Top 100 alternative sites to rarediseasefoundation.org

  1. cydanco.com
    cydanco.com
  2. Orphan Disease Therapy and **** Accelerator | Cydan
    Cydan accelerates compelling science and develops that path for efficiently launching companies to bring those assets to orphan disease patients. Read more.

  3. raredisorders.ca
    raredisorders.ca
  4. Canadian Organization for Rare Disorders

  5. raredisorders.ca
    raredisorders.ca
  6. Canadian Organization for Rare Disorders

  7. cydanco.com
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  8. Orphan Disease Therapy and **** Accelerator | Cydan
    Cydan accelerates compelling science and develops that path for efficiently launching companies to bring those assets to orphan disease patients. Read more.

  9. rarediseasesinternational.org
    rarediseasesinternational.org
  10. Rare Diseases International
    Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases

  11. mito.org.au
    mito.org.au
  12. Mito Foundation - Hope for mitochondrial disease
    The Mito Foundation drives mitochondrial disease research to find a cure. It also provides support to patients and their families until such time as a cure is found.

  13. rare-x.org
    rare-x.org
  14. Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
    RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.

  15. cureraredisease.org
    cureraredisease.org
  16. Cure Rare Disease
    Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.

  17. liver.org.au
    liver.org.au
  18. Liver Foundation | Liver Health | Liver Disease | Australia
    The Liver Foundation is the peak not-for-profit community organisation in Australia for people affected by, or at risk of liver disease. The Liver Foundation's mission is to raise awareness and fund critical research into the prevention, detection and diagnosis, treatment, and cure of liver disease.

  19. rarediseasesnetwork.org
    rarediseasesnetwork.org
  20. Home | Rare Diseases Clinical Research Network
    The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.

  21. kawasakikidsfoundation.org
    kawasakikidsfoundation.org
  22. Finding a Cure for Kawasaki Disease| Kawasaki Kids Foundation
    Kawasaki Kids Foundation is a non-profit dedicated to cure Kawasaki Disease. Our mission is to fund research, raise awareness, and support families.

  23. rarecancer.org
    rarecancer.org
  24. Rare Cancer Research Foundation - RCRF
    The Rare Cancer Research Foundation is dedicated to shortening the time to cure cancer through innovative collaborations and patient engagement in research.

  25. hdfoundation.org
    hdfoundation.org
  26. Hereditary Disease Foundation
    The Hereditary Disease Foundation is a non-profit research foundation which funds innovative genetic research towards curing Huntington's disease and other brain disorders. Since it's formation in 1968, the foundation has been responsible for several prolific scientific breakthroughs in brain diseas

  27. ern-lung.eu
    ern-lung.eu
  28. ERN-LUNG | Rare Respiratory Diseases
    WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
    Author: Heidi Menges

  29. raretraitswiss.ch
    raretraitswiss.ch
  30. Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
    Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy

  31. curebatten.org
    curebatten.org
  32. Gray Foundation to Cure Batten Disease | Improving the lives of children and families affected by Batten
    The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease was founded to save the lives of all children impacted by Batten Disease by accelerating the research for a cure and providing support to patients and their families.

  33. longspeakhospitalfoundation.org
    longspeakhospitalfoundation.org
  34. UCHealth Longs Peak Hospital Foundation - Longmont
    Longs Peak Hospital Foundation provides funding to support innovative research and education, patient financial assistance, community health programs, and enhancements to patient care.

  35. coatsdiseasefoundation.org
    coatsdiseasefoundation.org
  36. Jack McGovern Coats' Disease - Rare Eye Disease - Home Page
    Jack McGovern Coats' Disease - Funds research to find a cure for Coats’ Disease and pediatric retinal Disease - We serve as a hub for the Coats’ Disease community

  37. rarevillage.org
    rarevillage.org
  38. The Rare Village Foundation -Resources for Rare Families
    Rare Village is a non-profit foundation dedicated to providing resources for families with rare disease children.

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  39. ryr1.org
    ryr1.org
  40. The RYR-1 Foundation | RYR-1-Related Diseases | United States
    The mission of the RYR-1 Foundation is to: 1) Support research leading to an effective treatment or a cure for RYR-1-related diseases and 2) Provide education, outreach, and advocacy for individuals and families affected by RYR-1-related diseases.

  41. celiac.org
    celiac.org
  42. Celiac Disease Foundation
    Our mission since 1990 has been to accelerate diagnosis, treatments in search of a cure for celiac disease and non-celiac gluten sensitivity through research, education, and advocacy. We lead the fight to increase the rate of diagnosis, to improve treatments, and to find a cure.

  43. stevewaughfoundation.com.au
    stevewaughfoundation.com.au
  44. Steve Waugh Foundation | Rare Disease Foundation Australia
    Steve Waugh Foundation's mission is to enhance the lives of children and families affected by a rare disease. Grants and fundraising assistance available.

  45. wiskott.org
    wiskott.org
  46. The Wiskott-Aldrich Foundation
    The Wiskott-Aldrich Foundation is a non-profit organization dedicated to funding research to find improved cures for WAS ,providing up-to-date information and support for families living with Wiskott-Aldrich Syndrome worldwide. This website provides information, resources, and support for families coping with WAS. It is intended to bring together patients, researchers, and physicians to help with early diagnosis, better ways of managing the disease, and to spur the research necessary for a better cure.

  47. curefoundation.com
    curefoundation.com
  48. CURE Foundation
    The CURE Foundation is a national foundation that provides funding for basic and clinical research for **** cancer.

  49. projectsebastian.org
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  50. Project Sebastian A Rare Disease Foundation Funding Support
    We at Project Sebastian gives support, funding and hope to families affected by a child with a rare disease. Provide education, therapies, and counseling.

  51. hdep-global-genes.pantheonsite.io
    hdep-global-genes.pantheonsite.io
  52. Allies in Rare Disease - Global Genes
    Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.

  53. globalgenes.org
    globalgenes.org
  54. Allies in Rare Disease - Global Genes
    Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.

  55. curemeso.org
    curemeso.org
  56. Mesothelioma Applied Research Foundation » Research and Support
    The Mesothelioma Applied Research Foundation is a nonprofit organization providing funding for research; and treatment support for mesothelioma patients.

  57. heroesfoundation.org
    heroesfoundation.org
  58. Heroes Foundation
    The Heroes Foundation provides meaningful support to cancer patients, education to promote cancer prevention and resources to advance research for a cure.

  59. every90minutes.org
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  60. Inspiring the Fight Against ALS #every90minutes - 90 Foundation
    Our mission is to bring awareness and innovation to finding a cure for ALS, also know as Lou Gehrig's Disease. PLEASE DONATE TO ALS RESEARCH AND TREATMENT.

  61. uchealthnocofoundation.org
    uchealthnocofoundation.org
  62. UCHealth Northern Colorado Foundation - Loveland, Fort Collins & Greeley
    UCHealth Northern Colorado Foundation provides funding to support innovative research and education, patient financial assistance, community health, and more.

  63. pkdcure.org
    pkdcure.org
  64. Polycystic kidney disease | PKD treatment research | PKD Foundation
    PKD Foundation — We give hope. We fund research, advocate for patients, and build a community for all impacted by polycystic kidney disease. #endPKD

  65. nehiresearch.org
    nehiresearch.org
  66. NEHI Research Foundation | United States
    NEHI Research Foundation is working to improve the diagnostic process, find treatments, and ultimately cure all forms of Children's Interstitial Lung Disease through the support of research.

  67. npcd.org.au
    npcd.org.au
  68. Niemann Pick C | Australian Niemann-Pick Type C Disease Foundation
    Australian Niemann-Pick Type C Disease Foundation is a not for profit organization that is trying to raise awareness and funds for research into a cure.

  69. lightofday.org
    lightofday.org
  70. Light of Day Foundation
    The Light of Day Foundation, Inc., utilizes the power of music to raise money and awareness in its continuing battle to defeat Parkinson’s disease and related illnesses such as PSP and ALS within our lifetime. The Light of Day Foundation's mission is to fund research into possible cures, improved treatments and support for patients who suffer with Parkinson’s disease (PD) and related illnesses, their families and their caregivers to help improve their quality of life.

  71. thelilyfoundation.org.uk
    thelilyfoundation.org.uk
  72. It's time to talk about mito - The Lily Foundation
    The Lily Foundation is a UK charity dedicated to fighting mitochondrial disease. We work in partnership with the NHS and leading mitochondrial clinics to support those affected by the condition, raise awareness, and fund research into effective treatments and therapies. Our long-term goal is to find a cure for mitochondrial disease.

  73. cyclepharma.com
    cyclepharma.com
  74. Cycle Pharmaceuticals – Treatments for rare disease patients
    WHAT WE DO Cycle Pharmaceuticals is a global, privately-owned and patient-dedicated biotechnology company headquartered in Cambridge in the UK. Our mission is to utilise the latest pharmaceutical technologies to deliver superior **** treatments to better serve rare genetic disease patients. In addition, we provide individualised patient support services to
    Author: Web Admin

  75. willherndon.org
    willherndon.org
  76. The Will Herndon Fund for Juvenile Batten Disease Research
    The Will Herndon Fund for Juvenile Batten Disease Research has partnered with the Beyond Batten Disease Foundation to find a cure for Juvenile Batten Disease. With your HELP, we will provide HOPE to Will and the hundreds of children like Will.

  77. foxg1.org
    foxg1.org
  78. International FOXG1 Foundation
    The International FOXG1 Foundation’s Mission is to provide hope and support to individuals with FOXG1 and their families via any means possible, to facilitate discussion and fund research within the medical community, and to bring awareness and education to the public. Our goal is to find treatments and a cure for FOXG1. We hope this Foundation will provide support and inspiration to the many families who have been blessed with a FOXG1 miracle.

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  79. alsfamily.org
    alsfamily.org
  80. Cape Cod A.L.S. Foundation | A.L.S. Family Charitable Foundation
    Cape Cod A.L.S. Foundation. A.L.S. Family Charitable Foundation is a resource for A.L.S. patients and families living with Lou Gehrig\'s Disease. ALS Research to Cure ALS.

  81. prostatecure.ca
    prostatecure.ca
  82. Prostate Cure Foundation - Prostate Cure Foundation - Home
    Prostate Cure Foundation is the only organization in Canada dedicated to funding treatment innovation research that gets men results in their lifetime.

  83. unitedbrainassociation.org
    unitedbrainassociation.org
  84. Brain Research For Brain Disease | United Brain Association
    How We Will Cure Brain Disease The United Brain Association’s mission is to empower every individual living with brain disease and to support innovative research for a cure. Finding a cure is about courage, willpower, endurance, and acceptance. It’s about belonging to a community of compassionate listeners. It’s about sharing your hopes and supporting
    Author: Jasoncm

  85. crinetics.com
    crinetics.com
  86. Crinetics - Developing Therapies For Rare Endocrine Diseases
    Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.

  87. parseghian.org
    parseghian.org
  88. Niemann- Pick Disease - Ara Parseghian Medical Research Foundation - Lysosomal Disease
    The Ara Parseghian Medical Research Foundation's goal is to find a cure for the devastating Niemann-Pick Type C disease.

  89. park4u.org
    park4u.org
  90. Parkinson's Disease Non-Profit Foundation | Park4u Foundation
    The PARK4U Foundation offers loving support and resources to enhance the quality of life for patients, families, and caregivers impacted by Parkinson's Disease.

  91. childliverdisease.org
    childliverdisease.org
  92. Children’s Liver Disease Foundation | Liver Disease Research and Support
    Children’s Liver Disease Foundation. Fighting childhood liver disease by providing information, emotional support, research.

  93. mylymedata.org
    mylymedata.org
  94. Add your Lyme disease data to MyLymeData to help find a cure for Lyme disease
    MyLymeData is a Lyme disease research project. It lets Lyme disease patients provide data that can help drive research to find a cure for Lyme disease

  95. migraineresearchfoundation.org
    migraineresearchfoundation.org
  96. Home - Migraine Research Foundation
    The Migraine Research Foundation raises money to fund research to discover the causes, improve the treatments, and find a cure for migraine.

  97. dtrf.org
    dtrf.org
  98. The Desmoid Tumor Research Foundation- DTRF
    The mission of The Desmoid Tumor Research Foundation is to aggressively fund research to accelerate the development of improved therapies, and ultimately find a cure for desmoid tumors. We collaborate with dedicated researchers and clinicians worldwide to improve the lives of patients through education, awareness and support.

  99. gastriccancer.org
    gastriccancer.org
  100. Gastric Cancer Foundation | Hope in Research | Empowering Patients
    Supporting patient education initiatives and innovative research studies to improve treatments and ultimately find a cure for gastric cancer.
    Author: Gastric Cancer Foundation

  101. mg-mi.org
    mg-mi.org
  102. Myasthenia Gravis Foundation of Michigan
    Myasthenia Gravis Foundation of Michigan is committed to finding a cure for Myasthenia Gravis and closely related disorders, improving treatment options and providing information and support to people with Myasthenia Gravis through research, education, community programs, and advocacy.
    Author: Bluevortex Net

  103. fightcancer.org.au
    fightcancer.org.au
  104. Fight Cancer Foundation | Give Hope. Save Lives.
    Fight Cancer Foundation is a national charity dedicated to providing care, treatment and support for cancer patients and families, and funding cancer research.

  105. mndscotland.org.uk
    mndscotland.org.uk
  106. MND Scotland | Motor Neurone Disease
    MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease (MND), as well as funding vital research into finding a cure.

  107. curemsd.org
    curemsd.org
  108. United MSD Foundation | Multiple Sulfatase Deficiency | Cure MSD
    The United MSD foundation advocates for, supports and funds biomedical research to cure Multiple Sulfatase Deficiency and avails its reserach to cure other lysosomal storage diseases.

  109. lymelightfoundation.org
    lymelightfoundation.org
  110. LymeLight Foundation - Lyme Disease Treatment Grants
    LymeLight Foundation's mission is to provide Lyme disease treatment grants to eligible children and young adults to raise awareness about Lyme disease.

  111. pfdresearch.org
    pfdresearch.org
  112. PFD Research Foundation | The Official Research Foundation of AUGS | PFD Research Foundation
    The PFD Research Foundation, formerly known as the AUGS Foundation, serves the medical profession by supporting promising, innovative research regarding the causes, prevention, cure and treatment of pelvic floor disorders.

  113. chronicwarriorcollective.com
    chronicwarriorcollective.com
  114. Support for patients with chronic illness or rare disease
    We provide social-emotional support for patients, teens, young adults, and seniors who are living with chronic illness, rare disease, long-covid, who are undiagnosed, or who are carriers of disease. Connect with patients, make a friend, get support, chronic illness coach, society for teens.
    Author: Chronic Warrior Collective

  115. fightingblindness.org
    fightingblindness.org
  116. Foundation Fighting Blindness — Foundation Fighting Blindness
    The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation is a beacon of hope for those affected by these blinding diseases. Join the fight and help us accelerate our mission.

  117. racingformndi.com.au
    racingformndi.com.au
  118. Awareness for Motor Neurone Disease - Racing For MNDi
    A foundation established to race against time in helping find a cure for Motor Neuron Disease (MND) by focusing on the research. We welcome your support.
    Author: Dev

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  119. mymitomission.uk
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  120. Mitochondrial Disease Charity | My Mito Mission
    An innovative mitochondrial disease charity - My Mito Mission raises awareness, support and funds for research – could you be a Mito Hero and join us?

  121. ukkidney.org
    ukkidney.org
  122. Rare Renal | The UK Kidney Association
    It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested

  123. quinnmadeleine.org
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  124. The Quinn Madeleine Foundation - Awareness for Hope. Memories for Life. Niemann-Pick Type A. Quinn linzer
    The Quinn Madeleine Foundation's mission is to promote and support research on treatments and a cure for Niemann-Pick Disease, Type A, and to facilitate memorable experiences for young children with life-limiting illness and their families.

  125. mrgm.fr
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  126. Rare Diseases: Genetics and Metabolism – MRGM Research aims to decipher the molecular mechanisms laying at the root of the physiopathology o
    MRGM Research aims to decipher the molecular mechanisms laying at the root of the physiopathology of rare diseases and make our findings worth for patients.

  127. tjmartell.org
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  128. T.J. Martell Foundation | Music's Promise For A Cure
    The T.J. Martell Foundation Is The Music Industry's Largest Foundation That Funds Innovative Medical Research Focused On Finding Cures For Cancer. Donate Today!

  129. stmarkshospitalfoundation.org.uk
    stmarkshospitalfoundation.org.uk
  130. St Mark's Hospital Foundation | Innovative Research & Education
    St Mark's Hospital Foundation helps to fund innovative research that is undertaken at St Mark's Hospital, a specialist in the treatment of bowel disease

  131. rottweilerhealth.org
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  132. Home - Rottweiler Health Foundation
    Our mission is to raise funds to support critical research into the diseases that plague our beloved breed, the Rottweiler. Join the Rottweiler Heath Foundation.

  133. seenamagowitzfoundation.org
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  134. Pancreatic Cancer Foundations | Seena Magowitz Foundation
    The Seena Magowitz Foundation, the Face and Voice of Pancreatic Cancer Foundations is committed to improving pancreas patient outcomes by funding leading-edge trials and research in pursuit of innovative pancreatic cancer treatments the save and extend patient quality of life.

  135. rdodjournal.com
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  136. Rare Disease and Orphan Drugs Journal
    Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
    Author: Daniel Scherman

  137. mshopefoundation.org
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  138. MS Hope Foundation - Give Hope. Get Hope. Have Hope.
    MS HOPE Foundation provides financial assistance for MS-related expenses and funds promising research for better treatments and a cure.

  139. materfoundation.org.au
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  140. Mater Foundation - Mater Foundation - Supporting healthcare, education and medical research programs at Mater.
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  141. mheresearchfoundation.org
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  142. MHE Research Foundation~Multiple Hereditary Exostoses~Multiple Osteochondroma
    MHE Research Foundation 501(c)(3) organization dedicated to finding a cure for this rare bone disease. Providing comprehensive information on Research, Orthopaedics, Genetics, Chronic Pain, Conferences and Doctor Directories to help locate medical care.

  143. gsa-foundation.org
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  144. Home - Geological Society of America Foundation
    The mission of the Geological Society of America Foundation is to develop and provide funds to support the Society's goals and programs.

  145. parkinsonsdisease.net
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  146. Parkinson's Disease Health Information & Community
    Find out about Parkinson's disease including symptoms, diagnosis, treatment, patient stories, support, and more from a Parkinson's community perspective.
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  147. teamconnor.org
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  148. TeamConnor Childhood Cancer Foundation - Home
    The TeamConnor Childhood Cancer Foundation raises awareness about childhood cancer, supports families, and funds treatments to help find a cure!

  149. topponcinocompany.com
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  150. The Topponcino Company | Original Montessori Baby Pillows
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  159. medi-mats.com.au
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  160. Acupressure Mats | Modern Therapy | Medi Mats Australia
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  178. Werewolf: A party game for devious people – WEREWOLF by Stellar Factory
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  198. Deck & Rail Supply | Quality Decking Products and Railing Materials
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