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X-linked Hypophosphataemia (XLH) Patient Site | XLHLink Canada
A website dedicated to raising awareness about XLH. Become a champion for rare diseases.
Welcome to XLH link
A website focused on sharing the real-life experiences of people with XLH, plus expert information and new ideas
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Raising funds for Medicinal Cannabis Research | Drop A Dollar
Drop a Dollar is a not-for-profit charity raising awareness for Medicinal Cannabis Research. Join us in funding research and treatments for rare diseases.
Healthy Malaysia
Healthy Malaysia are a not-for-profit organisation dedicated to raise awareness about and to screen for chronic diseases, and to improve access to costly treatments, because health screening and treatment services for many chronic diseases are limited in Malaysia
Author: Healthy Malaysia
we care about rare disease patients | Sobi North America
Sobi is dedicated to developing and delivering innovative therapies to improve the lives of rare disease patients.
Harmony Biosciences | Patients Are At The Heart Of Everything We Do
Harmony Biosciences is dedicated to developing & commercializing innovative therapies and novel medications for patients living with rare neurological diseases.
Rachel A. Bonner Hope For Crohn's
group of dedicated volunteers whose mission is to raise awareness of crohn's disease and to generate funds for crohn's research www.hopeforcrohns.org
The Missy Project
A nonprofit org dedicated to raising awareness of Brain Aneurysm Disease (BAD) in children through education, outreach and early detection.
LymeLight Foundation - Lyme Disease Treatment Grants
LymeLight Foundation's mission is to provide Lyme disease treatment grants to eligible children and young adults to raise awareness about Lyme disease.
Say No to Animals in Pet Shops |
Say No To Animals In Pet Shops About us We are dedicated to raise awareness about the ills of acquiring
Miles For Migraine - Finding a Cure for Migraine Begins with You
Miles for Migraine is a nonprofit dedicated to improving the lives of migraine patients, raising public awareness, and finding a cure for migraine diseases.
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
Fabry Disease | Fabry Awareness
Healthcare practitioners: Learn about symptoms, signs, management, and other aspects of Fabry Disease and help us raise awareness of this condition.
Tyrosinemia Type 1: information, fundraising and research
The Tyrosinemia Foundation raises funds for research into the rare metabolic disease Tyrosinemia Type 1. We provide information about the disease and give insights in available researches.
Author: Admin
Finding a Cure for Kawasaki Disease| Kawasaki Kids Foundation
Kawasaki Kids Foundation is a non-profit dedicated to cure Kawasaki Disease. Our mission is to fund research, raise awareness, and support families.
Diseasemaps - World Maps of Chronic and Rare Diseases
Connect with people who share your disease and help each other. World Maps of Chronic and Rare Diseases. The main purpose of the project is to help people with chronic and rare diseases. Living with these diseases is usually hard and it is not always properly understood by society. Therefore, we want to spread awareness about all of them and help people who are nowadays suffering. Through this website, you can check how your disease is spread all over the world.
Opaskwayak Health Authority | Caring for Our People and Our Community
Opaskwayak Health Authority is dedicated to raising awareness and educating others about prescription **** abuse.
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BROTOES - Socks Site. Happy Socks, Colourful Socks Party Socks
Happy socks. Raising awareness about prostate cancer
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Secrets of Sushi Home - Secrets of Sushi
Secrets of Sushi is a website dedicated to teaching people how to roll sushi at home while raising awareness about sustainable seafood. Recipes, tutorials, videos, and more!
Author: Bryan
Australian Patients Association - Australian Patients Association
JOIN US Get access to information and support to improve your patient experience. Become a member, it's free! HAVE YOUR SAY Tell us your experience so we can advocate for positive patient improvement. SHARE YOUR STORY The APA is an independent not-for-profit association dedicated to championing and
Author: Australian Patients Association
Home
Welcome The Hypopara Europe Network is a collaboration of European patient organisations working together to raise awareness about hypoparathyroidism, a rare endocrine condition, and to i mprove...
Sickle Cell Disease Awareness | Generation S
Join Generation S to raise awareness for sickle cell disease. Find the resources and tools to rewrite your sickle cell story & learn more about Generation S.
Nova Ukraine
Nova Ukraine is a non-profit organization dedicated to raising awareness about Ukraine in the US and throughout the world and providing humanitarian aid to Ukraine.
ReviewLaza - ReviewLaza
World AIDS Day 2021- “End Inequalities End AIDS” About World AIDS Day World AIDS Day was first observed on 1st December 1988 to raise awareness about **** and to commemorate people living with ****. It is an international day dedicated to raising awareness about the...Read more
Be Pet Aware | A community effort dedicated to raising awareness
A community effort dedicated to raising awareness of weather-related harm to animals. Within minutes, even mild weather can become fatal to unattended pets.
Batten Disease Support & Research Association
ABOUT US BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA
Author: Tom Evans
Ketamine Media - The #1 Growth Platform for Infusion Centers
Ketamine Media is the industries first dedicated agency focused on helping providers raise awareness about the clinical use of Ketamine.
Pretty in Pale
Pretty in Pale is a blog dedicated to raising awareness about melanoma and helping young women love the skin they were born in.
Author: Katie Wilkes
Gout Education Society
The Gout & Uric Acid Education Society is a nonprofit organization of health care professionals dedicated to raising awareness about gout arthritis.
MISSD - The Medication-Induced Suicide Prevention and Education Foundation in Memory of Stewart Dolin - Akathisia Support
A non-profit organization dedicated to honoring the memory of Stewart and other victims of akathisia by raising awareness and educating the public about the dangers of akathisia.
Home - LGMD Awareness Foundation
ABOUT US LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular conditions known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public. By increasing
Author: Dooley
Home
ABOUT US LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular conditions known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public. By increasing
Author: Dooley
Exploding Ticks
What is this? This is a multi-platform game that is going to raise awareness and spread education about Lyme Disease. Created by Dr. Pat Baccili as part of her Lyme Global platform and initiative to educate the world about the devastating
Author: Admin
REMOTE HUTS - HUTS
The Remote Huts website was created to profile and raise awareness about a network of remote high-country huts and bivouacs in central Westland that becoming run-down and under potential threat of removal at the time by DOC.
Croatian Viewpoint, journey to freedom, justice, history
The purpose of the Croatian Viewpoint website is to raise awareness about the violation of human rights of Croatian people.
CURED - Home
CURED is a not-for-profit corporation that donates substantial funds to aid in research for eosinophilic diseases. We advocate on behalf of EGID patients and their families by raising awareness about this complex group of diseases. To learn additional information, send us a message.
What else xlhlink.com alternative websites
#Art4GlobalGoals – 17 Issues Interpreted by Leon Löwentraut in His Art
#Art4GlobalGoals is a campaign and art exhibition to raise awareness about the issues at the heart of the Sustainable Development Goals. Our interactive website lets you become part of the movement to make the world a better place for everyone.
Simon's Heart: Preventing Sudden Cardiac Arrest in Children
Simon's Heart is dedicated to raising awareness about & preventing sudden cardiac arrest in children. Sudden cardiac arrest isn't just an adult thing.
Welcome to the Orang Utan Republik Foundation - Orang Utan Republik Foundation
Orang Utan Republik Foundation is dedicated to raising awareness in Indonesia about Orangutans and the Rainforest. Saving a species through education initiatives and innovative collaborative projects.
Home - Active Life Chiropractic
Active Life Chiropractic is proud to have helped raise over 60,000.00 for CF research. Each year, more than 125,000 people participate in hundreds of walks across the country to support the Foundation’s mission to cure cystic fibrosis and raise awareness for this rare, genetic, life-shortening disease that makes it difficult to breathe.
Author: Kay G
The Healing Power of ART & ARTISTS – We are a community of artists, arts advocates and writers dedicated to raising awareness about how art
We are a community of artists, arts advocates and writers dedicated to raising awareness about how art enhances the well-being of individuals, society and the environment.
Author: Renee Phillips
Home
About CSA Vancouver is a regional chapter of the global Cloud Security Alliance. We are a member-driven organization dedicated to defining and raising awareness of best practices to help ensure a secure cloud computing environment. Mission Statement Our mission is to become the go-to organization
Touched by addiction - end the plague. Help pay for a 1 year rehab
– Touched By Addiction
TBA raises awareness and funds. Awareness about the deadly disease of addiction. Addiction thrives in the dark and in isolation - by shining a light on the subject we are exposing it and fighting it head on. Also, through the sale of merchandise we are covering the cost of a 1 year rehab program for those in need.
The Oticon Foundation in New Zealand
A charitable trust dedicated to improving the quality of life of hearing impaired New Zealanders by raising awareness and increasing knowledge about hearing loss and hearing solutions.
Infomediz.com | Your wellness Partner- Keep updated stay fit
Infomediz.com is the website that keep people educate about health problems and create awarness for disease prevention along with beauty tips
Collaborative approaches for linking circular economy initiatives -
The CIRCULINK project aims to merge social innovation and the world of work, committing to raise awareness about the advantages of Circular Business Models and their relation with Social Innovation at work.
It's time to talk about mito - The Lily Foundation
The Lily Foundation is a UK charity dedicated to fighting mitochondrial disease. We work in partnership with the NHS and leading mitochondrial clinics to support those affected by the condition, raise awareness, and fund research into effective treatments and therapies. Our long-term goal is to find a cure for mitochondrial disease.
Home
About Simple Tasks The American College of Rheumatology’s (ACR) Simple Tasks campaign aims to raise awareness of the severe impact of rheumatic diseases and highlight the healthcare policy issues that affect patients’ ability to access
Author: ACR Staff
Why Animal Research?
NABR is dedicated to raising awareness of the role animals play in biomedical research. Find out more about the role the organization plays in devising sound public policy to help the scientific community.
Sadhvi Siddhali Shree | Monk, Speaker, Filmmaker, Author
Meet Sadhvi Siddhali Shree. She is a Jain Monk, US Army Iraq-war veteran, speaker, filmmaker, and author who has dedicated her life to raising awareness about spirituality, transformation, and world change.
Home :: Connecticut Brain Tumor Alliance
The Connecticut Brain Tumor Alliance is a non-profit organization dedicated to offering support and compassion. Our mission is to raise awareness of the disease, provide hope and support for others living with brain tumors in Connecticut and raise money to support and advocate the cutting-edge research we all know someday will find a cure.
Cycle Pharmaceuticals – Treatments for rare disease patients
WHAT WE DO Cycle Pharmaceuticals is a global, privately-owned and patient-dedicated biotechnology company headquartered in Cambridge in the UK. Our mission is to utilise the latest pharmaceutical technologies to deliver superior **** treatments to better serve rare genetic disease patients. In addition, we provide individualised patient support services to
Author: Web Admin
Parkinson’s Disease & DUOPA™ (carbidopa/levodopa) | Official Patient Site
Learn about DUOPA™ (carbidopa/levodopa), a treatment for motor fluctuations in advanced Parkinson's disease, as well as benefits and risks.
speechandhearing.ca / paroleetaudition.ca - May is Speech and Hearing Month!
May is Speech & Hearing Month in Canada! Each year, Speech-Language & Audiology Canada (SAC) dedicates the month of May to raising public awareness about communication health. We work to highlight the…
Switch to an EV – Drive Clean Bay Area
Drive Clean Bay Area is a trusted source of unbiased information about all things EV. As part of a nonprofit collaboration dedicated to raising awareness and providing education about EVs, we offer tools to help you navigate unfamiliar terrain.
Author: August
Home - Australian Homeopathic Association (Western Australia Branch)
Dedicated to raising the awareness of Homoeopathy in Western Australia. Learn more Upcoming Events Find out about our upcoming events and related news Read more Search for WA Practitioners Search for Professional Homoeopaths in WA Read more…
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AVRF: American Vitiligo Research Foundation
American Vitiligo Research Foundation Inc. (AVRF) provides public awareness about vitiligo through dedicated work, education and counseling. We seek to make a difference worldwide to those afflicted by the disease, focusing on children and their families.
What’s new?
Learn about periodic fever syndrome and rare autoinflammatory diseases including CAPS, SJIA, AOSD, FMF, TRAPS, HIDS/MKD and Gout. Understand the science, hear expert insights and read patient stories about what it is really like to live with the disease. Visit our website to learn more today.
The Mobile Query | Breaking The Wall of Worries
The Mobile Query is all about raising most common issues related to your smartphone. Our dedicated team is working hard to become a voice of each & every frustrated customer of the smartphone industry. For more information, you visit us
Author: Abijith Sasikumar
My School Lunch - promoting healthy eating and an active lifestyle
My School Lunch raises awareness of school lunches across local authorities in England and Wales. The aim of the website is to educate children, their parents and teachers about healthy eating and an active lifestyle.
Core Awareness – the home of Liz Koch and the Psoas Muscle Book and Workshops – The home of Liz Koch and the Psoas Muscle Book and Workshops
Welcome to Core Awareness™ my educational website dedicated to understanding the Psoas by enhancing somatic awareness in order to comprehend the power, complexity, and profound influence of this mysterious body tissue. Learn more about the Psoas and Liz Koch
Forever Family
Forever Family is a 501(c)3 non-profit organization dedicated to helping children and teens in foster care find permanent, loving homes. Together with its sponsors and media partners, the organization focuses on raising awareness throughout communities about the struggles and misconceptions surround
Sport 4 Development Ireland | Sport 4 Development
Welcome to Sport 4 Development Ireland This website is a dedicated Irish portal and online presence to promote and raise awareness of the field of 'Sport for Development' in Ireland and internationally. This field of work, which has a number of names, is simply where sport is deliberate
The Morgellons Research Foundation (MRF) - Morgellons Disease ?
The Morgellons Research Foundation (MRF) The Morgellons Research Foundation (MRF) is a 501(c)3 non-profit organization established in 2002 in honor of a two-year-old child with an unknown illness, which his mother labeled “Morgellons disease”. The MRF is dedicated to raising awareness and research funding for this poorly understood illness, which can be disfiguring and disabling, […]
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Home - Evive
Evive changes the way companies communicate. Starting with rich healthcareand HR data sources, we use our proprietary predictive analytics and behavioral science expertise to automate “campaigns of one”: highly segmented, multimodal outreach that connects the right person to the right resource at the right time. We’re here to show that data delivers.
ΓΕΩΡΓΙΚΑ ΑΓΡΟΤΙΚΑ ΜΗΧΑΝΗΜΑΤΑ AGRIMAC ΤΙΜΕΣ ΘΕΣΣΑΛΟΝΙΚΗ
Γεωργικα αγροτικα μηχανηματα για ολους τους τυπους τρακτερ στις καλυτερες τιμες της αγορας και παντα με διαθεσιμοτητα σε ολα τα προιοντα
貓糧、狗糧、寵物各類食品、用品專門店 - Pet Line
Pet Line是全港首創具規模的一站式"寵物用品連鎖店"，我們用心將最完善、品質最好的產品及服務帶給寵物主人包括貓/狗/各類寵物糧、罐頭、小食、玩具、營養保健用品、碗及餵食器、殺虱用品、美容及清潔用品、口罩及頭罩 頸圈及繩帶、藥物...等。
Startseite - WinkArm
New and Used Cranes for Sale - VEMA Crane
Our company has been active in sales and rental of cranes and heavy machinery for over 40 years. We hold a wide variety of cranes from 20 to 1500 tons.
Tín Toàn- Cung cấp đồ bảo hộ lao động chất lượng tại Đà Nẵng
CÔNG TY TNHH BẢO HỘ HSE TÍN TOÀN - 0905019101. Địa chỉ cửa hàng: 86 Nguyễn Viết Xuân, TP. Đà Nẵng. Chuyên: cung cấp Đồ Bảo Hộ giá rẻ tại Đà Nẵng
Author: Admin
Santuario Gesù Bambino di Praga
step by step sustainably | The Green Gaia
Discover easy ways to live a more sustainably lifestyle. We want to put together solutions for your everyday life, from products to useful information.
New and Used Cranes for Sale - VEMA Crane
Our company has been active in sales and rental of cranes and heavy machinery for over 40 years. We hold a wide variety of cranes from 20 to 1500 tons.
Home Page KBC ITA
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Bluefin SUP Shop: a Stand Up Paddleboard for everyone!
Why choose a BLUEFIN SUP? Bluefin Paddleboard is the ultimate all-around paddle board package: #1 Most Stable Stand Up Paddleboard! Buy NOW!
HF Bryggan – Flytbryggor, badbryggor och pontoner
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Etusivu – Wistec Training
IT-koulutukset lähiopetuksena ja verkossa: MS Office, Adobe, some ja paljon muuta. Wistec on kokenut osaamisen kehittämisen asiantuntija. Tutustu!
Kendo Equipment
Kendo equipment is usually made up of the uniform, the swords, and its armor. When it comes to its swords, there are two different types used and these are the bokken or bokuto and the shinai; the bokken is a quality, solid wooden sword that is made from beautiful oak or any other suitable type of hardwood that is appropriate for the weapon. This type of sword is commonly utilized for kata but never for competitions, matches, or even sparring sessions. The shinai, on the other hand, is made from four bamboo leather and staves so due to its elasticity, the shinai is commonly utilized for sparring practice.
ISAR – International Society for Astrological Research
| Otantik Imports
Trang chủ - NỒI HẤP TIỆT TRÙNG
Slc Việt Nam nhà cung cấp nồi hấp tiệt trùng nhiệt độ cao hàng đầu tại Việt Nam. Chúng tôi luôn đảm bảo các sản phẩm được nhập khẩu chính hãng 100%
Radiografische afstandsbedieningen voor industriële toepassingen | Tyro Remotes
Tyro Remotes is producent in radiografische afstandsbedieningen voor industriële toepassingen. Voor elke industrie de juiste industriële afstandsbediening!
MetaLife Pilates - Os melhores aparelhos de pilates do Brasil
Pensou em Pilates, pensou em MetaLife! A marca mais recomendada pelos profissionais, com excelência na produção de aparelhos de pilates e acessórios!
Pomati, Eccellenza Italiana nelle Macchine per il Cioccolato dal 1967
Presente sul mercato italiano e internazionale dal 1967, Pomati Group propone macchine ed accessori per la lavorazione del cioccolato.
FEEL NO PAIN - 925 Jewels
Gioielli Anatomici, Alchemici e Simbologie Antiche in Argento 925 realizzati interamente a mano in Italia. Visita il nostro Sito e crea il tuo stile !
Home new | Johns Coffee
Home - Sistemas Genómicos
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Trang chủ - BRD
Công ty Cổ Phần BRD hoạt động trong lĩnh vực Nghiên cứu và Tưvấn phát triển, cho thuê và vận hành sản phẩm bất động sản bao gồm Trung tâm thương mại, Văn phòng, Căn hộ và Biệt thự.
Metalife Pilates - The Best Pilates Equipments
He thought of Pilates, he thought of Metalife! The brand most recommended by professionals, with excellence in the production of pilates equipment and accessories.
MetaLife Pilates - Os melhores aparelhos de pilates do Brasil
Pensou em Pilates, pensou em MetaLife! A marca mais recomendada pelos profissionais, com excelência na produção de aparelhos de pilates e acessórios!
MetaLife Pilates - Los mejores equipos de pilates
¡Pensó en Pilates, pensó en MetaLife! La marca más recomendada por los profesionales, con excelencia en la producción de aparatos de pilates y accesorios!
Acasa - Contec Foods
≥ Chiropractie Avalon | Chiropractor Geldrop | T: 040-78 78 488
Bij Chiropractie Avalon kunt u terecht voor behandeling van o.a. nek-, rug- en hoofdpijnklachten. ✓Kleinschalig ✓Geen wachtlijst ✓Veel persoonlijke aandacht
Simex - Especialistas en equipamiento para colectividades
Fabricantes y especialistas en equipamiento para colectividades. Secadoras de manos, fuentes de agua, dispensadores de jabón y de papel, barras de ayuda, equipamiento hoteles, etc.
Dozz Beauty – Zéro complexe avec Dozz Beauty
Inicio - Medallas Ibarra
Fabrica de medallas, plaquetas, trofeos, y regalos empresariales. Más de 30 años de experiencia. Avellaneda, Buenos Aires
Buzios Flat – Pousada Buzios Flat em Búzios. Suítes em Búzios, no bairro de Tucuns
Pousada Buzios Flat em Búzios. Suítes em Búzios, no bairro de Tucuns
