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  8. Helping families affected by genetic, rare and undiagnosed conditions | Genetic Alliance UK
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  10. Genetic Support | Rare Diseases | Genetic Alliance Australia | Support for those affected directly or indirectly by genetic conditions s
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  12. NEHI Research Foundation | United States
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  14. Rare Genetic Diseases | Ultragenyx
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  18. Brain Cancer Research Foundation | The Sontag Foundation
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  24. Home | Rare Diseases Clinical Research Network
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  28. Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
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  30. MHE Research Foundation~Multiple Hereditary Exostoses~Multiple Osteochondroma
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  32. Sanfilippo Children’s Foundation - Hope for Alec
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  54. Home | The Mark Foundation for Cancer Research
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  70. Brain Tumor Research and Treatment | Ivy Brain Tumor Center
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  76. SFARI | Simons Foundation Autism Research Initiative
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  78. World Endometriosis Research Foundation | Home Page
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  82. Advanced Cancer Research and Treatment | Saint John’s Cancer Institute
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  84. National Center for Health Research | The Voice for Prevention, Treatment and Policy
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  92. Home - The Urology Foundation
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  94. FNMS Home Page | The Foundation for Nager and Miller Syndromes
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