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Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Eurordis.org
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 970 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
Wisconsin RARE
Wisconsin Rare is a coalition of rare disease stakeholders formed to organize the state's recognition of Rare Disease Day. Collaborate with us February 2017.
Author: Ginaszajnuk Com
UK ATTR Amyloidosis Research Association - Journal of Rare Diseases
Journal of Rare Diseases
Author: Jayden Ortiz
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
Niemann-Pick Children\'s Fund, Inc | Niemann-Pick Type C Disease (NPC) | The Childhood Alzheimer\'s | NPCFund.org
A Rare Lysosomal Storage Disease
Me, You and PKU – a rare disease, a wonderful life
a rare disease, a wonderful life
Author: Elisakb
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
Dolon | Rare diseases strategic pricing and market access consultancy
Treatments for rare diseases face unique challenges in getting to market. Companies developing rare disease treatments need a specialised approach to prepare for pricing and reimbursement negotiations globally. At Dolon, we specialise in strategic pricing and market access for rare and severe diseases.
Rare Disease News, Perspectives & Resources - Rare Disease Advisor
more news >> more features >> Rare Care Podcast Browse Rare Disease Advisor's engaging "Rare Care" podcast series, featuring
Author: Ryner Lai; MBBS
IRDiRC
International Rare Diseases Research Consortium
Orphanet: Emergency guidelines
The portal for rare diseases and orphan drugs
Author: INSERM US
Orphanews - Rare diseases newsletter - OrphaNews - International
Orphanews is the Newsletter of the Rare Diseases Community
Maladies rares - EMRaDi
Euregio Meuse-Rhine Rare Diseases
AcceleRare – Advancing **** discovery for rare diseases
Advancing **** discovery for rare diseases
My Normal | storytelling for rare disease health
My Normal | storytelling for rare disease health
Author: My Normal
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
Other sites like sallsyntadiagnoser se
3billion | Genetic test for rare disease patients
Patients with rare genetic disease undergo long odyssey to receive a diagnosis. Visit 3billion and find how to order our rare disease genetic testing.
The Rare Village Foundation -Resources for Rare Families
Rare Village is a non-profit foundation dedicated to providing resources for families with rare disease children.
IDEOGEN AG
40+ Years of expertise in Oncology, Orphan & Rare Diseases, Hepatology, Hematology and Infectious Diseases
Author: IDEOGEN AG
RARE-e-CONNECT - RARE-e-CONNECT
Secure multidisciplinary collaboration and knowledge sharing on rare diseases. For Healthcare Professionals and patients within Cyprus and abroad, large repository of medical centres in Europe and other countries with verified expertise in rare disease groups and rare diseases, Patient life stories, Continuous Medical Education via webinars and automated newsfeeds from key medical databases to stay up to date with important developments and clinical trials in rare diseases.
Author: Super User
News, Insight, and Clinical Perspective
Rare and genetic disease publisher and learning platform.
Author: Peter Ciszewski
European Reference Network - Eye Diseases
European Reference Network - Rare Eye Diseases
ERKNet: ERKNet
The European Rare Kidney Disease Reference Network
Keith McArthur – Author. Podcaster. Speaker. Rare Disease Dad.
Author. Podcaster. Speaker. Rare Disease Dad.
Lumos Pharma Homepage
Lumos Pharma - Our Focus Is Rare Disease
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Rallybio
Despite science’s best efforts, rare diseases remain far too common. It’s time to tackle the undone, the too difficult, and the inaccessible, and change the odds for patients living with rare disease.
Samma möjligheter – bättre livsvillkor | Centrum för Sällsynta diagnoser - CSD - CSD Sydöst
Centrum för sällsynta diagnoser Sydost. Att leva med en sällsynt diagnos innebär ofta också sällsynt snåriga vägar till en fungerande vård och vardag.
NORD Breakthrough Summit 2021
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Author: CheckRare
Homepage Ipsen - Fondation Ipsen
Rare Diseases Rare but not alone Mission Accelerate rare disease diagnosis There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients do not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve … Homepage Ipsen Read More »
Home - Captain Courageous : Captain Courageous
A not-for-profit foundation exploring cures for rare blood diseases.
MyGene2 - Home
Uniting families, clinicians, and researchers for rare disease discovery.
Inclusion Body Myositis.
Describes inclusion body myositis: A rare muscle disease
GEn1E Lifesciences
GEn1E is a Platform to Advance Treatments for Rare Inflammatory Diseases.
What else sallsyntadiagnoser.se alternative websites
Birdfoundation
Home - Birdfoundation | Mauro Baschirotto Istitute for Rare Diseases
Home - Lucas John Foundation
Impacting the lives of children diagnosed with rare diseases by funding research and offering scholarships for alternative therapy. DONATE NOW in the news … Lucas was recently featured on Good Morning America! Visit Lucas’s page on GMA RESEARCH Research for Rare Disease There are approximately 7,000 known rare diseases in the United States, with an…
Author: Lucasjohn
Atlantic Research Group - Everyone Deserves To Be Well
At ARG, we advance smarter clinical trials in the fields of oncology, immunology, rare disease and neurodegenerative disease.
Home - Caraway Therapeutics
Caraway Therapeutics is pursuing novel approaches for the treatment of debilitating neurodegenerative and rare diseases diseases by enhancing cellular clearance.
Crinetics - Developing Therapies For Rare Endocrine Diseases
Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
Home - EMENA
Find out more about multiple endocrine neoplasia, a rare endocrine disease.
Home | Nice Genes - Charitable clothing brand
nice genes is a brand that advocates for science and the rare disease community.
Rare Medical Network
The only specialty-specific platform for rare disease information and education
Front Page - BensFriends.org
Safe and Supportive Communities for Rare Disease Patients Donate Today
The Isaac Foundation | Love, Laughter, and Hope
Providing support and advocacy for patients and families coping with rare diseases.
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Know Meningococcal
Do you know enough about meningococcal disease and how to help prevent it? Meningococcal disease is a rare but potentially devastating infection.
Author: GlaxoSmithKline plc
Team Sanfillipo — Parents united to find a cure or treatments
Cure Sanfilippo, Gene therapy, Get help for Sanfilippo, MPS, MPS III, Rare diseases, lysosomal disease, and Fundraising
Other websites similar as sallsyntadiagnoser.se
Home - 4th CKD Summit - March 1-3, 2022 | Boston, USA
Join the Chronic Kidney Disease **** Development Summit (CKD) to analyze & overcome challenges in rare & diabetic kidney disease
Peak body for Australians with rare diseases including genetic disorders
Many Voices ONE GOAL YOUR NATIONAL STRATEGIC ACTION PLAN FOR RARE DISEASES Read the Action Plan now Rare Voices Australia (RVA) is the peak national body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as
Vaccines and Immunization | Facts and Information
The introduction of vaccination programs has led to dramatic decreases in disease, disability, and death from many infectious diseases. This means that many of the diseases that vaccines help prevent are rarely seen.
Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
Author: Drawesome
Saniona
Improving the lives of rare disease patients around the world through scientific innovation.
eUROGEN - European Reference Network (ERN) for rare and complex urogenital diseases and conditions
European Reference Network (ERN) for rare and complex urogenital diseases and conditions
Red Fred Project
Publishing 50 Books by 50 Children with Rare Diseases in 50 States
Health Advocacy Summit
Empowering young adults with chronic and rare diseases through advocacy events and programs.
Home - Rare Collective
We provide clients with a senior-level suite of rare disease experts.
Author: Rare Collective
PIONEER - European Network of Excellence for Big Data in Prostate Cancer
European Reference Network (ERN) for rare and complex urogenital diseases and conditions
Zentech | Newborn screening
ZenTech develops solutions for neonatal screening for rare congenital and metabolic diseases
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Home - Chimicamo.org
Author: Chimicamo
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Skandinaviens viktigaste blogg för män
Author: SIR Pierre
Pearls with nature - Natuur
De natuur en ik zijn altijd met elkaar verbonden. Soms raak ik hem kwijt tijdens de grauwe kille dagen. Maar wanneer ik de aarde, de planten, de bloemen, de ruwe stenen, het water en het weer om arm. Voel ik dat ik leef, weet ik dat ik er mag zijn en word ik begroet met liefde.dit is de plek waar ik mij kan opladen.
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Previous Next Berita Hari Ini RAKOR SINKRONISASI DATA IDM RAKOR POKJA BPUM UMKM KECAMATAN NGABANG MONEV PROTOKOL KESEHATAN KEGIATAN PERLUASAN GEMARIKAN RAKOR PENGELOLAAN PIUTANG PAJAK DAERAH TAHUN 2021 Berita Profil Galeri Lokasi Download Informasi YULLY NOMENSEN, S.STP CAMAT NGABANG Selamat Datang di Website Resmi Kecamatan Ngabang Selayang Pandang Kecamatan Ngabang adalah satu Kecamatan yang ada...
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