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Prader-Willi Syndrome News Home - Prader-Willi Syndrome News
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Author: Theme Templates
ContextVision – Pioneering the frontiers of image analysis
ContextVision is a medical technology company specializing in image analysis, image enhancement and artificial intelligence.
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Fitness Geared is dedicated to the discussion on bodybuilding and fitness by using nutrition and supplements to meet your bodybuilding and fitness goals.
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we care about rare disease patients | Sobi North America
Sobi is dedicated to developing and delivering innovative therapies to improve the lives of rare disease patients.
Advancing Science for Life - US
Learn how Boston Scientific is dedicated to transforming lives through innovative medical solutions that improve the health of patients around the world.
Eurordis.org
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 970 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
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Sanford Research is dedicated to finding cures, eradicating disease and improving the lives of people around the world through scientific breakthroughs.
Welcome to Eton Pharmaceuticals
Eton is an innovative pharmaceutical company that searches the world over for meaningful therapies that we can bring to patients living with rare diseases.
Focus Vitamins
Focus Vitamins is a physician-founded and led nutraceutical company dedicated to utilizing scientific breakthroughs around nutrition to improve the lives of patients with ocular disease.
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CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
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Zogenix is committed to developing and commercializing transformative therapies to improve the lives of patients and their families living with rare diseases.
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.
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Optovue pushes the frontiers of OCT innovation and ophthalmic medical diagnostic imaging to improve the lives of patients around the world.
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NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.
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Rare Diseases Rare but not alone Mission Accelerate rare disease diagnosis There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients do not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. Our program brings together world experts to improve … Homepage Ipsen Read More »
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Swiss pharmaceutical company dedicated to improving patient lives through innovative technologies for the prevention of Lyme Disease.
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Rallybio
Despite science’s best efforts, rare diseases remain far too common. It’s time to tackle the undone, the too difficult, and the inaccessible, and change the odds for patients living with rare disease.
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Catalyst: A Biopharmaceutical Company Focused on Rare Diseases
Our company is committed to developing novel, safe, and efficacious therapies to improve the lives of people with rare diseases.
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Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
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Oncopeptides is a rapidly growing biotech company focused on the development of targeted therapies for difficult-to-treat hematological diseases. The company is science driven and committed to bringing innovation to patients with an unmet medical need and improving patient lives.
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BioMarin Pharmacuetical Inc. | Europe, Middle East, and Africa (EMEA)
BioMarin is a world leader in developing and commercializing innovative biopharmaceuticals for rare diseases driven by genetic causes.
BioMarin Pharmaceutical Inc.
BioMarin is a world leader in developing and commercializing innovative biopharmaceuticals for rare diseases driven by genetic causes.
Orfit Industries - Leader in thermoplastic innovations
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CLAC Foundation
Improving lives at home and around the world.
Forma Therapeutics
Forma Therapeutics is a clinical-stage biopharmaceutical company focused on therapeutics to transform the lives of patients with rare hematologic diseases and cancers.
LivaNova
LivaNova is a global medical technology company built on nearly five decades of experience and a relentless commitment to improve the lives of patients around the world.
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Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
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CSL Behring | Rare Disease Biotech Company
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Cogent | Precision therapies for genetically defined diseases
Cogent Biosciences is rationally designing precision therapies that treat the underlying cause of disease to improve patients’ lives.
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La Jolla Pharmaceutical Company is dedicated to the development and commercialization of innovative therapies that improve outcomes in patients suffering from life-threatening diseases
Pharmacy for Renal & Kidney Disease | FreseniusRx
FreseniusRx is a pharmacy focused on renal disease that collaborates, innovates and educates to drive improved clinical outcomes for patients with ESRD.
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
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Front Page - BensFriends.org
Safe and Supportive Communities for Rare Disease Patients Donate Today
The Isaac Foundation | Love, Laughter, and Hope
Providing support and advocacy for patients and families coping with rare diseases.
VectivBio | Transforming Lives
Life-Transforming Medicines for Patients Living with Severe Rare Diseases We are a global, clinical-stage biotechnology company focused on the discovery, development and commercialization of innovative treatments for severe rare conditions with high unmet medical need. Learn More About Us Our Focus We use a patient-centric approach to identify and develop transformative medicines for the treatment […]
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
Medical Device Manufacturing Company | RBC Innovations
RBC Medical Innovations is passionate about improving patients’ lives through designing and manufacturing innovative medical devices.
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American Lung Association
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HOME - IAPHS - Interdisciplinary Association for Population Health Science
IAPHS fosters scientific innovation and discovery to improve the health of populations and reduce health disparities throughout the world.
Author: Monica Gutierrez
Insmed | Powered by Purpose
Insmed is a global biopharmaceutical company on a mission to transform the lives of patients with serious and rare diseases. We are powered by purpose, with an active promise to join your fight.
3billion | Genetic test for rare disease patients
Patients with rare genetic disease undergo long odyssey to receive a diagnosis. Visit 3billion and find how to order our rare disease genetic testing.
Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
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Miles For Migraine - Finding a Cure for Migraine Begins with You
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Secure multidisciplinary collaboration and knowledge sharing on rare diseases. For Healthcare Professionals and patients within Cyprus and abroad, large repository of medical centres in Europe and other countries with verified expertise in rare disease groups and rare diseases, Patient life stories, Continuous Medical Education via webinars and automated newsfeeds from key medical databases to stay up to date with important developments and clinical trials in rare diseases.
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The COPD Foundation was established to improve the lives of people with COPD, bronchiectasis, and nontuberculous mycobacterial (NTM) lung disease through initiatives that expand services and speed innovations which will make treatment more effective and affordable. We do this through scientific research, education, advocacy, and awareness with the goal of disease prevention and progression, and ultimately a cure.
Diseasemaps - World Maps of Chronic and Rare Diseases
Connect with people who share your disease and help each other. World Maps of Chronic and Rare Diseases. The main purpose of the project is to help people with chronic and rare diseases. Living with these diseases is usually hard and it is not always properly understood by society. Therefore, we want to spread awareness about all of them and help people who are nowadays suffering. Through this website, you can check how your disease is spread all over the world.
Todd Berner | Patient Advocacy
Todd Berner is a healthcare professional with a passion for patient advocacy, particularly when it comes to patient populations with rare diseases.
Author: Former Co-Chair
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Scientific research and field practical knowledge collected from all around the world about wine deseases such as flavescence dorée and grape trunk diseases
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M4RD provides education in the Rare Disease field for medical students and doctors in training. Our ultimate aim is to improve the patient-doctor relationship and speed up the journey to diagnosis.
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Celdara Medical gives hope and health to patients by transforming academic innovations into medicines that cure the world’s most challenging diseases.
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