Top 100 alternative sites to irdirc.org
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
RE(ACT) Congress
The first international congress on rare and orphan diseases, a human platform for knowledge sharing
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Applied Pharma Research is a Swiss Pharma company | APR
APR Applied Pharma Research is a private, international pharmaceutical company focused on specialized therapeutic areas, rare diseases and pharmaceutical services.
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
MyGene2 - Home
Uniting families, clinicians, and researchers for rare disease discovery.
Home - Lucas John Foundation
Impacting the lives of children diagnosed with rare diseases by funding research and offering scholarships for alternative therapy. DONATE NOW in the news … Lucas was recently featured on Good Morning America! Visit Lucas’s page on GMA RESEARCH Research for Rare Disease There are approximately 7,000 known rare diseases in the United States, with an…
Author: Lucasjohn
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
Treatable Traits - Treatable Traits
We are a consortium of world-renowned clinicians and researchers collaborating to improve healthcare for people with airway diseases.
CESSDA
CESSDA is a consortium for promoting the results of social science research and supporting international research cooperation.
Coordinating animal health research globally to accelerate delivery of disease control tools and strategies - STAR-IDAZ
STAR-IDAZ International Research Consortium on Animal Health (IRC)
Scleroderma Clinical Trials Consortium - SCTC - representing researchers & clinicians systemic sclerosis
The SCTC (Scleroderma Clinical Trials Consortium) is an international consortium representing the vast majority of researchers and clinicians who have particular interest and expertise in the care of, and research in, scleroderma (systemic sclerosis).
Retina International
Retina International (RI) is a patient-led, global, umbrella NGO for patient-led groups around the world focused on research and support for rare and common retinal diseases.
Tyrosinemia Type 1: information, fundraising and research
The Tyrosinemia Foundation raises funds for research into the rare metabolic disease Tyrosinemia Type 1. We provide information about the disease and give insights in available researches.
Author: Admin
Asian Internet Interconnection Initiatives
AI3 (Asian Internet Interconnection Initiatives) is an international research consortium in internetworking
ESCAPE network | European pediatric kidney research
A consortium dedicated to improve the lives of children with kidney diseases. Active in pediatric renal research, observational studies and registries.
SACIDS - Southern African Centre for Infectious Disease Surveillance
SACIDS, One Health consortium that link academic & research institutions involved with infectious diseases of humans and animals in Eastern & SouthernAfrica
Canadian Lyme Consortium - Home
The Canadian Lyme Consortium is a unique research partnership between researchers, the Lyme disease patient and advocacy community, and healthcare providers. The network was founded to blaze a...
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Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
NS Pharma - Building A Healthier Future Powered by Science
NS Pharma is a highly focused, research-driven biopharmaceutical company working in rare diseases.
ICORD | International Collaboration on Rare Diseases and Orphan Drugs
ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs.
Author: Published; Last Modified
Raising funds for Medicinal Cannabis Research | Drop A Dollar
Drop a Dollar is a not-for-profit charity raising awareness for Medicinal Cannabis Research. Join us in funding research and treatments for rare diseases.
Research in Plant Disease
Research in Plant Disease is an international journal for papers related to fundamental research that advances understanding of the nature of plant diseases and rapid reporting of research on new diseases, epidemics and methods for disease control. It covers basic and applied research focusing on practical aspects of disease diagnosis and treatment
Author: Hyo-Jeong Lee; Ki Beom Park; Yeon Soo Han; Et Al
YHEC | Industry Experts in Health Economics
York Health Economics Consortium provides national and international consultancy and research in health economics.
Home - Pulse Infoframe Inc.
Pulse Infoframe is an evidence-generating platform that accelerates research in rare disease, cancer, and chronic conditions.
LAM Australia Research Alliance – Seeking a cure for LAM
LAM Australasia Research Alliance (LARA) funds research into lymphangioleiomyomatosis, a rare and devastating lung disease striking women mostly in their 30s.
Welcome to the ASTERIX project
Asterix is a novel research project focusing on the development of more efficient and effective research designs to study new drugs and treatments for rare diseases
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
South African Sclerotinia Research Network
The South African Sclerotinia Research Network (SASRN) is a virtual community of practice and a research consortium aimed at finding the most appropriate management practices for local producers to control Sclerotinia diseases.
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Lochmüller Lab Home - Hanns Lochmüller and team - research and clinical activities
Dr Hanns Lochmüller's research group in Ottawa, Canada. Clinical and scientific research in rare inherited neuromuscular diseases, genomics and data sharing
Author: Hanns Lochmüller
Pharmaceutical Company: Medicine Research & Development | Santhera Pharmaceuticals Switzerland
Pharmaceutical company in Switzerland committed to research & development of medicines for patients living with mitochondrial disorders & rare diseases.
Author: X-Ray AG; Switzerland
Independent Healthcare Market Research | Spherix Global Insights
Independent business intelligence and market research agency specializing in renal, autoimmune, neurologic, and rare disease markets.
International Consortium for Personalised Medicine - ICPerMed
The International Consortium for Personalised Medicine (ICPerMed) brings together research funding organisations from 31 countries to foster research in personalised medicine.
Welcome to Global Research Forum on Diaspora and Transnationalism (GRFDT)
Global Research Forum on Diaspora and Transnationalism (GRFDT) | a consortium of researchers, policy makers drawn from national and international universities, institutes and organizations
VHFC
The Viral Hemorrhagic Fever Consortium is a partnership of international research institutions investigating Ebola and Lassa in West Africa.
Author: Kristian Andersen
ISSVD | Vulvar Disease | Research and Education
The International Society for the Vulvovaginal Disease, ISSVD, promotes global communication among physicians through vulvar disease research and education.
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
What else irdirc.org alternative websites
In Consortium | Rare Violins of New York
Rare Violins of New York presents In Consortium.
ALS Trials | ALS Clinical Research | Northeast Amyotrophic
Lateral Sclerosis (ALS) Consortium
The mission of the Northeast ALS Consortium (NEALS) is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease.
Eurordis.org
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 970 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
FutureNeuro: SFI Research Centre for Neurological Diseases
FutureNeuro is an SFI Research Centre to develop new technologies and solutions for the treatment, diagnosis, and monitoring of chronic and rare neurological diseases.
Home - Australian Functional Genomics Network (AFGN)
network of clinicians, diagnostic labs, and researchers investigating pathogenic mechanisms of genes and variants identified in patients with rare diseases and cancers
Wisconsin RARE
Wisconsin Rare is a coalition of rare disease stakeholders formed to organize the state's recognition of Rare Disease Day. Collaborate with us February 2017.
Author: Ginaszajnuk Com
Home - Epizone
EPIZONE European Research Group (ERG) is the international network of veterinary research institutes working on epizootic animal diseases.
Collaborations Pharmaceuticals, Inc.
Our machine learning **** discovery and toxicology capabilities can be applied to rare & neglected disease research and consumer products testing
Rare Diseases: Genetics and Metabolism – MRGM Research aims to decipher the molecular mechanisms laying at the root of the physiopathology o
MRGM Research aims to decipher the molecular mechanisms laying at the root of the physiopathology of rare diseases and make our findings worth for patients.
RDNZ | Home
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues.
Welcome to Pegasus Research Consortium
Pegasus Research Consortium
Author: Pegasus Research Consortium
International Contact Center Benchmarking Consortium | Benchmarking Process KPI Best Practices
International Contact Center Benchmarking Consortium conducts benchmarking studies to identify business process best practices for research and implementation.
SCOTT D Miller - For the latest and greatest information on Feedback Informed Treatment
Dr Scott Miller is the founder of international consortium of clinicians, researchers, and educators dedicated to promoting excellence in behavioral health services.
Author: Asta
International Wireless Industry Benchmarking Consortium | Benchmarking Process KPI Best Practices
International Wireless Industry Benchmarking Consortium conducts benchmarking studies to identify business process best practices for research and implementation.
International Nuclear Utility Benchmarking Consortium | Benchmarking Process KPI Best Practices
International Nuclear Utility Benchmarking Consortium conducts benchmarking studies to identify business process best practices for research and implementation.
Home | Protect ERNs
What are European Reference Networks? European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe. They allow knowledge and expertise about rare diseases to be shared across Europe; providing patients with access to diagnosis and transformative care, without the burden of long-distance travel. ERNs enable researchers to engage rare disease patients across
Author: Zz
Sällsynta Diagnoser
Rare diseases Sweden
UK ATTR Amyloidosis Research Association - Journal of Rare Diseases
Journal of Rare Diseases
Author: Jayden Ortiz
DESCA Model Consortium Agreement - DESCA 2020 Model Consortium Agreement
What is DESCA: The signature of a Consortium Agreement between the partners of a research project is mandatory for most EU research projects. DESCA (Development of a Simplified Consortium Agreement) is a comprehensive Model Consortium Agreement for...
Home - ILADEF
The International Lyme and Associated Diseases Education Foundation trains physicians in the diagnosis and treatment of Lyme and tick-borne disease, and supports research scientists investigating tick-borne diseases.
Other websites similar as irdirc.org
Genetic Cures Australia | Access and funding for leading gene-based therapeutic trials
GCA works through coordinated advocacy for Australian-based research into rare diseases and by financially supporting clinical trials of novel, scientifically sound therapies.
IeDEA International epidemiology Databases to Evaluate AIDS
IeDEA is an international research consortium established in 2006 by the US National Institutes of Health to provide a rich resource for globally diverse **** data.
NIMA – Wellcome Trust Consortium for the Neuroimmunology of Mood Disorders and Alzheimer’s Disease
Wellcome Trust Consortium for the Neuroimmunology of Mood Disorders and Alzheimer’s Disease
Rare Renal | The UK Kidney Association
It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested
www.queen-of-hearts.eu – Welcome to Queen of Hearts research consortium
Welcome to Queen of Hearts research consortium
www.queen-of-hearts.eu – Welcome to Queen of Hearts research consortium
Welcome to Queen of Hearts research consortium
CSER
Consortium for Software Engineering Research
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
International Society for Neglected Tropical Diseases │ ISNTD
ISNTD: the independent, multidisciplinary and international network for partnering, learning & researching across diseases and conditions of poverty.
Niemann-Pick Children\'s Fund, Inc | Niemann-Pick Type C Disease (NPC) | The Childhood Alzheimer\'s | NPCFund.org
A Rare Lysosomal Storage Disease
Me, You and PKU – a rare disease, a wonderful life
a rare disease, a wonderful life
Author: Elisakb
Phytoessence | International Phytoessence Consortium
International Phytoessence Consortium
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National Apostille Inc – US Apostille, Department of State Apostille, Secretary of State Apostille
Providing Apostille, Document Certification, and Embassy or Consulate Legalization. Serving All 50 U.S. States, the Secretary of D.C. and the U.S. Department of State in Washington, D.C.
Patent & Trademark Consultants | IPR Solutions, India : Patracode
We do Patent, Trademark, Copyright, Design Filings globally and provide Questel Orbit IP Portal, Patent Search, Intellectual Property / IPR Consulting.
30A Coastal Life – Exclusive Properties on Scenic 30A
Exclusive Properties on Scenic 30A
USA Apostille, Inc. – Apostille Services
Providing apostille services in the United States (USA) and for over 117 countries who are members of the Hague Apostille Convention. We can process documents issued from all 50 US states, the Secretary of D.C., and the U.S. Department of State in Washington, D.C.
Everton Park Church - A local friendly reformed church in Everton Park, Brisbane
A local friendly reformed church in Everton Park, Brisbane
Home • Premier Healthcare & Sports Clinic
Premier Healthcare is the first PAIN RELIEF CLINIC in El Dorado County offering Integrated Health Services - medical pain management, chiropractic & PT.
Peterson Spring - Spring manufacturer | Springs, snap-rings, wire forms, clips, clamps, stampings
Spring manufacturer | Springs, snap-rings, wire forms, clips, clamps, stampings
Yandina-Eumundi RSL|Local Club |Hall Hire |5472 7056
At Yandina-Eumundi RSL all service personnel & the community can connect with regular events/meetings. Our well equipped venue provides affordable Hall hire
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Wiltshire Horn Sheep Society Ltd (WHSS) – News, information, sales and resources
Wiltshire Horn Sheep Society (WHSS) - information, sales and resources for breeders of Wiltshire Horn pedigree sheep.
Kaizen | Lean Six Sigma Training Management Consulting
Kaizen Consulting Group offers Training & Management Consulting in Kaizen, Continuous Improvement, Operational Excellence, Lean Six Sigma, DFSS, DOE & FMEA.
St. Francis of Assisi – Parish
Parish
Come Sit Stay - Colorado's Favorite Pet Boarding Daycare & Training Facility | Serving Denver & The Front Range | 720-851-7829 | 720-382-765
Denver area luxury dog, cat and exotic pet overnight boarding, professional obedience training, in-home dog training, puppy class, doggie daycare and doggy play dates offered at the Come Sit Stay Pet Resort in Parker, Colorado – close to Denver International Airport. Brand new 11,000 square foot indoor pet hotel is a clean, safe and fun vacation for your animal.
Military Family Relief Fund (MFRF)
The Military Family Relief Fund (MFRF) was organized so that it can support the needs of those military members and their families during both peace and wartime.
Author: Wayne Everhart
Wilmington NC Bankruptcy Lawyers | North Carolina Family Law | Divorce Attorneys - Alley, Register, & McEachern
Attorneys Alley, Register & McEachern in Wilmington, NC, our lawyers offer legal services in the areas of divorce, bankruptcy and small business law. Contact us today to talk to a lawyer who is ready, willing and able to help you.
Wirtschaftsförderung Meckenheim – Eine Seite der Stadt Meckenheim
Eine Seite der Stadt Meckenheim
NuLife Municipal Truck Center – Manufacturer of Refuse and Recycling Equipment
Manufacturer of Refuse and Recycling Equipment
Middleborough Police Department - Official Website
Official Website
AFA Alaska – Association of Flight Attendants-CWA Alaska Airlines Master Executive Council
Association of Flight Attendants-CWA Alaska Airlines Master Executive Council
Uudet ja käytetyt varastohyllyt | HT-Hyllytekniikka Oy
HT-Hyllytekniikka Oy varastohyllyjen asiantuntija. Meiltä saat uudet ja käytetyt varastohyllyt kilpailukykyiseen hintaan. Meiltä myös hyllystöjen suunnittelu, asennus ja turvatarkastukset. Klikkaa ja tutustu!
Patent Trademark Consultants, Bangalore, India, Best Patent Attorney, Chennai, Mumbai
Best Patent Attorney, Chennai, Mumbai - Searchig for legal experts or best Patent Attorney in Delhi, Chennai, Hyderabad, Bangalore. Singhwal.com offers you the best legal advice and best Patent Attorney services in Delhi.
CWallA | Ceilings · Walls · Accessories
CWallA is a distributor of high-quality steel framing components, drywall, ceiling systems, FRP panels, tools, supplies, accessories and much more.
Rocky Mountain Adaptive - Making the outside accessible to all
Making the outside accessible to all
Billericay Methodist Church - One church on three sites
Welcome to Billericay Methodist Church, one church on three sites at Queens Park, Western Road and St Andrew's, Herongate. - explore what we have to share!
Home - SV Harfsen Gymnastiek
St Matthew Lutheran Church
A welcoming Lutheran church in Itasca, IL
New Dustin Inman Society -
Author: D A King
Prism Interiors Ltd. | Your Calgary General Contractors
When you’re looking to enhance the look and value of your home, you’ll want to hire an experienced general contractor like Prism Interiors.
Home | Corona Cleaners
What can we help you with? Corona Cleaners | Cleaning and Disinfection Corona Cleaners professional and highly effective disinfection and cleaning service against the new Coronavirus, called “2019-nCoV”. Bearing in mind that the virus can remain active on the surfaces for several days, it is necessary to proceed with total hygiene and disinfection of humanized spaces. From the walls, […]
Author: By
NephCure Kidney International ®
Saving Kidneys, Saving Lives
Author: Kylie Winkler