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Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
Author: Drawesome
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
My Normal | storytelling for rare disease health
My Normal | storytelling for rare disease health
Author: My Normal
AllStripes - Be part of the solution for your rare disease
We empower patients and communities to change the way that **** development happens in rare disease.
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
Crinetics - Developing Therapies For Rare Endocrine Diseases
Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.
RARE-e-CONNECT - RARE-e-CONNECT
Secure multidisciplinary collaboration and knowledge sharing on rare diseases. For Healthcare Professionals and patients within Cyprus and abroad, large repository of medical centres in Europe and other countries with verified expertise in rare disease groups and rare diseases, Patient life stories, Continuous Medical Education via webinars and automated newsfeeds from key medical databases to stay up to date with important developments and clinical trials in rare diseases.
Author: Super User
swii.ch health | Rare Disease Patient Engagement Agency
Focused on rare diseases and specialty markets, we are a patient engagement agency serving pharmaceutical and biotech clients.
Diseasemaps - World Maps of Chronic and Rare Diseases
Connect with people who share your disease and help each other. World Maps of Chronic and Rare Diseases. The main purpose of the project is to help people with chronic and rare diseases. Living with these diseases is usually hard and it is not always properly understood by society. Therefore, we want to spread awareness about all of them and help people who are nowadays suffering. Through this website, you can check how your disease is spread all over the world.
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
ERN BOND – European Reference Network on Rare Bone Diseases
Network ERN BOND is one of the 24 existing European Reference Networks (ERNs). In particular, ERN BOND aims to improve access to high-quality healthcare for patients suffering from rare bone diseases. Mission ERN BOND aims to implement measures that facilitate multidisciplinary, holistic and patient-centred care
Author: Admin
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
ResApp Health | Digital healthcare for respiratory disease
ResApp Health is developing digital healthcare solutions to assist doctors and empower patients to diagnose and manage respiratory disease.
Support for patients with chronic illness or rare disease
We provide social-emotional support for patients, teens, young adults, and seniors who are living with chronic illness, rare disease, long-covid, who are undiagnosed, or who are carriers of disease. Connect with patients, make a friend, get support, chronic illness coach, society for teens.
Author: Chronic Warrior Collective
Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
EUROCAT | EU RD Platform
Providing a central access point for information on rare disease patients’ registries to all stakeholders
SOLVD Health: Innovating Actionable Health Insights to Prevent Disease
Our goal is to prevent disease by making predictive, actionable health insights available to patients and their healthcare providers.
Rare Renal | The UK Kidney Association
It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested
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Health Life Media
Health Life Media is a health information website that provides medical information on ailments, conditions and diseases. We cover common and rare health
Cycle Pharmaceuticals – Treatments for rare disease patients
WHAT WE DO Cycle Pharmaceuticals is a global, privately-owned and patient-dedicated biotechnology company headquartered in Cambridge in the UK. Our mission is to utilise the latest pharmaceutical technologies to deliver superior **** treatments to better serve rare genetic disease patients. In addition, we provide individualised patient support services to
Author: Web Admin
Patient Centric Solutions-Enabling Health Record Sharing
Empower the patient to safely share health records, with users of her choice, in an interoperable way that respects and honors patient security and privacy.
The American Kidney Fund (AKF) fights kidney disease on all fronts as the nation’s leading kidney nonprofit.
The leading U.S. nonprofit dedicated to ensuring that every kidney patient has access to health care, and every person at risk for kidney disease is empowered to prevent it.
Home - Canadian Digestive Health Foundation
The Canadian Digestive Health Foundation is the official foundation of the Canadian Association of Gastroenterology. Our mission is To reduce suffering and improve quality of life by providing trusted, accessible, and accurate information about digestive health and disease.
Dog Health Guide To Canine Diseases and Conditions
The Dog Health Guide provides information and answers on the symptoms, diagnosis and treatment of common canine diseases and illnesses.
Author: Jeff Grill
Health Care Information - Diseases, Conditions & Symptoms Information
Health-Care-Information.org provides basic information on various diseases, injuries, symptoms, medical tests and more.
the glocalized social patient network
thasso, the mobile and global social network in theragenomic and personalized medicine provides access to and sharing of personal and professional information in health and disease to individual patients, to patient subgroups, and to large patient populations worldwide
The Health Chronicle - A Better You. Today.
Health Chronicle is a trustworthy and timely health and medical news and information. Providing credible health information regarding diseases, fitness, diet and recipes.
Home | Sapphire Digital Health
Connect your doctors, transform your health. See how Sapphire Digital Health Solutions is revolutionizing healthcare through patient-controlled health data. Our LifeSTAT™ platform is the better way to store and share secure patient health files. Learn more.
MHIN: Reliable and Secure Health Information Exchange
MHIN Michiana Health Information Exchange Secure access to reliable & timely patient information. Offers: HIE, EHR, Population Health Analytics, & more.
Intraprise Health - Security Services, HITRUST, TPRM
Intraprise Health provides secure, insightful access to the information required to protect and engage with your health consumers. Protecting your patients and your data – we give you the insight you need and the security you require.Secure with Vigilance. Engage with Insight.
Digital Health Assistant & Symptom Checker | Symptoma
Symptoma is a Digital Health Assistant & Symptom Checker. Patients and doctors enter symptoms, answer questions, and find a list of matching causes – sorted by probability. Symptoma empowers users to uncover even ultra-rare diseases.
Digital Health Assistant & Symptom Checker | Symptoma
Symptoma is a Digital Health Assistant & Symptom Checker. Patients and doctors enter symptoms, answer questions, and find a list of matching causes – sorted by probability. Symptoma empowers users to uncover even ultra-rare diseases.
Digital Health Assistant & Symptom Checker | Symptoma
Symptoma is a Digital Health Assistant & Symptom Checker. Patients and doctors enter symptoms, answer questions, and find a list of matching causes – sorted by probability. Symptoma empowers users to uncover even ultra-rare diseases.
Home - West Virginia Health Information Network
Transforming health care in West Virginia through secure electronic exchange of patient health information among health care providers.
Author: West Virginia Health Information Network; Jimmy
Home | Protect ERNs
What are European Reference Networks? European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe. They allow knowledge and expertise about rare diseases to be shared across Europe; providing patients with access to diagnosis and transformative care, without the burden of long-distance travel. ERNs enable researchers to engage rare disease patients across
Author: Zz
Digital Health Assistant & Symptom Checker | Symptoma Great Britain
Symptoma is a Digital Health Assistant & Symptom Checker. Patients and doctors enter symptoms, answer questions, and find a list of matching causes – sorted by probability. Symptoma empowers users to uncover even ultra-rare diseases.
Home | Cognitant | Personalising health information
We empower patients by providing clear, reliable health information, allowing them to become actively involved in improving their health, and enabling healthcare professionals to optimise their care.
Author: Professor; Head; NHS Teaching Hospital
Streamline routine procedures with health and medical forms
Health record, customizable medical forms, team collaboration, patient forms via SMS. Health Cloud with secure health information sharing - iOS, Mac, PC;
What else honeycombhealth.com alternative websites
Medwonders Health Network | Online Forum and Support Groups
Medwonders Health Network provides access to over 500 online support groups from all over the world - from cancer, and diabetes to divorce, and women’s health. Use our online forums to share experiences of diseases or procedures and help others with information and treatment options.
MyHealth Access Network
MyHealth Access Network is an Oklahoma non-profit health information exchange - HIE - that provides secure, online access to patients' community-wide
Home - Advance Community Health
Looking for a healthcare provider that welcomes everyone, including Medicaid and Medicare, and provides discounts for the uninsured? As a nonprofit Community Health Center our mission is to provide comprehensive, primary healthcare services to patients of all ages, regardless of ability to pay. Learn about our services including primary healthcare, dental, behavioral health, pediatrics, teen medicine, Senior Health Center, and Horizon healthcare for the Homeless program. We welcome everyone regardless of ability to pay. Formerly known as Wake Health Services, Advance Community Health serves 25,000 patients and provides quality, accessible healthcare for all.
Everyday Health: Trusted Medical Information, Expert Health Advice, News, Tools, and Resources | Everyday Health
Everyday Health inspires and empowers people to live their healthiest lives, every day, through trusted, medically reviewed information and expert health advice from the nation's leading healthcare providers and patient advocates. Learn more about health
Author: Becky Upham
Health Wizz. My body, my data. Aggregate, organize and share medical records
Health Wizz is a secure mobile platform that provides consumers with the necessary tools for aggregating, organizing and sharing their medical health records over the blockchain. Health Wizz is on a mission to empower consumers to better manage their health data and has created the industry's first mobile Health Information Exchange of One (HIE of One), which allows consumers to control and direct the sharing of their individual health records.
Beating Lyme Disease 2nd Edition by Dr. David Jernigan
Do you suffer from Lyme Disease, Chronic Fatigue, Multiple Sclerosis, Fibromyalgia, or other chronic illness? If so, this book is for you! This highly-anticipated release from Dr. David A. Jernigan brings new and updated information AND provides the actual 'how-to' of healing for patients and doctors seeking to facilitate healing from Lyme Disease and other related illnesses.
Author: Biologix Center
FORWARD—The National Databank for Rheumatic Diseases – FORWARD works to improve arthritis treatment and results. You are invited to help, ei
OUR RESEARCH IS ABOUT YOU. As a participant, share your story with us using our user-friendly online questionnaires. As a health care provider, expand your ability to help your patients by partnering with us. Learn about our pioneering research efforts that have been ongoing for the past 30+ years.
Author: Dave Chlastosz
Reliance eHealth Collaborative – Improving health care through timely and accurate information
What Reliance means to you Quality of Care Medical Errors Health Care Costs Paperwork Information Access Benefitting a Network of Patients, Providers and Payors Reliance was created by doctors, hospitals and public health agencies interested in improving the health care system by connecting health care providers for more timely, efficient, and patient-centered health care
Author: Paul Quinn
Mental Health and Lifestyle Blog | Toronto ON | www.taliagrace.ca |
Mental health management and information on ADHD, ASD. Talia Grace (founder of www.taliagrace.ca) shares her experiences and strives to provide accessible resources for all that need it.
eHealthPass | Get in charge of your own data
EhealthpassTM is an innovative feature rich patient centered platform for family health and chronic disease management. It provides health records’ access, multi-language information sharing with professionals and relatives, treatment planning and monitoring, emergency support and geolocation, with a focus on patient consent and privacy. It also supports an open ecosystem where developers can utilize the infrastructure for app development.
eMedhub | Hospital Management Software
Why eMedHub? eMedHub has an ability to access health information electronically and help you in providing higher quality and safer care for your patients. And we are also keen in managing accurate, up-to-date and complete information about patients at the point of care. Modernize Your Experience We […]
Author: Adminemedhub
Home - Hawaii Health Information Exchange - Healthenet
Explore the Hawaii Health Information Exchange (HHIE). HHIE enables health care providers and stakeholders to share and access complete health data, resulting in an improved quality of life for Hawaii’s people and lower health care costs for all.
Helping You Achieve Greater Health - Markito Fitness & Nutrition
You are born with the potential to live a healthy and vibrant life, free of all disease. Your body comes naturally equipped with an amazing ability to heal itself, and improving this ability is within your control. It all begins with a choice of how you wish to live your life. If you are ready to accept this responsibility, it is my privilege to empower you with the information and tools necessary to reconnect you to your true potential; helping you achieve your health and fitness goals through proper nutrition, smart exercise, and conscious lifestyle choices.
Coastal Connect - Health Information Exchange - Coastal Connect
Coastal Connect Health Information Exchange (CCHIE) is a nonprofit electronic information network which allows healthcare providers to securely share information to coordinate and enhance medical care.
Bionutrica - Helping you live better
At BioNutrica we believe in responsible management of health, and to allow you to make an informed decision we provide you the latest scientific information, industry news, and technical product information to empower your move towards preventive healthcare.
Better Scheduling Solutions for Medical Practices | Radix Health
DASH by Radix Health helps medical practices and hospital groups optimize scheduling, patient access, and self-scheduling. Our healthcare solutions help practices streamline operations while empowering patients to easily find and schedule appointments, communicate with providers, complete paperwork,
Articles - Arts Health Network NSW/ACT
The Arts Health Network is an affiliation of academics, artists, health practitioners and allies who provide information, research, resources and activities to broaden understanding of the impact and value of creative arts in improving health outcomes through ACCESS, ADVOCACY, SHARING & CELEBRATION
Author: Ian Com
澳洲幸运8开奖app软件-手机版开奖直播|澳洲幸运8体彩官网开奖历史结果|Everyday Health: Trusted Medical Information, Expert Health Advice, News, Tools, and Resources | Everyd
Everyday Health inspires and empowers people to live their healthiest lives, every day, through trusted, medically reviewed information and expert health advice from the nation's leading healthcare providers and patient advocates. Learn more about health
Author: Lauren Bedosky
Robert DeMaria, N.H.D. | Holistic Natural Health & Healthy Living | The Drugless Doctor
Dr. Bob provides health and wellness information, shares advice and recipes, and answers questions on personalized wellness & professional laboratory tests.
RAINBOW HEALTH CONCEPTS -- HELPING YOU LIVE A HEALTHIER LIFE - NATURALLY - Home
We’d like to take this opportunity to introduce our site as an information portal to valuable links that contain scientific articles, videos and much more to provide information on health and...
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Concierge Medicine Chicago | Dedication Health - Dedication Health | Concierge Medicine Chicago
Innovative concierge medicine Dedicated to providingpatient-first healthcare At Dedication Health, we eliminate the frustrations and constraints of a traditional patient-doctor relationship. Our premium services and expert physicians tailor your healthcare experience to deliver a comfortable, attentive and holistic medical partnership. See the benefits and services a concierge practice can provide 24/7 access to physician Ability … Concierge Medicine Chicago | Dedication Health Read More »
Dorsata | Technology that Empowers Health Care Providers
We believe the U.S. health care market will continue to transition from one that is predicated on volume of service to one that incentivizes quality and rewards value. Providers deserve tools and information that enable this shift while positively impacting the provider and patient experience. Starting in Women’s Health, Dorsata empowers providers with intuitive and delightful workflow technology that alleviates clerical burden, supports evidence-based decision-making and maximizes value-based reimbursement.
You and Sarcoma
This resource is intended for sarcoma patients and their families and caregivers. You will find expert advice and information about sarcoma to help you discuss key issues with your health care provider and make important decisions related to management and treatment. Easy-to-understand animations with audio narration and slide shows on major sarcoma disease topics are available to you. We welcome you to this online community resource to improve your quality of life and health outcomes.
Salus Hearing Centre - Hearing Health
IMPORTANT NEWS COVID – 19 Information We are officially open to serve you! Please visit our COVID-19 Clinic Procedures page to learn about our new policies and services to ensure health, security and access to hearing care. We are accepting new patients and are ready to provide you with the services you or your hearing aids require. Due to COVID-19 we will be
Home - OPU Coin
OPU is a decentralized platform for the healthcare data economy Opu empowers patients, researchers, manufacturers, and medical professionals around the world with the ability to manage, monitor and monetize private and secure medical data. Data providers can securely monetize data while retaining complete privacy and control, where data consumers can access private data effortlessly for … Continue reading "Home"
Teleray home - Teleray TeleHealth
Telehealth & Radiology are 130 Years Old. Time to update your system? Talk. View. Store. Share. Get Started Patients Get Started Provider Login Get Started Patients Get Started Providers Welcome Outcome Health practices! Use your Outcome code to receive your discount. TeleRay Telehealth for X-Rays… Secure Telehealth and Total Image Management With The largest […]
Home - Community - Lupus Europe
LUPUS EUROPE is the European umbrella organisation that brings together national lupus patient organisations from across Europe. We are a non profit independent organisation. We aim to support and empower our national organisation members, sharing information with them and promoting better patient-centred processes, both within the healthcare field and at a political level. We also work tirelessly to improve access to healthcare for all lupus patients, advocating on their behalf at EU level. We use the WHO (World Health Organisation) definition of Europe as a region, rather than a political entity.
Author: Kirsten
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Independent ERP Consultants | Lumenia Consulting:
Lumenia Consulting: Leading Independent ERP Consultants located in UK and Ireland
Author: Robin Hilton; Finance Director
Welcome to Devacon GmbH | Devacon GmbH
Prizmah: Center for Jewish Day Schools
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get2Clouds | Encrypted large file transfer and Private Chat
The most advanced end-to-end encryption and cloud security protection.
Prenez le pouvoir sur l'évolution de vos équipements | Olinn
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The missing link to your production chain | getPlus
getPlus is an intelligent electronic software delivery (ESD) ecosystem that fully integrates into industrial automation providers licensing structures to automatically gather entitled and required software updates to clients.
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Opracowane trasy naszych wypraw oparte są na wieloletnim doświadczeniu w podróżach motocyklowych po USA. Naszą misją jest zapewnienie państwu czerpania maksymalnych doznań z podróżowania motocyklem.
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Atividades em destaque recomendadas por nossa equipe | Portal da RBAC
Author: Person Tatá Eastwood; Carolina Rodeghiero
Melges24.com | International Melges 24 Class Association
Melges 24 - Never Gets Old! The reputation of the Melges 24® precedes itself. Best known for its very competitive disposition and easy-to-sail personality.
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Orientierung auf dem Markt der Religionen | Confessio
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Logical IT, IT Support, Wellington, Kapiti, Porirua, Wairarapa, Cloud solutions | Logical IT
Logical.IT provide local IT for your SME in Wellington, Waiarapara, and around New Zealand. We make sure IT just works, and specialise in Cloud Computing.
Author: Sunil Vather; AbleX
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MERETEK OY | Meretek ltd
PAM Drainage Solutions : Cast iron pipe and fittings
Saint-Gobain PAM Pipe Soil & Drain is specialized in the manufacture of cast iron above and below ground drainage systems for buildings.
EQUANS Global - Empowering transitions
EQUANS is the world leader in multi-technical services with offices in 17 country hubs. EQUANS aims to combine its competence to serve the 3 major transitions which are key for the next decades.
Home | Job Service North Dakota
Job Service North Dakota provides workforce and unemployment services across the state in our nine Workforce Centers and at our Central location in Bismarck, ND. We offer a variety of services for both job seekers and employers.
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Mairie d'Ubaye Serre-Ponçon !
La commune d’Ubaye-Serre-Ponçon regroupe les 2 villages historiques de La Bréole et Saint-Vincent-les-Forts. Elle a été créée le 1 er janvier 2017.
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