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Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
Diseasemaps - World Maps of Chronic and Rare Diseases
Connect with people who share your disease and help each other. World Maps of Chronic and Rare Diseases. The main purpose of the project is to help people with chronic and rare diseases. Living with these diseases is usually hard and it is not always properly understood by society. Therefore, we want to spread awareness about all of them and help people who are nowadays suffering. Through this website, you can check how your disease is spread all over the world.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
Niemann Pick C | Australian Niemann-Pick Type C Disease Foundation
Australian Niemann-Pick Type C Disease Foundation is a not for profit organization that is trying to raise awareness and funds for research into a cure.
Jack McGovern Coats' Disease - Rare Eye Disease - Home Page
Jack McGovern Coats' Disease - Funds research to find a cure for Coats’ Disease and pediatric retinal Disease - We serve as a hub for the Coats’ Disease community
Race For 7 | 7000 Rare Diseases | 7000 meters
ORDI team committed to address the challenges of rare disease patients and their families is conducting 'Race for 7', an awareness run in Bengaluru on
Finding a Cure for Kawasaki Disease| Kawasaki Kids Foundation
Kawasaki Kids Foundation is a non-profit dedicated to cure Kawasaki Disease. Our mission is to fund research, raise awareness, and support families.
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
AllStripes - Be part of the solution for your rare disease
We empower patients and communities to change the way that **** development happens in rare disease.
Miles For Migraine - Finding a Cure for Migraine Begins with You
Miles for Migraine is a nonprofit dedicated to improving the lives of migraine patients, raising public awareness, and finding a cure for migraine diseases.
Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Dolon | Rare diseases strategic pricing and market access consultancy
Treatments for rare diseases face unique challenges in getting to market. Companies developing rare disease treatments need a specialised approach to prepare for pricing and reimbursement negotiations globally. At Dolon, we specialise in strategic pricing and market access for rare and severe diseases.
Medical Help
Medical Help is a Site created to raise awareness among the public regarding all the medicine available in Singapore.
Author: Unknown
Other sites like wewearstripes com
Sickle Cell Disease Awareness | Generation S
Join Generation S to raise awareness for sickle cell disease. Find the resources and tools to rewrite your sickle cell story & learn more about Generation S.
Liver Foundation | Liver Health | Liver Disease | Australia
The Liver Foundation is the peak not-for-profit community organisation in Australia for people affected by, or at risk of liver disease. The Liver Foundation's mission is to raise awareness and fund critical research into the prevention, detection and diagnosis, treatment, and cure of liver disease.
CSL Behring | Rare Disease Biotech Company
CSL Behring is a global biotechnology leader driven by its promise to save and improve lives. We manufacture remedies for serious and rare diseases.
TBTBGLOBAL - Helping the rare and cancer disease communities
We are TBTB Global a company dedicated to help other companies to improve their business and lifestyle of patients dealing with cancer and rare disease.
swii.ch health | Rare Disease Patient Engagement Agency
Focused on rare diseases and specialty markets, we are a patient engagement agency serving pharmaceutical and biotech clients.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Project Sebastian A Rare Disease Foundation Funding Support
We at Project Sebastian gives support, funding and hope to families affected by a child with a rare disease. Provide education, therapies, and counseling.
Cousins for a Cure | Pancreatic Cancer Awareness | Franklin, NC
Cousins for a Cure is raising funds and awareness of pancreatic cancer. Buy a t-shirt with proceeds benefiting pancreatic cancer research. We are Girls Raised in the South with Attitude!
Batten Disease Support & Research Association
ABOUT US BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA
Author: Tom Evans
Parkinson's Charities | Parkinson's Disease QLD | Parkinsons Queensland
Parkinsons Queensland is one of the leading Parkinson's charities in Queensland. We support, raise funds and spread awareness for Parkinson's Disease QLD wide.
Support for patients with chronic illness or rare disease
We provide social-emotional support for patients, teens, young adults, and seniors who are living with chronic illness, rare disease, long-covid, who are undiagnosed, or who are carriers of disease. Connect with patients, make a friend, get support, chronic illness coach, society for teens.
Author: Chronic Warrior Collective
Cancer Warrior Australia | Cancer Warrior Australia
Gift and Hampers for cancer patients. Building cancer awareness and raising funds to find a cure. Created by cancer Survivors. Hampers T-Shirts Mugs Gift Packs
Author: Cancer Warrior Australia
Mahajan Hospital - Home
Awareness is the first step towards achieving good health. It is the philosophy of the Mahajan hospital that its responsibilities is not only treating and curing disease but also is creating awareness among people so that disease can be prevented and minimized. Call: Phone No.: 0581-2531055, 2303888, Mobile No.: 9412289888, 8954244888
What is Duchenne? • World Duchenne Awareness Day
On September 7, we raise global awareness for Duchenne and Becker Muscular Dystrophy, two rare muscle wasting conditions. Join us! 🎈
Author: Worldduchenne
Emily's Entourage
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system
Author: Jamie Markizon
Brainstorm for a Cure
Brainstorm for a Cure is the brainchild of brain cancer patient Sarah Mamalai, who lost three dear friends in 2011 to the same, cruel disease as her own. To honour their memories, raise awareness and funds for research, she hatched the idea of creating a unique charity event – a major music benefit party in the national capital.
Cycle Pharmaceuticals – Treatments for rare disease patients
WHAT WE DO Cycle Pharmaceuticals is a global, privately-owned and patient-dedicated biotechnology company headquartered in Cambridge in the UK. Our mission is to utilise the latest pharmaceutical technologies to deliver superior **** treatments to better serve rare genetic disease patients. In addition, we provide individualised patient support services to
Author: Web Admin
What is AutoImmune Hepatitis | Cure disease naturally | Diet
Definition: a disease known by inflammation of the liver. Hepatitis gets its origin from the Greek word "hēpat - hēpar", which means liver and "itis" means inflammation. Read about how to cure autoimmune hepatitis disease naturally with alternative therapies, a holistic approach. Autoimmune hepatitis (AIH) is a rare chronic liver disease in which your immune system's special cells create antibodies to attack your ...continue reading →
What else wewearstripes.com alternative websites
Home - Active Life Chiropractic
Active Life Chiropractic is proud to have helped raise over 60,000.00 for CF research. Each year, more than 125,000 people participate in hundreds of walks across the country to support the Foundation’s mission to cure cystic fibrosis and raise awareness for this rare, genetic, life-shortening disease that makes it difficult to breathe.
Author: Kay G
CURED - Home
CURED is a not-for-profit corporation that donates substantial funds to aid in research for eosinophilic diseases. We advocate on behalf of EGID patients and their families by raising awareness about this complex group of diseases. To learn additional information, send us a message.
Paintings of wild horses by Karen Keene DayKaren Keene Day
Since 1999 Karen Keene Day's dedication to creating paintings of wild horses has helped raise public awareness of wild horses in the American west.
How Is Your Day?
”How Is Your Day?” is a global initiative that unites these people worldwide. It amplifies their voices and draws attention to the unique nature of plasma protein therapies. While treatment options (plasma-derived and their recombinant analogs) exist for most people with bleeding disorders, a vast majority of those living with life-threatening, chronic, and genetic diseases have no alternatives to these therapies. ”How Is Your Day?” raises awareness of the plasma protein therapies and the value they provide to patients. It aims to inform and educate decision makers and the general public worldwide.
Light of Day Foundation
The Light of Day Foundation, Inc., utilizes the power of music to raise money and awareness in its continuing battle to defeat Parkinson’s disease and related illnesses such as PSP and ALS within our lifetime. The Light of Day Foundation's mission is to fund research into possible cures, improved treatments and support for patients who suffer with Parkinson’s disease (PD) and related illnesses, their families and their caregivers to help improve their quality of life.
Changing the game - The Nathan Project for Rare Diseases
Kids with rare diseases often fall through the cracks of healthcare systems, causing serious problems for patients, their families, and the doctors who treat them. We are developing a needs assessment tool to help doctors and researchers find and fix these gaps, transforming the lives of these families. Left: Our ambassador, Nathan Garcia […]
Fintech Forum Ltd. | Marketing Company | Geneva
We create content, curate to your audience, generate leads & raise awareness through established influencers.
World Pancreatic Cancer Day 2021 - World Pancreatic Cancer Day
On WPCD we are asking people to take action to raise awareness about pancreatic cancer, the symptoms and risks and the urgent need for earlier detection.
The Glass Paperweight Foundation
We create awareness of glass paperweights as an art form with artists, collectors, and the general public.
Home | KOPSKAM
In Kopskam we have launched our first project, Not a social guy, with the aim of raising awareness among the youn generation about the way we use social media. Join us!
HOME - IBON INTERNATIONAL
LATEST NEWS & UPDATESRead our Latest News & Updates Publications & Other Resources IBON International regularly generates publications such as primers, policy papers and positions, and other information products as a major contribution to knowledge building and raising awareness on contemporary development issues, especially in major areas of IBON’s advocacy. Our publications, and other information …
It's time to talk about mito - The Lily Foundation
The Lily Foundation is a UK charity dedicated to fighting mitochondrial disease. We work in partnership with the NHS and leading mitochondrial clinics to support those affected by the condition, raise awareness, and fund research into effective treatments and therapies. Our long-term goal is to find a cure for mitochondrial disease.
Home :: Connecticut Brain Tumor Alliance
The Connecticut Brain Tumor Alliance is a non-profit organization dedicated to offering support and compassion. Our mission is to raise awareness of the disease, provide hope and support for others living with brain tumors in Connecticut and raise money to support and advocate the cutting-edge research we all know someday will find a cure.
World Rabies Day 2021 | Global Alliance for Rabies Control
World Rabies Day is a global day of awareness and advocacy to help raise the profile of rabies - Neglected Tropical Disease (NTD) - and drive efforts to eliminate rabies. World Rabies Day is an annual celebration on September 28, which is the anniversary of the death of Louis Pasteur who created the first rabies vaccine. The annual World Rabies Day theme is described and shown here, helping you to celebrate World Rabies Day.
Pawz ® Saves the Dogs | Official Site | Clothing for Dog Lovers
Pawz was created to raise money for euthanasia awareness and saving animals by selling cute tee shirts. We want all of our customers to dress in style! Buy a Shirt, Save a dog! The Ultimate Dog Lover Club! Pawz Saves The Dogs! Get your Pawz on!
Pawz
Pawz was created to raise money for euthanasia awareness and saving animals by selling cute tee shirts. We want all of our customers to dress in style! Buy a Shirt, Save a dog! The Ultimate Dog Lover Club! Pawz Saves The Dogs! Get your Pawz on!
Home - Purple Day® Every Day
Bringing Epilepsy to the forefront, Purple Day Every Day's goal is to create Global Public Awareness. We help to eliminate the fear and stigma associated with epilepsy and brain trauma. The Anita Kaufmann Foundation was established in 2004. Visit us now!
Author: Purple Day® Every Day
Chambers and Co. – chambersco.co.nz
We are devoted to creating a community of compassion and inclusion for all of those touched by Autism Spectrum Disorder. Our distinct apparel has been designed to raise public awareness of the day-to-day challenges that living with Autism brings. From our family, to yours.
United for Life
United for Life is raising public awareness about the exploitation of animals and the current threats due to climate change, environmental pollution and the destruction of nature. We promote the vegan lifestyle because it is the largest that an individual can do directly to contribute to solving some of the biggest problems of our time.
Home - Lipid Association of India
Lipid Association of India (LAI) is a team of eminent doctors in the field of Cardiovascular Medicine, Internal Medicine, Pharmacology and young doctors who are interested in the field of lipidology.In We will also be working towards creating awareness among general public regarding the adverse effects of dyslipidemia in order to achieve our aim of “A Healthy Heart for Better Tomorrow”.
Author: Admin
Other websites similar as wewearstripes.com
Ray's Day – dimanche 22 août 2021
A little more than three years ago, Ray Bradbury flew away to Mars for good (carelessly, he forgot to buy a return ticket) and now that he is gone, we miss a book lover of a rare kind. The passion Bradbury had for books, libraries, and more generally reading, was contagious. The wet blankets will say that he did not like computers and e-books, but this is not an issue: when you love r ...
Trenchless Innovation | Trenchless Innovation | Trenchless Pipelining Solutions Marketing Consulting Services
Trenchless Innovation Unleashing the Unbridled American Spirit Read More Trenchless Innovation is reinventing the personalized approach to authentic marketing for the underground utility industry. We specialize in marketing cured-in-place-pipe lining (CIPP) technology, building awareness and educating the general public on America’s failing infrastructure. We are not a cookie-cutter marketing firm and we do not believe […]
Rare Disease Day (世界希少・難治性疾患の日）
Rare Disease Day (世界希少・難治性疾患の日、以下RDD)はより良い診断や治療による希少・難治性疾患の患者さんの生活の質の向上を目指して、スウェーデンで2008年から始まった活動です。日本でもRDDの趣旨に賛同し、2010年から2月最終日にイベントを開催しております。
Fairground 2018 - By Beyond Social Services
Fairground is a Beyond Social Services’ outreach initiative aimed at raising awareness for those affected by poverty (yes, it exists in rich Singapore). As the name suggests, it is a ‘Fair’ ground where we can come together, have fun and create memories while better understanding the realities and difficulties faced by the less privileged. Because today’s Fairground is tomorrow’s level playing field.
The Pittsburgh Chess Club – The Pittsburgh Chess Club
Welcome to the Pittsburgh Chess Club! We are a 501(c)(3) educational non-profit organization with roots going back to the mid-1800s. The Club is dedicated to promoting and developing the game of chess, conducting instructional classes, lectures, and exhibitions for the general public, sponsoring chess tournaments, and raising awareness of chess in Pittsburgh and Allegheny County.
Author: The Knight Manager
Stop The Virus | Home
This website has been created by Gilead for the purposes of disease education and awareness. Policymakers play a key role in the effective design and delivery of health services, especially regarding **** care. Stopthevirus.eu provides information to help you support efforts to get to zero new infections – ending **** as a global public health threat by 2030. It features information on developments in the policy landscape, and will include coverage of major ****/AIDS conferences, news, and special feature articles.
Home - Indian Youth Nuclear Society
Together we can Indian Youth Nuclear Society Indian Youth Nuclear Society (IYNS) is a non-profit organization with the aim to spread awareness about the benefits of nuclear energy among general public and to encourage our youth to learn and contribute to the nuclear energy program. Learn more Being Informal With… Season 2 Coming Soon Facebook […]
TRAFFIC
This blog was created to try to raise awareness of drivers of motor vehicles, cyclists and pedestrians that are all part of the context of traffic and we should take all possible care to survive in traffic, as well as care for the lives of others. Because the traffic kills more than guns. Jesus said, "wise as serpents" (Matthew 10:16), Jesus meant that the charges for not having legs or arms is very careful.(By scribe Valdemir Mota de Menezes)
Author: SCRIBE
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Caffeina | Ideas Never Sleep.
We make impactful experiences to fuel new energy between people and brands
Geef jouw interieur een unieke sfeer met de Kade6-stylinggids!
Bekijk ook de chique sfeervolle Kade6 kussens van hoogwaardige stoffen en stevig materiaal.
Author: Yuri van Essen
Ireland, Scotland, UK All Inclusive Vacations & Tours | CIE Tours
Discover European tour packages to top destinations, including Ireland, Scotland, England, Iceland, Italy, and European cruises.
Looop - We are: Moving Circularity Forward
Our goal is clear: Looop is committed to a clean, circular, climate neutral future. Discover who we are and how we are going to make it happen.
Author: Jasmijn van Wakeren Product Manager Pigs
