Top 100 alternative sites to rarediseasefoundation.org
Orphan Disease Therapy and **** Accelerator | Cydan
Cydan accelerates compelling science and develops that path for efficiently launching companies to bring those assets to orphan disease patients. Read more.
Canadian Organization for Rare Disorders
Canadian Organization for Rare Disorders
Orphan Disease Therapy and **** Accelerator | Cydan
Cydan accelerates compelling science and develops that path for efficiently launching companies to bring those assets to orphan disease patients. Read more.
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Mito Foundation - Hope for mitochondrial disease
The Mito Foundation drives mitochondrial disease research to find a cure. It also provides support to patients and their families until such time as a cure is found.
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
Liver Foundation | Liver Health | Liver Disease | Australia
The Liver Foundation is the peak not-for-profit community organisation in Australia for people affected by, or at risk of liver disease. The Liver Foundation's mission is to raise awareness and fund critical research into the prevention, detection and diagnosis, treatment, and cure of liver disease.
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
Finding a Cure for Kawasaki Disease| Kawasaki Kids Foundation
Kawasaki Kids Foundation is a non-profit dedicated to cure Kawasaki Disease. Our mission is to fund research, raise awareness, and support families.
Rare Cancer Research Foundation - RCRF
The Rare Cancer Research Foundation is dedicated to shortening the time to cure cancer through innovative collaborations and patient engagement in research.
Hereditary Disease Foundation
The Hereditary Disease Foundation is a non-profit research foundation which funds innovative genetic research towards curing Huntington's disease and other brain disorders. Since it's formation in 1968, the foundation has been responsible for several prolific scientific breakthroughs in brain diseas
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Gray Foundation to Cure Batten Disease | Improving the lives of children and families affected by Batten
The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease was founded to save the lives of all children impacted by Batten Disease by accelerating the research for a cure and providing support to patients and their families.
UCHealth Longs Peak Hospital Foundation - Longmont
Longs Peak Hospital Foundation provides funding to support innovative research and education, patient financial assistance, community health programs, and enhancements to patient care.
Jack McGovern Coats' Disease - Rare Eye Disease - Home Page
Jack McGovern Coats' Disease - Funds research to find a cure for Coats’ Disease and pediatric retinal Disease - We serve as a hub for the Coats’ Disease community
The Rare Village Foundation -Resources for Rare Families
Rare Village is a non-profit foundation dedicated to providing resources for families with rare disease children.
Other sites like rarediseasefoundation org
The RYR-1 Foundation | RYR-1-Related Diseases | United States
The mission of the RYR-1 Foundation is to: 1) Support research leading to an effective treatment or a cure for RYR-1-related diseases and 2) Provide education, outreach, and advocacy for individuals and families affected by RYR-1-related diseases.
Celiac Disease Foundation
Our mission since 1990 has been to accelerate diagnosis, treatments in search of a cure for celiac disease and non-celiac gluten sensitivity through research, education, and advocacy. We lead the fight to increase the rate of diagnosis, to improve treatments, and to find a cure.
Steve Waugh Foundation | Rare Disease Foundation Australia
Steve Waugh Foundation's mission is to enhance the lives of children and families affected by a rare disease. Grants and fundraising assistance available.
The Wiskott-Aldrich Foundation
The Wiskott-Aldrich Foundation is a non-profit organization dedicated to funding research to find improved cures for WAS ,providing up-to-date information and support for families living with Wiskott-Aldrich Syndrome worldwide. This website provides information, resources, and support for families coping with WAS. It is intended to bring together patients, researchers, and physicians to help with early diagnosis, better ways of managing the disease, and to spur the research necessary for a better cure.
CURE Foundation
The CURE Foundation is a national foundation that provides funding for basic and clinical research for **** cancer.
Project Sebastian A Rare Disease Foundation Funding Support
We at Project Sebastian gives support, funding and hope to families affected by a child with a rare disease. Provide education, therapies, and counseling.
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
Mesothelioma Applied Research Foundation » Research and Support
The Mesothelioma Applied Research Foundation is a nonprofit organization providing funding for research; and treatment support for mesothelioma patients.
Heroes Foundation
The Heroes Foundation provides meaningful support to cancer patients, education to promote cancer prevention and resources to advance research for a cure.
Inspiring the Fight Against ALS #every90minutes - 90 Foundation
Our mission is to bring awareness and innovation to finding a cure for ALS, also know as Lou Gehrig's Disease. PLEASE DONATE TO ALS RESEARCH AND TREATMENT.
UCHealth Northern Colorado Foundation - Loveland, Fort Collins & Greeley
UCHealth Northern Colorado Foundation provides funding to support innovative research and education, patient financial assistance, community health, and more.
Polycystic kidney disease | PKD treatment research | PKD Foundation
PKD Foundation — We give hope. We fund research, advocate for patients, and build a community for all impacted by polycystic kidney disease. #endPKD
NEHI Research Foundation | United States
NEHI Research Foundation is working to improve the diagnostic process, find treatments, and ultimately cure all forms of Children's Interstitial Lung Disease through the support of research.
Niemann Pick C | Australian Niemann-Pick Type C Disease Foundation
Australian Niemann-Pick Type C Disease Foundation is a not for profit organization that is trying to raise awareness and funds for research into a cure.
Light of Day Foundation
The Light of Day Foundation, Inc., utilizes the power of music to raise money and awareness in its continuing battle to defeat Parkinson’s disease and related illnesses such as PSP and ALS within our lifetime. The Light of Day Foundation's mission is to fund research into possible cures, improved treatments and support for patients who suffer with Parkinson’s disease (PD) and related illnesses, their families and their caregivers to help improve their quality of life.
It's time to talk about mito - The Lily Foundation
The Lily Foundation is a UK charity dedicated to fighting mitochondrial disease. We work in partnership with the NHS and leading mitochondrial clinics to support those affected by the condition, raise awareness, and fund research into effective treatments and therapies. Our long-term goal is to find a cure for mitochondrial disease.
Cycle Pharmaceuticals – Treatments for rare disease patients
WHAT WE DO Cycle Pharmaceuticals is a global, privately-owned and patient-dedicated biotechnology company headquartered in Cambridge in the UK. Our mission is to utilise the latest pharmaceutical technologies to deliver superior **** treatments to better serve rare genetic disease patients. In addition, we provide individualised patient support services to
Author: Web Admin
The Will Herndon Fund for Juvenile Batten Disease Research
The Will Herndon Fund for Juvenile Batten Disease Research has partnered with the Beyond Batten Disease Foundation to find a cure for Juvenile Batten Disease. With your HELP, we will provide HOPE to Will and the hundreds of children like Will.
International FOXG1 Foundation
The International FOXG1 Foundation’s Mission is to provide hope and support to individuals with FOXG1 and their families via any means possible, to facilitate discussion and fund research within the medical community, and to bring awareness and education to the public. Our goal is to find treatments and a cure for FOXG1. We hope this Foundation will provide support and inspiration to the many families who have been blessed with a FOXG1 miracle.
What else rarediseasefoundation.org alternative websites
Cape Cod A.L.S. Foundation | A.L.S. Family Charitable Foundation
Cape Cod A.L.S. Foundation. A.L.S. Family Charitable Foundation is a resource for A.L.S. patients and families living with Lou Gehrig\'s Disease. ALS Research to Cure ALS.
Prostate Cure Foundation - Prostate Cure Foundation - Home
Prostate Cure Foundation is the only organization in Canada dedicated to funding treatment innovation research that gets men results in their lifetime.
Brain Research For Brain Disease | United Brain Association
How We Will Cure Brain Disease The United Brain Association’s mission is to empower every individual living with brain disease and to support innovative research for a cure. Finding a cure is about courage, willpower, endurance, and acceptance. It’s about belonging to a community of compassionate listeners. It’s about sharing your hopes and supporting
Author: Jasoncm
Crinetics - Developing Therapies For Rare Endocrine Diseases
Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.
Niemann- Pick Disease - Ara Parseghian Medical Research Foundation - Lysosomal Disease
The Ara Parseghian Medical Research Foundation's goal is to find a cure for the devastating Niemann-Pick Type C disease.
Parkinson's Disease Non-Profit Foundation | Park4u Foundation
The PARK4U Foundation offers loving support and resources to enhance the quality of life for patients, families, and caregivers impacted by Parkinson's Disease.
Children’s Liver Disease Foundation | Liver Disease Research and Support
Children’s Liver Disease Foundation. Fighting childhood liver disease by providing information, emotional support, research.
Add your Lyme disease data to MyLymeData to help find a cure for Lyme disease
MyLymeData is a Lyme disease research project. It lets Lyme disease patients provide data that can help drive research to find a cure for Lyme disease
Home - Migraine Research Foundation
The Migraine Research Foundation raises money to fund research to discover the causes, improve the treatments, and find a cure for migraine.
The Desmoid Tumor Research Foundation- DTRF
The mission of The Desmoid Tumor Research Foundation is to aggressively fund research to accelerate the development of improved therapies, and ultimately find a cure for desmoid tumors. We collaborate with dedicated researchers and clinicians worldwide to improve the lives of patients through education, awareness and support.
Gastric Cancer Foundation | Hope in Research | Empowering Patients
Supporting patient education initiatives and innovative research studies to improve treatments and ultimately find a cure for gastric cancer.
Author: Gastric Cancer Foundation
Myasthenia Gravis Foundation of Michigan
Myasthenia Gravis Foundation of Michigan is committed to finding a cure for Myasthenia Gravis and closely related disorders, improving treatment options and providing information and support to people with Myasthenia Gravis through research, education, community programs, and advocacy.
Author: Bluevortex Net
Fight Cancer Foundation | Give Hope. Save Lives.
Fight Cancer Foundation is a national charity dedicated to providing care, treatment and support for cancer patients and families, and funding cancer research.
MND Scotland | Motor Neurone Disease
MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease (MND), as well as funding vital research into finding a cure.
United MSD Foundation | Multiple Sulfatase Deficiency | Cure MSD
The United MSD foundation advocates for, supports and funds biomedical research to cure Multiple Sulfatase Deficiency and avails its reserach to cure other lysosomal storage diseases.
LymeLight Foundation - Lyme Disease Treatment Grants
LymeLight Foundation's mission is to provide Lyme disease treatment grants to eligible children and young adults to raise awareness about Lyme disease.
PFD Research Foundation | The Official Research Foundation of AUGS | PFD Research Foundation
The PFD Research Foundation, formerly known as the AUGS Foundation, serves the medical profession by supporting promising, innovative research regarding the causes, prevention, cure and treatment of pelvic floor disorders.
Support for patients with chronic illness or rare disease
We provide social-emotional support for patients, teens, young adults, and seniors who are living with chronic illness, rare disease, long-covid, who are undiagnosed, or who are carriers of disease. Connect with patients, make a friend, get support, chronic illness coach, society for teens.
Author: Chronic Warrior Collective
Foundation Fighting Blindness — Foundation Fighting Blindness
The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation is a beacon of hope for those affected by these blinding diseases. Join the fight and help us accelerate our mission.
Awareness for Motor Neurone Disease - Racing For MNDi
A foundation established to race against time in helping find a cure for Motor Neuron Disease (MND) by focusing on the research. We welcome your support.
Author: Dev
Other websites similar as rarediseasefoundation.org
Mitochondrial Disease Charity | My Mito Mission
An innovative mitochondrial disease charity - My Mito Mission raises awareness, support and funds for research – could you be a Mito Hero and join us?
Rare Renal | The UK Kidney Association
It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested
The Quinn Madeleine Foundation - Awareness for Hope. Memories for Life. Niemann-Pick Type A. Quinn linzer
The Quinn Madeleine Foundation's mission is to promote and support research on treatments and a cure for Niemann-Pick Disease, Type A, and to facilitate memorable experiences for young children with life-limiting illness and their families.
Rare Diseases: Genetics and Metabolism – MRGM Research aims to decipher the molecular mechanisms laying at the root of the physiopathology o
MRGM Research aims to decipher the molecular mechanisms laying at the root of the physiopathology of rare diseases and make our findings worth for patients.
T.J. Martell Foundation | Music's Promise For A Cure
The T.J. Martell Foundation Is The Music Industry's Largest Foundation That Funds Innovative Medical Research Focused On Finding Cures For Cancer. Donate Today!
St Mark's Hospital Foundation | Innovative Research & Education
St Mark's Hospital Foundation helps to fund innovative research that is undertaken at St Mark's Hospital, a specialist in the treatment of bowel disease
Home - Rottweiler Health Foundation
Our mission is to raise funds to support critical research into the diseases that plague our beloved breed, the Rottweiler. Join the Rottweiler Heath Foundation.
Pancreatic Cancer Foundations | Seena Magowitz Foundation
The Seena Magowitz Foundation, the Face and Voice of Pancreatic Cancer Foundations is committed to improving pancreas patient outcomes by funding leading-edge trials and research in pursuit of innovative pancreatic cancer treatments the save and extend patient quality of life.
Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
MS Hope Foundation - Give Hope. Get Hope. Have Hope.
MS HOPE Foundation provides financial assistance for MS-related expenses and funds promising research for better treatments and a cure.
Mater Foundation - Mater Foundation - Supporting healthcare, education and medical research programs at Mater.
Mater Foundation - supporting compassionate care for our community by raising funds for healthcare and medical research programs at Mater.
MHE Research Foundation~Multiple Hereditary Exostoses~Multiple Osteochondroma
MHE Research Foundation 501(c)(3) organization dedicated to finding a cure for this rare bone disease. Providing comprehensive information on Research, Orthopaedics, Genetics, Chronic Pain, Conferences and Doctor Directories to help locate medical care.
Home - Geological Society of America Foundation
The mission of the Geological Society of America Foundation is to develop and provide funds to support the Society's goals and programs.
Parkinson's Disease Health Information & Community
Find out about Parkinson's disease including symptoms, diagnosis, treatment, patient stories, support, and more from a Parkinson's community perspective.
Author: Suzanne Troy
TeamConnor Childhood Cancer Foundation - Home
The TeamConnor Childhood Cancer Foundation raises awareness about childhood cancer, supports families, and funds treatments to help find a cure!
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The Topponcino Company | Original Montessori Baby Pillows
Give Your Baby Montessori From The Start. The Most Recommended Montessori Baby Item. All-Natural Cotton. 100% Free 2-Day Shipping on All Orders.
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Raylite Optical Singapore | Eyewear & Contact Lenses in Tampines
– Raylite Optical Store
Quality prescription glasses starting from $88, ready in 30 minutes. Thousands of eyewear from over 35 brands: Ray-Ban, Oakley, Gucci. Shop online or book appointment in-store. Raylite Optical, 5 min from Tampines East MRT
Arch Support Socks: 14+ Styles For Sale Online | ArchTek®
ArchTek® socks | Dr. designed & patented 5 layer arch support - Shop Now!
Orbit Baby
Strollers, car seats, + bassinets with a 360-degree view. Shop Orbit Baby official site + full collection of Orbit Baby travel systems + accessories. Modern + modular, explore easy-to-use, high-quality, high design strollers, car seats, + bassinets with patented technology to optimize baby’s engagement + development.
FC Fashion
– FC Fashion Ltd
FC Fashion Ltd
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BEAM Supplements | whey protein, vegan protein, pre workout, collagen
BEAM be amazing has premium supplements of whey protein, vegan protein, pre workout, collagen, and super greens supplements for men and women. One of our co-founders beat cancer and attributes beating it by taking premium high quality supplements.
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Sky Sins
Physique Collection by Sky - Clean Nutrition to Fuel a Healthy Lifestyle
Cynthia Gale New York | Fine Handmade Sterling Silver Jewelry
Explore handmade silver jewelry from designer Cynthia Gale New York for fine sterling silver jewelry & accessories for women and men. Jewelry with meaning!
MEDINAUT - Mit Top-Absolventen den MedAT bestehen.
Tausende Aufgaben, Lösungsstrategien und kostenlose Materialien. Erstellt von Top-Absolventen 1.-3. Platz. Vorbereitung für alle MedAT-Teile - BMS, TV, KFF, SEK. Große Auswahl an Testsimulationen + E-Books zum sofort Download. Bestseller auf Amazon. Jetzt gratis Testen!
Bikeaholic Queenstown NZ | Bike Shop |Bike Hire |Mountain Biking Store
Bikeaholic, rider owned local bike shop in Queenstown New Zealand, a dedicated Mountain Biking store, for bike hire Queenstown, service and sales of Yeti, Kona, Lapierre & Merida
CBD Pillow | Welcome to the World's Most Relaxing Pillow
The CBD Pillow is infused with cannabidiol (CBD) to give you a calm, relaxing sleep all night long. This memory foam CBD pillow adapts perfectly to your sleep style.
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St VIVID bold off-duty women's clothing
Bold and vibrant must have wardrobe pieces for women that make off-duty wear exciting and comfortable. Women's clothing essentials that are made to be worn, and will keep looking new after every wear.
Lytec | Illuminate your life
Deck out your home, office, or business with unique lighting products that will make anyone looking at it say "wow, that's pretty cool." Creators of Cloudi, your personal handmade smart lamp.
Werewolf: A party game for devious people
– WEREWOLF by Stellar Factory
You'll either have to save the village or destroy it. Werewolf is a perfect party game as it's easily scaleable, quick to learn, and different each time you play.
Waterkoog - A northern story of wind and waves
A home for all northern surfers and ocean lovers. Where the weather is more like Endless Autumn and we celebrate wind and waves.
AMAKA HANDBAGS & ACCESSORIES CO.
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Nine Line Apparel - Veteran Owned and Operated Apparel Company
Nine Line Apparel represents the grit and commitment of all Patriotic Americans. Founded on the principles similar to other value based organizations, Nine Line aims to promote the issues faced by all those who have served their country, on both foreign and domestic soil.
National Park Tees, Posters, & Gifts From The Landmark Project
Love America's National Parks and ethically sourced apparel? So do we. Shop The Landmark Project and discover hundreds of products designed by outdoor lovers.
Rocks On The Rocks - Earthlight Minerals - Australian Opal Specialist
Rocks On The Rocks (Earthlight Minerals) based in Sydney, Australia @ The Rocks Market. We shine a light on the Earth's natural gifts & specialise in Opal Stones, Opal Specimens, Opal Jewellery, Black Opal, Boulder Opal. PLUS: Australian Agate, Thundereggs, Mookite, Rhyolite, Zebra Rock, Citrine, Quartz & Tiger Iron.
MillennialEngineers.com
– MILLENNIAL ENGINEERS
We are an online store brand for typists, gamers, and geeks by offering mechanical keyboards, keycaps, compuer gears, and tech gadgets. Enjoy the product quality, online service and website security that we have built in place to make your experience the best one yet.
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The Wakaya Group | Organic Ginger & Turmeric from Fiji
The Wakaya Group - Producers of organic herbs and spices ranging from, organic Fijian ginger, organic Fijian turmeric, organic Fijian coconut oil, Fijian Kosher sea salt, and Kava powder. Grown and packed in Our 2200 acre certified organic farm.
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Arm Sleeves - Compression Sportswear - Neck Gaiters
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Organic Fijian Turmeric & Pink Fijian Ginger | The Wakaya Group
The Wakaya Group - Producers of organic herbs and spices ranging from, organic Fijian ginger, organic Fijian turmeric, organic Fijian coconut oil, Fijian Kosher sea salt, and Kava powder. Grown and packed in Our 2200 acre certified organic farm.