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Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
MCDS-Therapy | EU Horizon 2020 project | Rare bone disease
MCDS-Therapy is an EU-funded project. We’re working to develop the first therapy for the rare bone disease, metaphyseal chondrodysplasia type Schmid (MCDS).
Author: Blayne Baker
Steve Waugh Foundation | Rare Disease Foundation Australia
Steve Waugh Foundation's mission is to enhance the lives of children and families affected by a rare disease. Grants and fundraising assistance available.
Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Homepage | chILD Foundation
We are a 501(c)3 tax-exempt organization that provides support, education, and hope for a cure to all families with children battling these life-threatening diseases. What are chILD disorders? Children’s Interstitial Lung Disease (chILD) is a group of rare pediatric lung diseases. There are more than 30 disorders included under the chILD umbrella. The mission of […]
Huntington's NSW ACT | Supporting people with Huntington's disease
Huntington's NSW ACT was established in 1975 to develop support and educational programs for people affected by Huntington's disease (HD) in New South Wales and the Australian Capital Territory. We help families understand and cope with Huntington's disease, and give families affected by HD a strong united voice. What is…
Author: Mara Milani
Huntington’s Disease Association NI providing support to individuals, families and carers living with Huntington’s disease
Huntington’s Disease Association Northern Ireland is a NI registered charity which supports people affected by Huntington’s disease. We provide information & advice to families and professionals.
Author: Platypus Consultancy Limited
Support for patients with chronic illness or rare disease
We provide social-emotional support for patients, teens, young adults, and seniors who are living with chronic illness, rare disease, long-covid, who are undiagnosed, or who are carriers of disease. Connect with patients, make a friend, get support, chronic illness coach, society for teens.
Author: Chronic Warrior Collective
The Rare Village Foundation -Resources for Rare Families
Rare Village is a non-profit foundation dedicated to providing resources for families with rare disease children.
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Zogenix - Therapeutic Solutions for Rare Diseases
Zogenix is committed to developing and commercializing transformative therapies to improve the lives of patients and their families living with rare diseases.
Genetic Support | Rare Diseases | Genetic Alliance Australia | Support for those affected directly or indirectly by genetic conditions s
Support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia. Information, support network, personal stories, news and events.
Crinetics - Developing Therapies For Rare Endocrine Diseases
Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
Children's Hour Philippines Foundation, Inc.
We are a fund raising, fund giving, and friends raising non-profit organization that supports projects on education, health & nutrition, and child welfare & development for the benefit of Filipino children in need nationwide.
Canadian MPS Society for Mucopolysaccharide & Related Diseases – We believe in a brighter future for all Canadians affected by and with MPS
Support for families. Research for a cure. Our support and education programs assist those affected in managing the diagnosis and progression of these rare, often devastating, disorders. Funds raised through donations and special events help fund research that provides hope for a brighter future for all children born with lysosomal
Author: AdminBrandtopia
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
Other sites like projectsebastian org
The RYR-1 Foundation | RYR-1-Related Diseases | United States
The mission of the RYR-1 Foundation is to: 1) Support research leading to an effective treatment or a cure for RYR-1-related diseases and 2) Provide education, outreach, and advocacy for individuals and families affected by RYR-1-related diseases.
William E. Proudford Sickle Cell Fund
Our Mission: To support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease.
The Will Herndon Fund for Juvenile Batten Disease Research
The Will Herndon Fund for Juvenile Batten Disease Research has partnered with the Beyond Batten Disease Foundation to find a cure for Juvenile Batten Disease. With your HELP, we will provide HOPE to Will and the hundreds of children like Will.
Batten Disease Support & Research Association
ABOUT US BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA
Author: Tom Evans
Support Our Kids' Education | Education Trust Fund | Singapore
The Education Trust Fund or ETF is a community-driven fund that supports the education needs of children from needy Malay/Muslim families to ensure that every child gets the resources to succeed in school.
The Isaac Foundation | Love, Laughter, and Hope
Providing support and advocacy for patients and families coping with rare diseases.
Polycystic kidney disease | PKD treatment research | PKD Foundation
PKD Foundation — We give hope. We fund research, advocate for patients, and build a community for all impacted by polycystic kidney disease. #endPKD
Home - Libellas Foundation
fundación LIBELLAS Hope propels us into the future Michel Montaigne. Contact us WELCOME TO fundación LIBELLAS ABOUT US Fundación Libellas is an international, nonprofit patient advocacy organization dedicated to improving the lives of children affected by NALCN ion channel-related diseases, through research, family support programs and education. OUR GOALS To provide support and funding for […]
Changing the game - The Nathan Project for Rare Diseases
Kids with rare diseases often fall through the cracks of healthcare systems, causing serious problems for patients, their families, and the doctors who treat them. We are developing a needs assessment tool to help doctors and researchers find and fix these gaps, transforming the lives of these families. Left: Our ambassador, Nathan Garcia […]
Children’s Liver Disease Foundation | Liver Disease Research and Support
Children’s Liver Disease Foundation. Fighting childhood liver disease by providing information, emotional support, research.
Home - Kay Yow Cancer Fund
Kay Yow Cancer Fund is a non-profit organization dedicated to supporting innovative ways of fighting ALL cancers affecting women and providing support through giving strength, courage, and hope.
Emilio Nares Foundation - Support for children battling cancer
The Emilio Nares Foundation provides free transportation to medical treatments and other free family support programs to underserved children with cancer. We help families navigate through their child’s journey with cancer. We give families the gift of HOPE. Our Impact Ride with Emilio
Author: Enf
Sebastian's Love
Sebastian’s Love’s mission is to give all families the means to provide their companion with the tools to heal with comfort. I hope this library will help many families through their journey.
Diseasemaps - World Maps of Chronic and Rare Diseases
Connect with people who share your disease and help each other. World Maps of Chronic and Rare Diseases. The main purpose of the project is to help people with chronic and rare diseases. Living with these diseases is usually hard and it is not always properly understood by society. Therefore, we want to spread awareness about all of them and help people who are nowadays suffering. Through this website, you can check how your disease is spread all over the world.
NKPF – National Kidney Patient Fund
Heal the burning hearts National Kidney Patient Fund With your support, the National Kidney Patient Fund will provide financial support to those individuals and families who have been adversely affected by Chronic Kidney Disease in the rural areas of Sri Lanka. Chronic Disease Due to the use of chemical pesticides and the incorporation of heavy […]
MND Scotland | Motor Neurone Disease
MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease (MND), as well as funding vital research into finding a cure.
Autism Tree Project Foundation | Supporting Families Affected by Autism
Autism Tree Project Foundation - 501(c)(3) organization supporting Families Affected by Autism - San Diego County - Bay Area California
Author: - Atpf Mother Linda
FOUNDATION 22STARS / support kids in Uganda to go to school!
Start giving back today! Join our family and empower families in Uganda! 22STARS focuses on Education, Local Leadership and Entrepreneurship. We are supporting 400 children and their families in Uganda! Become a longterm sponsor of a child, make a one time donation and or visit us in Uganda!
Finding a Cure for Kawasaki Disease| Kawasaki Kids Foundation
Kawasaki Kids Foundation is a non-profit dedicated to cure Kawasaki Disease. Our mission is to fund research, raise awareness, and support families.
Carion Fenn Network - Syringomyelia, Chiari Malformation, Rare & Chronic Diseases and Seniors Support.
Welcome to Carion Fenn Network. A place to share, learn & support. (Syringomyelia/Chiari Malformation/ Rare & Chronic Diseases & Seniors)
Author: Subscriber SM; CM
What else projectsebastian.org alternative websites
Catabasis
Our mission is to bring hope and life-changing therapies to patients and their families affected by rare diseases, and our primary focus is Duchenne muscular dystrophy.
TargetCancer Foundation | Funding Innovative Cancer Research
We fund innovative rare cancer research: cholangiocarcinoma, esophageal, and projects that contribute to the field of cancer research in general.
Leber Congenital Amaurosis Non-Profit | Hope in Focus
Hope in Focus is a non-profit organization dedicated to providing information and support to those affected by LCA and other rare inherited retinal diseases.
Author: Sofia Sees Hope
Proteus Syndrome Foundation - Support and Education
The Proteus Syndrome Foundation's goals are Supporting / Educating Families of individuals living with Proteus Syndrome, public education, research funding
Counseling/Therapy in Marietta, East Cobb, Kennesaw, Roswell, Georgia
Providing child therapy, play therapy, parenting support, parent training, adolescent and teen therapy, family therapy, premarital counseling, marriage therapy, divorce counseling, stress management
MPS Society | Support for MPS, Fabry and related diseases in the United Kingdom
The Society for Mucopolysaccharide Diseases (MPS Society) provides professional support to individuals and families affected by MPS, Fabry and related lysosomal storage diseases. Contact our helpline Monday-Friday 9-5pm on 0345 389 9901 or email us at advocacy@mpssociety.org.uk
Rare Renal | The UK Kidney Association
It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested
Mito Foundation - Hope for mitochondrial disease
The Mito Foundation drives mitochondrial disease research to find a cure. It also provides support to patients and their families until such time as a cure is found.
Cycle Pharmaceuticals – Treatments for rare disease patients
WHAT WE DO Cycle Pharmaceuticals is a global, privately-owned and patient-dedicated biotechnology company headquartered in Cambridge in the UK. Our mission is to utilise the latest pharmaceutical technologies to deliver superior **** treatments to better serve rare genetic disease patients. In addition, we provide individualised patient support services to
Author: Web Admin
The Michelle Lynn Holsey Foundation | Supporting the quest to battle cancer
The Michelle Lynn Holsey Foundation support men, women, and children in their quest to battle cancer and other debilitating diseases: while funding innovative research and supporting education.
Author: Michelle Lynn Holsey Foundation
Rule Foundation – Funding LGBTI projects since 1995
ADVANCING THE HEALTH, WELLBEING AND VISIBILITY OF LGBTI KIWIS The Rule Foundation seeks to advance the health, wellbeing and visibility of lesbian, ****, bisexual, transgender and intersex (LGBTI) New Zealanders. We administer Funds that provide grants for activities that support LGBTI people, and for education and research on
Author: Duncan
It's time to talk about mito - The Lily Foundation
The Lily Foundation is a UK charity dedicated to fighting mitochondrial disease. We work in partnership with the NHS and leading mitochondrial clinics to support those affected by the condition, raise awareness, and fund research into effective treatments and therapies. Our long-term goal is to find a cure for mitochondrial disease.
Child Behavioral Therapy Clinic | Sunshine Child Counseling
Sunshine Child Counseling is one of the leading child & family counseling clinic in Alpharetta, GA. We Provides top quality child couseling, teen counseling & Family Therapy. Get Appointment 📞 678-740-3990
Author: Sun Shine Child Counseling
Grief and Loss Support | The Grief Centre
At the Grief Centre, we provide support, advice & counselling to help those affected by grief and loss.
Citta Foundation
Citta Foundation is an NGO in India. Our main aim is to provide education for underprivileged children, girl child, and give support for poor children's health. Donate for education to support poor children.
Tyrosinemia Type 1: information, fundraising and research
The Tyrosinemia Foundation raises funds for research into the rare metabolic disease Tyrosinemia Type 1. We provide information about the disease and give insights in available researches.
Author: Admin
Be Heard Therapy & Supports | Eltham Victoria
Be Heard Therapy & Supports offers a range of both face-to-face and non face-to-face services and products to support children and their families! At Be Heard Therapy & Supports we think is is important to be there for the child and their families to build a supportive, safe and positive en
Wake Up Narcolepsy | Raising Awareness. Funding Research. Creating Support.
WUN is a not for profit organization that brings insight, support and hope to families affected by narcolepsy via awareness and a community of support.
Sligo Cancer Support Centre | support Leitrim | counselling Roscommon
Sligo Cancer Support Centre support, counselling, holistic therapies and workshops in Sligo, Leitrim and Roscommon - a place of peace & hope for people with cancer & their families
International FOXG1 Foundation
The International FOXG1 Foundation’s Mission is to provide hope and support to individuals with FOXG1 and their families via any means possible, to facilitate discussion and fund research within the medical community, and to bring awareness and education to the public. Our goal is to find treatments and a cure for FOXG1. We hope this Foundation will provide support and inspiration to the many families who have been blessed with a FOXG1 miracle.
Other websites similar as projectsebastian.org
Circulation Foundation UK
As a UK charity, we fund and promote research into the causes, prevention and treatment of vascular disease, providing information to sufferers and families
Children's Fund | San Bernardino County, CA | www.childrensfund.org
The mission of Children's Fund is giving our vulnerable children Support, Opportunity, and Hope by breaking destructive cycles through community partnerships. We invite you to join us in creating a bright future for every child.
Home | adfa Asbestos Diseases Foundation of Australia
Welcome to adfa The Asbestos Diseases Foundation of Australia (adfa) is a not-for profit organisation working to provide support to people living with asbestos related diseases, family members, carers and friends. adfa is a community based group founded by Trade Unions, victims, families of victims, and concerned citizens to meet the
Author: Avaldeadmin
For the Love of Africa Society - A charity supporting projects in Tanzania
For the Love of Africa is a registered charity in Canada. We manage projects in Tanzania supporting education, families, sustainability, and women & girls.
Psychoeducational Assessments & Child Psychology Toronto
We provide psychoeducational and psychological assessments, gifted testing, and child therapy & family counselling in Toronto, Ontario.
Adoption Support WA | ARMS
Association Representing Mothers Separated from children by adoption. We provide emotional support and counselling services to all parties affected by adoption.
Gould Syndrome - COL4A1 - COL4A2 genes - Gould Syndrome Foundation
Gould Syndrome Foundation a 501(c)3 Nonprofit, exists to provide hope and help to children and adults with the Ultra Rare Disease, Gould Syndrome; affecting COL4A1 and COL4A2 genes.
Author: Jselser
Support Sight Foundation
Hope fills the heart. Hope is in the research. Losing your eyesight is frightening. Empowering patients, caregivers, and families to learn all they can about AMD - the disease. This is what we do ALL day EVERY day. Knowing more about the research behind the disease creates hope and optimism. Three simple words - Research Makes
Author: Supportsightadmin
The Russ Devereux Headlight Project
Founded in memory of Russ Devereux, the Headlight Project is working with children in schools to deliver emotional resilience programmes, as well as one-to-one counselling. The Headlight Project has a particular focus in supporting individuals and families who have been affected by suicide.
Australia's Leading Lung Health Charity | Lung Foundation Australia
Lung Foundation Australia funds life-changing research and delivers support services that give hope to people living with lung disease or lung cancer.
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Геріатричний Пансіонат | Pansionat-la-vita | L'vivs'ka oblast
Пансіонат для літніх людей "La Vita" З нами Ваші рідні будуть у безпеці. Львівська область, Львів - Муроване, вул. Вокзальна, 17. tel.+38 (097) 95-44-127
natur'accueil | naturemy | naturopathie Soustons | magnétisme Soustons
naturemy Réapprenez les lois de la vie pour relancer votre autoguérison : SOYEZ ACTEUR DE VOTRE VIE ! La naturopathie est un ensemble de pratiques douces reconnues et complémentaire à la médecine conventionnelle. En tant qu'hygiéniste-naturopathe, je prends soin de tous les aspects de l'être humain.
Resonance Together | Esther & William Diplock | Brisbane Counselling
Brisbane Psychotherapy, Supervision and Training specialists Esther & William Diplock unite for ResonanceTogether - Relationship & Couples counselling, Professional Supervision for Counsellors, Chaplains & Human Service Workers, Creative Block Counselling, Leadership & Spiritual Direction.
Orthodontics | Periodontics | Sonrisas Dental
Sonrisas Dental Center is an othodontics and Periodontics Clinic, where we want to provide the best experience make you feel like you are part of our family.
Catering | KüchenKönige | Dieburg
www.catering-regional.de Catering Partyservice Hochzeit Schulessen Events Menü Buffet KüchenKönige
Escritório | Mayra Motta Advogados | São Paulo
Mayra Motta Advogados é um escritório jurídico especializado em inovações, sustentabilidade e saúde.
GEDOK Wiesbaden Mainz
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www.s-care.at Ausbildung zum Demenz-Aktivierungscoach / Steiermark
s-care-Seminar zur praxisgerechten Ausbildung zum Demenz-Aktivierungscoach zur Betreuung von älteren Menschen in der Steiermark für alle, die in der Betreuung und Pflege älterer Personen tätig sein wollen. Themen: alterstypische Erkrankungen, Kommunikation, Psychohygiene, Selbstfürsorge, Computer.
Recycling | Palletmen | Gauteng
Palletmen are stockists of a variety of pallets for a multitude of applications. Our focus is to provide quality pallets at affordable prices and maintaining a negative carbon foot-print. To achieve this we source material that is either unused or its primary use has been forgone.
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Le yoga pour tous les corps | Smiling Yoga
Smiling Yoga, ce sont des cours de yoga pour toutes et tous, dans la bonne humeur, avec bienveillance et adaptés à votre niveau de pratique.
TEATRO | EVENTOS | CIA CAMBAIO PRODUÇÕES ARTÍSTICAS
Teatro infantil de qualidade, com muita cultura e diversão. Cia Cambaio Produções Artísticas
Happy Valley | Business School | coiMBAtore | Best
Best Business School in Coimbatore for 2 years MBA course which is better than study in abroad programme. Top ranked standalone business school approved by Anna University, Chennai and affiliated to AICTE. Good Palcement records. Teachers with PhD, Hostel, Gym, International Visit, tie - up, ED Cell, Incubation etc.
Profesionálny svadobný DJ a moderátor | Slovakia | DJ ANDRESS
Profesionálny DJ a moderátor na svadbu a event! Moderujem svadobný program a svadobné hry. Špeciálne efekty a Fotobox na svadbu.
Feel the Fear and Do It Anyway New England
During 32 years of caregiving for a chronically-ill child, Shirley Riga sought tools to help her walk through her fears. Feel the fear and do it anyway is one.
Multimedia Content | ceebeo media
ceebeo media kann Dich mit unterschiedlichen Aufgaben im Backoffice sowie mit der Erstellung von Multimedia Content für Dein Online Marketing, Social Media und Internetauftritt effizient und zielgerichtet unterstützen, damit Du Dich noch besser auf Dein Kerngeschäft konzentrieren kannst.
Financial Freedom | Bible| Compass - finances God's way - Europe
Exploring what the Bible says about Financial Freedom - managing money, possessions and growing in genereosity. Compass- finances God's way. www.compass1.eu
AllegraMask | By Erboristeria Cyprus
Do not hide your smile behind a mask . Be your self and show your happiness and expresion with AllegraMask . Choose your AllegraMask and be safe and social ! AllegraMask By Erboristeria .
SimpleVista - La Presencia Que Necesitas En Google
En SimpleVista te ayudamos a aparecer en Google para que tus clientes te encuentren a simple vista. Resultados en una semana ¡Llámanos!
Integral Life | Stress & Pain Relief Reiki-me
Master your Happiness, Strength, & Health
iTech - Tecnologia
Deixe que cuidamos de sua T.I enquanto vc ganha tempo para sua empresa. Quanto custa seu tempo?
Consultoria em Sustentabilidade | EcoValor | Rio Grande do Sul
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Plant Trees In Switzerland | Almighty Tree
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Psychic Medium Annie Macdonald | Reiki Therapist & Teacher | Utah
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INICIO | /Servisitemedical/ Salud/ Comercialización/España/Madrid
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