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Sickle Cell Speaks
We share stories of living with sickle cell, work together to eliminate stigmas and learn more about living well with sickle cell.
Home - Sickle Cell Disease Association of America’s Sickle Cell Disease Educational Information Repository (SCD Repository)
Welcome Welcome to the Sickle Cell Disease Association of America Inc.’s Sickle Cell Disease Educational Information Repository (SCD Repository) which was designed to provide an up-to-date directory of disease education, information and resources. The SCD Repository was developed as a product of the HRSA-funded Sickle Cell Disease Newborn Screening Follow-up Program (SCDNBSFP) which is comprised […]
oneSCDvoice | a Sickle Cell Community and Educational Platform
Sickle Cell Disease Health Info & Community
Learn about sickle cell disease including symptoms, diagnosis, treatment, patient stories, & more from a sickle cell community perspective.
Author: Halimat Olaniyan
Research | Disease | Sickle Cell Warriors Inc.
Sickle Cell Warriors Inc. provides education, awareness, research access & support for those living with sickle cell disease. We are the largest patient-run sickle cell disease advocacy nonprofit firm in the world, with over 24,000 members. Join the movement to end sickle cell disease. Contact us.
Sickle Cell Disease Coalition
The Sickle Cell Disease Coalition was formed to amplify the voice of the sickle cell disease stakeholder community to improve outcomes for individuals with SCD.
#ACSCD2021 | 2021 African Congress on Sickle Cell Disease
2021 African Congress on Sickle Cell Disease | Join Africa's foremost-inclusive event on sickle cell disease from anywhere in the World
Vaso-occlusion and VOCs in Sickle Cell Disease
Find HCP information and resources about vaso-occlusion and vaso-occlusive crises (VOCs) in sickle cell disease, including its impact on those affected.
Cure Sickle Cell Initiative | Advancing research in sickle cell disease | Cure Sickle Cell
Following a long tradition of advancing research in sickle cell disease, the National Heart, Lung, and Blood Institute (NHLBI) launched the Cure Sickle Cell Initiative in September 2018.
Global Sickle Cell Disease Network- Home
The Global Sickle Cell Disease Network (GSCDN), is a community of sickle cell disease (SCD) clinicians and scientists committed to clinical care for, and study of, people with SCD globally. Realizing the gap in clinical care, research and education about SCD in low and middle-income countries (LMICs), GSCDN engages SCD
Sickle Cell Disease Organization | ASCAA
We are a non-profit sickle cell disease organization that supports people with SCD. Please help us change lives by donating.
Home - Networking CA for Sickle Cell Care
Networking CA for Sickle Cell Care | As provided for in the CA Budget Act of 2019, CIBD and SCDF will establish a network of sickle cell disease centers.
William E. Proudford Sickle Cell Fund
Our Mission: To support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease.
Sickle Cell Association - St. Louis
The Sickle Cell Association is a not-for-profit organization that strives to diminish suffering and improve the quality of life for those individuals affected by sickle cell disease.
Home - Sickle Cell Association of Texas Marc Thomas Foundation
Championing for all families affected by sickle cell disease and sickle cell trait since 1997.
Author: Letisha Sickle Cell Family
Sickle Cell Disease Study | See If You May Qualify | Hibiscus Study
A clinical research study for sickle cell disease. See if you may qualify for the Hibiscus Study.
Fabry Disease | Fabry Awareness
Healthcare practitioners: Learn about symptoms, signs, management, and other aspects of Fabry Disease and help us raise awareness of this condition.
My Sickle Cell Research Xplained
Easy to understand information about sickle cell research. Created by doctors, for you.
Imara: Advancing New Sickle Cell Therapies
Imara is dedicated to advancing new therapies to improve the lives of people living with sickle cell disease and other hemoglobinopathies.
Other sites like joingens com
Will to Walk – Raising awareness of Parkinson's Disease
Raising awareness of Parkinson's Disease
Author: Paul Lavings
Home – Thalassaemia and Sickle Cell Australia
World Sickle Cell Day Light Up for Sickle Cell 2021 See More International Thalassaemia Day See it in a different light. Check out the photos! TIF COVID-19 Information Thalassaemia International Federation An informational leaflet about the new COVID-19 with a special focus to the challenges it presents for patients affected by thalassaemia and sickle cell […]
Why Give - Help Us End Sports-Related Sickle Cell Deaths - As One Foundation
Help Us End Sports-Related Sickle Cell Deaths Our Founder and President, Devard Darling, is asking for your help to increase awareness concerning overexertion and sports-related deaths due to sickle […]
For Your Sweetheart Philippines: Campaign on Diabetes & Heart Disease Awareness
For Your Sweetheart is a nationwide campaign to raise awareness on the critical link between heart disease and diabetes in the Philippines. Learn more here.
Home Page
<p>Sickle cell education for all! Sickle Cell 101 (SC101) specializes in sickle cell education for individuals impacted by sickle cell disease and sickle cell trait globally. Learn more FEATURED Launch of Sickle Cell Studies Moving sickle cell research forward. Get involved in sickle cell research. Visit SCDstudies.com Mental Health Awareness Month In May we’re educating</p>
Chloe Saxby - raising awareness of Vanishing White Matter disease.
Chloe Saxby - raising awareness of Vanishing White Matter disease.
Author: Focus IT Computer Services
Home - Joscefoundation
World Sickle Cell Day 2021 19th June 2021 Welcome to JUDITH OJONUGWA SICKLE CELL FOUNDATION Essential medications for SCD warriors Support group for SCD warriors Genotype Education/Sickle cell awareness Volunteer Today Donate Now MEET THE FOUNDER Thank you for taking out time to visit our website, it is our goal to raise awareness about sickle […]
MastCellAware :: Raising awareness of the important role that mast cells play in all our lives
Help raise awareness for mast cell disorders and encourage research
Welcome to Aware Super | Aware Super - Australian Superannuation Fund
Find out all about Aware Super here and join the fund!
LymeLight Foundation - Lyme Disease Treatment Grants
LymeLight Foundation's mission is to provide Lyme disease treatment grants to eligible children and young adults to raise awareness about Lyme disease.
Mitochondrial Disease Charity | My Mito Mission
An innovative mitochondrial disease charity - My Mito Mission raises awareness, support and funds for research – could you be a Mito Hero and join us?
Shopcause – Raise money and generate awareness selling merchandise
Raise money and generate awareness selling merchandise
I won’t give up | Life after meningococcal disease
In sharing these stories, Anne wants Australians to be more aware about meningococcal disease and go talk to their doctor for more information about the disease and how to help protect their family.
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Alzheimer's Disease Health Info & Community
Learn about Alzheimer's disease including symptoms, diagnosis, treatment, patient stories, & more.
Author: Kerri MacKay
Gene and cell therapies to counteract neuroretinal diseases
Find here information on eye disease research and the priority program SPP 2127: Gene and cell based therapies to counteract neuroretinal degeneration.
DKMS Africa | non-profit organisation | stem cell donors | blood disease
The Sunflower Fund is a non-profit organisation that fights blood diseases like Leukaemia through the recruitment of stem cell donors and maintaining a registry of potential donors committed to helping anyone in need of a life-saving stem cell transplant. We fundraise to cover the cost of education and awareness about the need for and the process to become a blood stem cell donor as well as to cover the cost of the HLA tissue-typing test involved in the recruitment of donors. Together we can fight life-threatening blood diseases. Be somebody’s hope for life by registering to be a stem cell donor, donating money or volunteering.
SAVE: Suicide Prevention, Information, and Awareness
Learn about suicide prevention through Suicide Awareness Voices of Education (SAVE), a nonprofit resource for those affected by suicide.
Clinical Research Center with Preeminent Phase I Services. Now offering FibroScan Services on Site. Current Studies: Sickle cell, Liver Dise
Clinical Research Center with Preeminent Phase I Services. Now offering FibroScan Services on Site. Current Studies: Sickle cell, Liver Disease, Hepatic Impairment, Fatty Liver, Vitiligo, Psoriasis or Plaque Psorasis, Low Testosterone.
Cardiovascular Disease (CVD) Information and Resources
Access additional information about atherosclerotic cardiovascular disease (ASCVD). Find resources and info about risks and available treatment options.
What else joingens.com alternative websites
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
Beyond Carnism | Raising Awareness Of Carnism
Find out how Beyond Carnism is raising awareness to help people understand about Carnism. Discover events, FAQs, and find out how to get involved.
Author: Nine Sixty
Connect Biopharma - Next-Generation Therapeutics for T Cell-Driven Inflammatory Diseases
Connect Biopharma is a global clinical-stage biopharmaceutical company dedicated to improving the lives of patients with chronic inflammatory diseases through the development of therapies derived from T cell-driven research.
Immunotherapy by ImmunityBio - Cell Therapy for Cancer
ImmunityBio is dedicated to conquering cancer. We develop therapies that **** disease, not the immune system. Learn about our investigational immunotherapy and cell therapy products.
Author: Dr Patrick Soon-Shiong Executive Chairman; ImmunityBio
Parkinson's Disease Health Information & Community
Find out about Parkinson's disease including symptoms, diagnosis, treatment, patient stories, support, and more from a Parkinson's community perspective.
Author: Suzanne Troy
Caladrius Biosciences | Cell Therapy & Regenerative Medicine Development
Caladrius Biosciences (NASDAQ: CLBS) develops regenerative therapies that reverse chronic disease. Learn more about our cell therapy development and commercialization.
Hydroxyurea-based treatment for pediatric patients with sickle cell anemia – Siklos® (hydroxyurea)
Siklos® is the first and only FDA-approved prescription medicine that is used to reduce the frequency of painful crises and reduce the need for blood transfusion in children, 2 years of age and older, with sickle cell anemia with recurrent moderate to severe painful crises. See Important Safety Information and Boxed Warning about myelosuppression and malignancies.
Author: Super User
Myocarditis Awareness, Research and Support – Myocarditis Foundation
The Myocarditis Foundation raises awareness, promotes research and supports families affected by myocarditis. Learn more about our myocarditis organization’s important work by visiting us online.
Type 1 Diabetes | Fundraising & Awareness | Powered By Insulin
Help us to raise funds and generate awareness about Type 1 Diabetes by showing other kids with T1D that they can have a happy, normal life!
ILD Education, Insights, and Resources – Insights in ILD
Learn more about Interstitial Lung Disease and find educational resources, insights and more about ILD.
Heart Cells Foundation | Pioneering UK Stem Cell Therapy
About Compassionate Programme Find out more about the Compassionate Centre learn more Video Heart Cells Foundation Appeal Film Watch the progress of the Heart Cells Foundation through the years watch video Recent Press David
Author: Heart Cells Foundation
Could it be NTM lung disease?
Learn about the symptoms of nontuberculous mycobacterial (NTM) lung disease, and why people with bronchiectasis, COPD, and asthma are at risk. Find information on how to test for NTM lung disease and what to do if you are diagnosed.
Batten Disease Support & Research Association
ABOUT US BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA
Author: Tom Evans
Family Literacy Day | abclifeliteracy.ca
Family Literacy Day raises awareness about the importance of reading and learning together as a family. Download free resources to get involved.
Author: Uberadmin
Home | CWD Myths | The Truth About Chronic Wasting Disease
An educational resource for hunters to learn the facts about Chronic Wasting Disease (CWD). CWDMyths.com is sponsored by the American Deer & Wildlife Alliance.
What Generation Am I? - WhatGenerationAmI.org
What Generation Am I is useful tool to find What Generation Are You? Facts and Figures about all Generations
Preparation for raising money: steps to know before fundraising
Find new ways of raising money for your organization by creating awareness of the public of your goals. Think about the context is to reinforce your story.
Home - LGMD Awareness Foundation
ABOUT US LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization dedicated to globally raising awareness of the rare neuromuscular conditions known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public. By increasing
Author: Dooley
THE Hub for Distracted Driving Prevention -TextNinja
The TextNinja Hub provides a wide range of distracted driving prevention and awareness resources, tools, and stories. Let's join forces against distracted driving!
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BLINCYTO® (blinatumomab) for HCPs | MRD+ B-cell ALL
Find HCP info about BLINCYTO® (blinatumomab). Learn more about MRD+ B-cell acute lymphoblastic leukemia (ALL). See Important Safety & Prescribing Info.
Welcome To Chronic Lyme Disease Help
If you have Lyme disease, Chronic Lyme disease, any chronic illness, or just want pharmaceutical grade products, you are in the right place. Chronic Lyme Disease Help was created for people with Lyme disease and its associated illnesses, by people with Lyme disease. On our site, you will find the highest quality products that naturally treat Lyme disease, its co-infections, and all the many symptoms that go along with them. You will also find products essential to general health and well-being. Chronic Lyme Disease Help is your resource for the best products available.
Medicines to Treat Immune-Mediated Diseases | Aldeyra Therapeutics, Inc.
Learn more about Aldeyra Therapeutics, devoted to inventing, developing, and commercializing next-generation medicines that treat immune-mediated disease.
CURED - Home
CURED is a not-for-profit corporation that donates substantial funds to aid in research for eosinophilic diseases. We advocate on behalf of EGID patients and their families by raising awareness about this complex group of diseases. To learn additional information, send us a message.
Wireless Phone Service - Find the Cell Phone and Calling Plan for Your Needs
Resources to help you find your next cell phone and plan. Use the rate plan or cell phone finder tools to compare plans and phones or review our free cell phone buying guide full of helpful information. The place to find the best cell phone and plan.
World Footprints: Explore the Best Places to go on Vacations
Discover the world with World Footprints and find the best places to travel. We are committed to raising awareness about important global issues through travel stories.
Living with Crohn's Disease
When I was diagnosed with Crohn's disease ten years ago, there was so much information about the condition for me to try and absorb. It was a confusing time, but over the years, I've learned a lot about this illness and the treatment options that are available. I started this blog to share my personal journey of trying various prescription drugs and undergoing bowel surgery in a bid to bring about disease remission. I also post about complementary therapies I have used to ease my symptoms, such as homeopathy and reflexology. I hope you find my blog interesting and useful.
Personalized Support for Patients & Families Affected by Rare Disease
CareConnectPSS® is designed to support each patient’s unique journey to help you overcome challenges related to living with Fabry, Gaucher, Pompe, and MPS I disease. Learn more about the many support offerings & available resources.
LGBT Center Awareness Day, A CenterLink Event for the Community of LGBT Centers
Join CenterLink in celebrating LGBT Center Awareness Day. Every year, CenterLink celebrates the amazing and important work of LGBT Community Centers on LGBT Center Awareness Day. Learn more about this special day and how you can participate as well.
Home - Rideshare2Vote Aware
R2V AWARE Training next generation leaders Transporting voters every election Creating engaged citizens Learn More Join our team We are looking for high energy, self motivated, politically passionate interns! The Rideshare2Vote Aware Intern Program is a part-time opportunity for students and recent graduates to get involved in both the activist community and in the political … Home Read More »
Home | KOPSKAM
In Kopskam we have launched our first project, Not a social guy, with the aim of raising awareness among the youn generation about the way we use social media. Join us!
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Living With Carcinoid Syndrome & Neuroendocrine Tumors
Find information and resources for living with carcinoid syndrome, carcinoid tumors, and neuroendocrine tumors (NET) of the GI tract, lungs, or pancreas.
Understanding PIK3CA-Related Overgrowth Spectrum
Learn about PIK3CA-Related Overgrowth Spectrum, or PROS, including its cause, features, steps to diagnosis, and management landscape.
Pro-Tumor Inflammation (PTI) and Its Role in Tumor Growth
Learn about Pro-Tumor Inflammation (PTI), including info on mechanism of disease, oncogenic processes, immune system effects, resources, and FAQs
Metastatic Prostate Cancer and PSMA | Scan for PSMA
Find information on prostate-specific membrane antigen (PSMA) and prostate-specific antigen (PSA) and how they relate to metastatic prostate cancer progression.
What’s new?
Learn about periodic fever syndrome and rare autoinflammatory diseases including CAPS, SJIA, AOSD, FMF, TRAPS, HIDS/MKD and Gout. Understand the science, hear expert insights and read patient stories about what it is really like to live with the disease. Visit our website to learn more today.
Tekrarlayan Ateş - Otoenflamatuar Hastalıklar
Nadir otoenflamatuar hastalıktan etkilenen herkes için destek ve kaynaklar; bilimsel bilgi, makaleler, hasta öyküleri, uzman görüşleri, mükemmellik merkezi bulucu
Периодические лихорадки - аутовоспалительные заболевания
Помощь, поддержка, ресурсы для страдающих аутовоспалительными заболеваниями, наука, статьи, публикации, истории пациентов, экспертное мнение, центр экспертизы
Periodic Fevers – autoinflammatory conditions
Support, resources for anyone affected by rare autoinflammatory disease; science, articles, patient stories, expert opinion, centre of excellence locator
ADAKVEO® (crizanlizumab-tmca) for Protection Against Pain Crises
Discover ADAKVEO, the first and only once monthly medication to reduce the number of pain crises in sickle cell disease. See full Prescribing & Safety information.
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Relapsing MS Treatment | KESIMPTA® (ofatumumab)
Access additional information about KESIMPTA, a once-monthly injection treatment for relapsing multiple sclerosis (RMS). See full prescribing & safety info.
Treatment for Chronic Iron Overload | JADENU® (deferasirox)
Learn more about JADENU Tablets or Sprinkle granules including dosing, safety and side effects, benefits, and risks. See full Prescribing & Safety info, including Boxed Warning.
Μίλα για την ημικρανία σου
Μάθε περισσότερα για την ημικρανία στο speakyourmigraine.gr
L'urticaire chronique spontanée ? Même pas peur !
Stop Migreni
If you're affected by migraine, you're not alone. Read other's stories, find new tools and understand migraine symptoms, triggers and management.
Speak Your Migraine | Migraine awareness campaign | Home
If you're affected by migraine, you're not alone. Read other's stories, find new tools and understand migraine symptoms, triggers and management.
Branded GLEEVEC: Have your say
Learn about GLEEVEC, an approved treatment for KIT+ GIST and Philadelphia chromosome-positive chronic myeloid leukemia. See full Prescribing & Safety Info.
Fiebres periódicas – Para aquellos que viven con síndromes autoinflamatorias
Aprende sobre el síndrome de fiebres periódicas y las enfermedades autpinflamatorias raras, como pueden ser el CAPS, AIJS, FMF, TRAPS, HIDS o la gota. Entiende la ciencia, escucha las opiniones de expertos y lee las historias de pacientes sobre cómo es vivir
Welcome to COSENTYX®
COSENTYX® XPOSE® program website for Canadian patients, offering medical and lifestyle information and resources.
Home | Sergu Migrena
Migrena nėra paprastas negalavimas. Bet kuris, gyvenantis su migrena, gali jums papasakoti, kuo ji skiriasi nuo paprasto galvos skausmo, kokiais fiziniais simptomais pasireiškia ir kaip gali būti gydoma.
Stop Netelroos
Stop Urticaire - Accueil
TemporarySuspension
TemporarySuspension
BRAFm+ Метастатическая меланома. Отличный значит уязвимый
Связь между мутацией BRAF и меланомой и то, как тестирование биомаркера может привести к улучшению прогноза меланомы из-за лечения меланомы ингибитора BRAF, теперь доступно
TAFINLAR® (dabrafenib) + MEKINIST® (trametinib) | Official Site from Novartis
The official website for TAFINLAR® (dabrafenib) capsules and MEKINIST® (trametinib) tablets. Find information about TAFINLAR + MEKINIST, the conditions it treats, and Important Safety Information.
RYDAPT® (midostaurin) Capsules | AML & ASM Treatment
Official HCP website for RYDAPT® (midostaurin). Find indication, treatment, MOA & full safety information here.
PROMACTA® (eltrombopag) | Patient Website
Learn more about PROMACTA® (eltrombopag) and its uses, including dosing, safety and side effects, benefits, risks, and BOXED WARNING.
La pelle conta: tutto su Psoriasi, Orticaria e Artrite Psoriasica
Cerchi informazioni su orticaria, psoriasi o artrite psoriasica? Sul portale La Pelle Conta trovi tutte le novità su cause, sintomi e cure di queste patologie.
Informace o selhání srdce | Ruku na srdce
Ruku na srdce : celosvětové hnutí na pomoc lidem trpícím srdečním selháním. Poznejte více o příznacích a příčinách srdečního selhání.
Suis Ton Coeur | Suis Ton Coeur
Patients, proches, aidants, apprenez-en plus sur l’insuffisance cardiaque et découvrez des moyens de vivre plus sereinement avec cette maladie.
