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Welcome to Ipsen US
We are a global biopharmaceutical leader dedicated to improving lives through innovative medicines in oncology, neuroscience, and rare diseases.
3billion | Genetic test for rare disease patients
Patients with rare genetic disease undergo long odyssey to receive a diagnosis. Visit 3billion and find how to order our rare disease genetic testing.
Dx29
Extraction and curing of HPO symptoms from text and documents. AI that helps the diagnosis of rare diseases. Totally free for doctors and patients.
Eurordis.org
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 970 rare diseases patient organisations in 74 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
Welcome to Ipsen Global Medical Information (GMI)
Ipsen is a leading biopharmaceutical group dedicated to improving lives through innovative medicines in oncology, neuroscience and rare diseases.
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Home | Protect ERNs
What are European Reference Networks? European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe. They allow knowledge and expertise about rare diseases to be shared across Europe; providing patients with access to diagnosis and transformative care, without the burden of long-distance travel. ERNs enable researchers to engage rare disease patients across
Author: Zz
M4RD Home - M4RD
M4RD provides education in the Rare Disease field for medical students and doctors in training. Our ultimate aim is to improve the patient-doctor relationship and speed up the journey to diagnosis.
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
PTC Therapeutics
A Science-Led, Patient-Centric Approach to Treating Rare Diseases
Front Page - BensFriends.org
Safe and Supportive Communities for Rare Disease Patients Donate Today
The Isaac Foundation | Love, Laughter, and Hope
Providing support and advocacy for patients and families coping with rare diseases.
Alzheimer's Disease Health Info & Community
Learn about Alzheimer's disease including symptoms, diagnosis, treatment, patient stories, & more.
Author: Kerri MacKay
RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
Author: Drawesome
Saniona
Improving the lives of rare disease patients around the world through scientific innovation.
Other sites like fondation-ipsen org
AVISE - Advanced Testing For Lupus and Autoimmune Disease
AVISE supports rheumatologists and patients through diagnosis, prognosis and management of lupus and complex autoimmune diseases.
Immunovia - Advancing early detection of pancreatic cancer
Focused on revolutionizing blood-based diagnosis and improving survival rates for the patients with complex diseases.
RARE-e-CONNECT - RARE-e-CONNECT
Secure multidisciplinary collaboration and knowledge sharing on rare diseases. For Healthcare Professionals and patients within Cyprus and abroad, large repository of medical centres in Europe and other countries with verified expertise in rare disease groups and rare diseases, Patient life stories, Continuous Medical Education via webinars and automated newsfeeds from key medical databases to stay up to date with important developments and clinical trials in rare diseases.
Author: Super User
Todd Berner | Patient Advocacy
Todd Berner is a healthcare professional with a passion for patient advocacy, particularly when it comes to patient populations with rare diseases.
Author: Former Co-Chair
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Rallybio
Despite science’s best efforts, rare diseases remain far too common. It’s time to tackle the undone, the too difficult, and the inaccessible, and change the odds for patients living with rare disease.
Crinetics - Developing Therapies For Rare Endocrine Diseases
Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.
EUROCAT | EU RD Platform
Providing a central access point for information on rare disease patients’ registries to all stakeholders
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
FutureNeuro: SFI Research Centre for Neurological Diseases
FutureNeuro is an SFI Research Centre to develop new technologies and solutions for the treatment, diagnosis, and monitoring of chronic and rare neurological diseases.
Infectious diseases specialists | Infectious Diseases Associates
Infectious Diseases Associates in Sarasota, FL offers first-rate diagnosis and treatment of infectious diseases. Visit our location or log into the patient portal.
Rare Renal | The UK Kidney Association
It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested
Qynapse - Quantitative imaging and beyond
Qynapse unlocks the potential of quantitative imaging and AI to optimize diagnosis, prognosis and longitudinal monitoring of patients with neurological diseases.
Author: Ysalledechou
we care about rare disease patients | Sobi North America
Sobi is dedicated to developing and delivering innovative therapies to improve the lives of rare disease patients.
AllStripes - Be part of the solution for your rare disease
We empower patients and communities to change the way that **** development happens in rare disease.
Healx | Discovering new treatments for rare disease patients
We're an AI-powered, patient-inspired biotech, and we're breaking new ground in the discovery of new treatments for rare disease patients.
Home - aHUS Alliance Action
A global aHUS patient organisation connecting, informing and collaborating to provide awareness, help, understanding and support for aHUS patient advocacy everywhere. The aHUS Diagnosis Survey Project View The aHUS Alliance Action Newsletter Subscribe aHUS Awareness Day & Rare Disease Day Learn More Articles: News & Views Learn More aHUS Diagnosis Process-First Report The first report […]
Illinois Vein Specialists - A Center of Excellence in Treating Vein Disease
Illinois Vein Specialists focuses on the diagnosis and treatment of varicose and spider vein disease - successfully treating over 10,000 patients.
Author: Illinois Vein Specialists
Parkinson's Disease Health Information & Community
Find out about Parkinson's disease including symptoms, diagnosis, treatment, patient stories, support, and more from a Parkinson's community perspective.
Author: Suzanne Troy
Green Square Dermatology - Medical, Surgical & Cosmetic
Our Sydney dermatologists specialise in the diagnosis and treatment of skin diseases and skin cancers for patients of all ages, from babies to adults.
Author: Green Square Dermatology
What else fondation-ipsen.org alternative websites
Vietnam Medical Equipment and Device Distributor | Import Export
PrimeMed JSC is specialized in providing materials, equipment and devices for disease diagnosis and treatment; medical and patient education and training.
| Share4Rare
Share4Rare (S4R) is a collective online platform with the ambition to make a difference for rare disease patients and their families.
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
Neurogenetic Answers | MNG
Your partner in the diagnosis of inherited disease. MNG utilizes complex and innovative methods to deliver results that drive patient-centered decisions.
Home
PILOT is a global initiative designed to provide comprehensive continuing medical education supporting the diagnosis and management of patients with pulmonary disease.
417 Rhuematology | Cutting-Edge Treatment Of Rheumatic Diseases
We Aim To Provide Accurate Diagnosis Combined With Cutting-Edge Treatment Of Rheumatic Diseases In An Independent, Patient-Centered Environment.
Sickle Cell Disease Health Info & Community
Learn about sickle cell disease including symptoms, diagnosis, treatment, patient stories, & more from a sickle cell community perspective.
Author: Halimat Olaniyan
IBD Health Info & Community
Find out about inflammatory bowel disease including symptoms, diagnosis, treatment, patient stories, support, and more from an IBD community perspective.
Author: Eshani Surya
Digestive Health Consultants, Inc. | GI Doctors Burbank CA | Gastroenterologists Burbank CA | Colonoscopy | Upper GI Endoscopy | Valencia, V
We are experts in the diagnosis and treatment of diseases of the gastrointestinal system for patients throughout the greater Valencia, Valley Village, and Burbank, California communities.
Home - X4 Pharmaceuticals, Inc.
By targeting the CXCR4 pathway, we aim to restore healthy immunity in patients with a broad range of rare diseases.
Pharmaceutical Company: Medicine Research & Development | Santhera Pharmaceuticals Switzerland
Pharmaceutical company in Switzerland committed to research & development of medicines for patients living with mitochondrial disorders & rare diseases.
Author: X-Ray AG; Switzerland
The French Muscular Dystrophy Association (AFM-Téléthon)
AFM-Téléthon is an association composed of patients and their families who are affected by a genetic, rare, progressive and severely disabling disease
swii.ch health | Rare Disease Patient Engagement Agency
Focused on rare diseases and specialty markets, we are a patient engagement agency serving pharmaceutical and biotech clients.
Zogenix - Therapeutic Solutions for Rare Diseases
Zogenix is committed to developing and commercializing transformative therapies to improve the lives of patients and their families living with rare diseases.
QOL Medical: Changing Lives
QOL Medical is a specialty biopharmaceutical company dedicated to improving the quality of life for patients with rare diseases. Learn more here.
ERN-RITA: European Reference Network for Immunodeficiency, Autoinflammatory, Autimmune and Paediatric Rheumatic diseases
RITA brings together leading European centres with expertise in diagnosis and treatment of rare immunological disorders Primary immunodeficiency (PID), Autoinflammatory disorders, (AID) Autoimmune disease (AI) and Paediatric Rheumatic diseases (PR)
Welcome to HeartSite.com
Using multimedia, HeartSite.com was designed to educate patients and their family members about the diagnosis and treatment of heart disease. On-line lecturesare also provided
Author: Dr Abdulla M Abdulla
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Arthritis and Rheumatology Center, PC
Arthritis & Rheumatology Center provides diagnosis and treatment of various rheumatologic diseases for patients in the communities of Roswell, ****, Johns Creek, and Woodstock.
Author: Medical Management Associates; Inc
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
HOME - Wetherall Group, LTD.
Elmiron lawsuits for patients taking Elmiron who have developed a rare but serious eye disease called retinal pigmentary maculopathy
Author: Designbymilen Com
Harmony Biosciences | Patients Are At The Heart Of Everything We Do
Harmony Biosciences is dedicated to developing & commercializing innovative therapies and novel medications for patients living with rare neurological diseases.
Rare2Aware – Bringing hope to people with rare diseases
Rare2Aware is a place to learn about rare diseases and bring together patients, their family, caregivers, healthcare professional and advocates
Neurogene | Developing life-changing Genetic Medicines
Neurogene is focused on developing life-changing genetic medicines for patients & families affected by rare, devastating neurological diseases.
Are you living with a rare disease? | Honeycomb Health
Honeycomb empower patients suffering from rare diseases by providing them with the ability to securely store, access, and share their health information all in one.
Medihub | Clinical Nutrition Products |
MEDIHUB clinical nutrition products for patients with rare and common diseases, to support patients in all stages of life, from childhood to adulthood, in order to achieve and sustain their quality of life.
Department of Dermatology and Allergology – UMC Utrecht
Patient Care Our goal is to deliver the highest quality of care to patients with skin disorders. This entails the application of the newest advances in the diagnosis and treatment of skin diseases. Research Our goal is to advance the frontiers of knowledge concerning the mechanisms and treatment of skin diseases, to apply the most ... Read more
Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
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PCC Prodex - Strona spółki PCC Prodex
Welcome to the World of Polyurethanes! we are one of the largest manufacturers of polyurethane systems in Poland and Europe Learn more about us Spray Foam Insulation Spray foam insulation systems (PUR) are currently one of the leading products used for thermal insulation. Unprecedented airtightness, superior longevity of parameters and excellent insulation properties are just … Home Read More »
Muslim Doctors Association (MDA) | Building Healthier Lives
Our team of doctors, dentists and allied health professionals work within local communities to empower and support individuals to lead healthier lives.
Author: MDA @Muslimdoctors
Harvest Coatings | Outstanding Expertise in Finishing Products
We offer a wide range of Paints, Coatings and related Products for Wood Working and Furniture Industries, Building and Construction Professionals, Manufacturing Industries, Interior Designers and Retail Networks for DIY Consumers; supported by a great Technical Team who work with you every step of the way to ensure you get the Perfect Coatings and Finishing System.
Home – The Ottawa Women's Canadian Club
The Ottawa Women’s Canadian Club presents current issues and celebrates Canadian history and culture. Become a Member © G. Baranski 2009 Heritage Our mission is to foster an interest in all matters of public concern to strengthen Canadian unity and to preserve & promote Canadian heritage and history. Education A belief in the role higher … Home Read More »
B-Training, Consulting
Home » Taunus-Schnauzen
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Home - Nutrenics Biostimulant
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Albert Cruells - Hacia una visión holística - Terapia Transpersonal
Es en este instante, en este preciso momento es donde transcurre tu vida, aquí se presenta el juego de la vida, la vida no puede vivirse en el pasado ni en el futuro, la vida no es algo que te ocurre externo a ti, tu eres la vida!!!. Y desde esa comprensión es importante caminar hacia una visión holística de todo tu mundo personal.
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Harvest Moon Food Co-op – Where Goodness Gathers
Where Goodness Gathers
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Vitaliano, cravatte in seta. Tutto il pregio dell'artigianato italiano, dal 1947. Sfoglia la collezione di cravatte in pura seta.
Homepage - Lautan Luas
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Dairy Arts Center – Boulders Center for Creativity since 1991
Made of Genes | Estudios moleculares, test de ADN y analítica de sangre
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BLIMBLIM&3D ‣ Servicio profesional de impresión 3D en Canarias
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Inicio - UNIPROMEL
Unipromel es la Unión Profesional de Médicos de Ejercicio Libre. Esta asociación tiene los objetivos de unión, promoción y defensa de nuestro colectivo.
Industrial IoT Solutions for Smart Private Networks - Council Rock
Council Rock enables Industrial IoT and offers a full suite of communication solutions for critical infrastructure.
Szpilki po godzinach - Szpilki po godzinach
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Malatirari.it - La Smart City delle persone con malattia rara
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Mississauga Mortgage Broker For Your Best Mortgage Options
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Medicare ABC | Get Medicare Insurance Agents
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