symptoms include enlarged liver and spleen, bleeding and bruising, and joint pain.
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Precision viticulture technology for grape disease monitoring. SmartVineyard™ helps optimizing pesticide output by providing accurate data on diseases.
Merck Access Program for ZINPLAVA™ (bezlotoxumab)
Eligible patients prescribed ZINPLAVA™ (bezlotoxumab) can learn more about product access from Merck.
Chopstix™
Serious about Chinese food since 1998, Chopstix™ offers Chinese recipes, cooking tips and restaurant reviews.
Personalized Support for Patients & Families Affected by Rare Disease
CareConnectPSS® is designed to support each patient’s unique journey to help you overcome challenges related to living with Fabry, Gaucher, Pompe, and MPS I disease. Learn more about the many support offerings & available resources.
TABITHA + CO - TABITHA + CO™
One-of-a-kind, Mindfully Made™ leather goods. Learn about our bespoke leather products made in rural Nova Scotia. Click here.
Home - Linda Graham
Read, Watch, Learn…Resilience 2.0™ Linda's 8-week online program, Resilience 2.0™ offers proven strategies and practices for learning to cope with anything, anything at all, from small annoyances, to the serious sorrows and struggles that break our hearts and sometimes break our spirits, to the utter catastrophes that change our lives forever. Learn about Resilience 2.0™ About Linda […]
Meningococcal B - Get The Facts
Meningococcal B, also known as meningitis, is an uncommon but potentially fatal disease. Learn how meningococcal disease spreads, the symptoms, and how GSK's Bexsero vaccine can help protect your child or teen against it.
Home - HERZUMA® (trastuzumab-pkrb) for injection HCP site
Learn about the biosimilarity of HERZUMA, pricing, and support service offerings. See Safety Info.
Know Meningococcal
Do you know enough about meningococcal disease and how to help prevent it? Meningococcal disease is a rare but potentially devastating infection.
Author: GlaxoSmithKline plc
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XLH (X-linked Hypophosphatemia) Patient Site | XLHLink
A website dedicated to raising awareness about XLH. Become a champion for rare diseases.
X-linked Hypophosphataemia (XLH) Patient Site | XLHLink Canada
A website dedicated to raising awareness about XLH. Become a champion for rare diseases.
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CND™ is the nail industry’s most innovative and trusted brand and has led the way in professional nail care for over 40 years. CND™ Vinylux™ is a two-step nail polish system that offers high performance weekly wear, with a high-gloss shine finish.
ELEVATED BIOSCIENCE INNOVATION™ - ELV BIOSCIENCE
BIOLOGY, ELEVATED™. #1 online supplier of SARMs, Research Chemicals, Peptides, Nootropics, Rare Botanicals, and Rare Botanical Extracts.
Metastatic SCLC Treatment | ZEPZELCA™ (lurbinectedin) HCP
Learn about ZEPZELCA, a metastatic small cell lung cancer treatment for your SCLC patients with disease progression on or after platinum-based chemotherapy
Multiple Sclerosis (MS) | MS LifeLines®
Learn about multiple sclerosis (MS), a disease that affects the central nervous system, including symptoms, treatment, and community support.
Home - Mesoblast Ltd
Learn more about Mesoblast's adult stem cell research and the potential to cure human disease.
MyGene2 - Home
Uniting families, clinicians, and researchers for rare disease discovery.
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
Official Doona™ Shop - Hong Kong
– Doona™ Hong Kong
Doona™ is the world’s first infant car seat with a complete and fully integrated mobility solution. Learn more about the product or buy it on the official shop.
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Perforce Software Development Tools
HPC computing environments require specialized tools for multithreaded, multiprocess, GPU-specific, and parallel applications. Debug code written in C, C++, and Fortran. See why industry leaders use TotalView.
Author: David Gunter; Los Alamos National Laboratory; Parallel Tools Team
Perfecto Scriptless Automated Web Testing Tool
Perfecto Scriptless (formerly TestCraft) is a codeless automated web test tool + UI testing automation tool. Anyone can create stable automated web tests fast. AI eliminates maintenance.
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Build Better Java Applications Faster
JRebel by Perforce is home to the award-winning Java developer tools, JRebel and XRebel. See how they can help your team build better applications, faster.
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Home | Hometown Manufacturing
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Canal Extremadura: Últimas noticias y todos los programas
Canal Extremadura es el medio público de la región. Televisión, radio, web y redes sociales para informar y entretener a los extremeños, estén donde estén.
Home | Plastik in der Umwelt
Homepage | Denver Botanic Gardens
Author: Michelle DePrenger-Levin
EHR Software, Revenue Cycle Management | Greenway Health
Our EHR software and services connect providers to the right information and insights so they can make patient-driven care a reality.
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Letchworth Garden City Heritage Foundation is a self-funding charitable organisation re-investing for the long term benefit of communities in Letchworth Garden City.
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MRA-Your Total HR Resource
MRA's got your back 24/7! We’ll help your organization thrive by solving your toughest human resource and business challenges with strategic workforce planning, innovative ideas, industry experts, and powerful resources and technology.
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OpenLogic delivers comprehensive open source services, including mission-critical support, ready-to-go solution stacks, design guidance, and training. By engaging OpenLogic, global organizations can quickly adopt the right open source technologies to drive innovation, boost efficiency, and improve agility.
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Der Gesundheitstourismus in Graubünden besteht aus einem wachsenden Netzwerk von Leistungserbringern aus den Bereichen Tourismus und Gesundheit.
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