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No family to face CDH alone | CDH Australia
We support Australian families affected by the rare birth condition Congenital Diaphragmatic Hernia (CDH). Let's conquer CDH together.
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Rare diseases affect 6% to 8% of the world population and approximately 500,000 people in Switzerland. The majority of these conditions affect children and in three out of four cases have a fatal outcome. The quest for specific drugs is a priority, especially as the effectiveness of certain rare ...
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Williams syndrome (WS) is a genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. It affects 1 in 10,000 people worldwide and occurs equally in both males and females and in every culture.
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Inherited metabolic disorders, also referred to as inborn errors of metabolism (IEM), are a group of congenital disorders caused by mutation in genomic or mitochondrial DNA. IEM are mostly rare disorders with incidence ranging from 1/50,000-1/150,000), however in total IEM may affect even 1/1000 peo …
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CCD Smiles Improving the lives of people with cleidocranial dysplasia through awareness, connections, support, education and research. What is CCD? Cleidocranial Dysplasia (CCD) is a rare condition that primarily affects the development of bones and teeth. Learn More Make Connections Find others with CCD in your state, follow us on Facebook and Instagram, and join […]
Noonan Syndrome Awareness Association
Help us raise to rise! Join us in raising funds so we can all help more people rise above the challenges of living with Noonan Syndrome Donate What is Noonan Syndrome? Noonan syndrome (NS) is a genetic condition that affects many areas of the body that occurs in between 1 in 1000 to 1 in…
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This website is a collection of short Q&As with leaders across a wide range of disciplines. Whether you are a leader in your class, your work, your team, a leader of 1 or a leader of 10,000 people, we hope you will learn something from the leaders we’ve questioned.
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Nakladatelství Universe Press od roku 2017 vydává knihy Kdo mi vypnul mozek, Zapněte si mozek, Kdo Ti vypnul mozek? od Dr. Caroline Leaf. Ocitáte se ve svém životě v začarovaném kruhu situací, které se vám neustále vrací? Chcete prolomit stres? Zveme vás do RESTARTU 21. Více na našich stránkách.
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Librería online de libros infantiles en inglés, cuentos para niñas y niños, literatura para adolescentes, juegos y recursos educativos. Boops es una librería especializada en inglés donde todo está enfocado al aprendizaje y la lectura.
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Poet | Jericho Brown
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Marie Bretagnolle
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Writer Artist | Michelle Peat Mediator Writer Artist | New Zealand
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Official website of neuroscientist and New York Times bestselling author, Lisa Genova
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A ProPhotos é uma empresa especializada em fotografia de casamentos. A dupla formada pelos sócios e amigos, Leonardo e Marcel...
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CARLL Band
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Marie Anders - Autorin/Author
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