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The Rare Village Foundation -Resources for Rare Families
Rare Village is a non-profit foundation dedicated to providing resources for families with rare disease children.
Niemann Pick C | Australian Niemann-Pick Type C Disease Foundation
Australian Niemann-Pick Type C Disease Foundation is a not for profit organization that is trying to raise awareness and funds for research into a cure.
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
NRBDO - Home
The NRBDO is a pan Canadian coalition of not-for-profit organizations representing people with rare blood disorders and/or people with a chronic condition who are recipients of blood or blood...
Hereditary Disease Foundation
The Hereditary Disease Foundation is a non-profit research foundation which funds innovative genetic research towards curing Huntington's disease and other brain disorders. Since it's formation in 1968, the foundation has been responsible for several prolific scientific breakthroughs in brain diseas
Finding a Cure for Kawasaki Disease| Kawasaki Kids Foundation
Kawasaki Kids Foundation is a non-profit dedicated to cure Kawasaki Disease. Our mission is to fund research, raise awareness, and support families.
Liver Foundation | Liver Health | Liver Disease | Australia
The Liver Foundation is the peak not-for-profit community organisation in Australia for people affected by, or at risk of liver disease. The Liver Foundation's mission is to raise awareness and fund critical research into the prevention, detection and diagnosis, treatment, and cure of liver disease.
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Rare Trait Hope Society - Aspartylglycosaminuria - AGU
AGU (Aspartylglycosaminuria) cure treatment gene therapy. Fund raiser. Rare disease.
Bay Area Lyme Foundation
At Bay Area Lyme Foundation, our focus is on making Lyme disease easy to diagnose and simple to cure. Join us in finding a cure to Lyme disease today.
Author: Neil Spector; MD Scientific Advisory Board Member
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
Team Sanfillipo — Parents united to find a cure or treatments
Cure Sanfilippo, Gene therapy, Get help for Sanfilippo, MPS, MPS III, Rare diseases, lysosomal disease, and Fundraising
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
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Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Gray Foundation to Cure Batten Disease | Improving the lives of children and families affected by Batten
The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease was founded to save the lives of all children impacted by Batten Disease by accelerating the research for a cure and providing support to patients and their families.
Mito Foundation - Hope for mitochondrial disease
The Mito Foundation drives mitochondrial disease research to find a cure. It also provides support to patients and their families until such time as a cure is found.
Brevard Alzheimer's Foundation - Home
25th YEAR ANNIVERSARY Alzheimer's Disease does not have a CURE. Alzheimer's Disease cannot be PREVENTED. But we support the HELP that so many NEED. Alzheimer's does not have to be depression, loneliness and isolation. The Brevard Alzheimer's Foundation has a
Author: Admin
MHE Research Foundation~Multiple Hereditary Exostoses~Multiple Osteochondroma
MHE Research Foundation 501(c)(3) organization dedicated to finding a cure for this rare bone disease. Providing comprehensive information on Research, Orthopaedics, Genetics, Chronic Pain, Conferences and Doctor Directories to help locate medical care.
Home - Australian Alzheimer's Research FoundationAustralian Alzheimer's Research Foundation
The Australian Alzheimer’s Research Foundation is a not-for-profit organisation supporting medical research into Alzheimer’s disease.
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Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
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NOFSA - National Osteoporosis Foundation of South Africa. Osteoporosis is a lifestyle disease and prevention is the best cure.
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The Cure Alliance is a non-profit group of top scientists, researchers, doctors and individuals whose mission is to develop cures for chronic and fatal diseases.
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Cure ADOA Foundation De Cure ADOA Foundation is opgericht in 2018 door en voor patiënten met autosomaal dominante opticusatrofie (ADOA) en de plus variant. Wij zijn een non-profit organisatie met ANBI status. die is aangesloten bij de Vereniging Samenwerkende Ouder- en Patiëntenorganisaties (VSOP). Naast het algemene bestuur heeft de
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Active Life Chiropractic is proud to have helped raise over 60,000.00 for CF research. Each year, more than 125,000 people participate in hundreds of walks across the country to support the Foundation’s mission to cure cystic fibrosis and raise awareness for this rare, genetic, life-shortening disease that makes it difficult to breathe.
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Be the Cure - The Stem Cell Registry - Stem Cells from adult donors to help Indians with blood cancers, Thalassemia and Immune deficiency diseases.
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Parkinson's Foundation | Better Lives. Together.
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Parkinson's Foundation | Better Lives. Together.
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure.
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The Genesis Foundation for Children diagnoses, treats and provide coordinated care for children with rare diseases and genetic disorders.
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Living with a rare disease can be difficult when there is no cure… but there are ways to optimize your health to live your best life yet! Find out how.
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Chocolate Barmeans awesome to the 6 year old author whose goal is to raise money to cure his friend’s rare disease.
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HHT disease is a genetic blood vessel disorder that affects 1 in 5,000 people - 90% of whom are undiagnosed. Our mission is to find a cure for HHT.
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CURED - Home
CURED is a not-for-profit corporation that donates substantial funds to aid in research for eosinophilic diseases. We advocate on behalf of EGID patients and their families by raising awareness about this complex group of diseases. To learn additional information, send us a message.
Rare Cancer Research Foundation - RCRF
The Rare Cancer Research Foundation is dedicated to shortening the time to cure cancer through innovative collaborations and patient engagement in research.
Give today to change lives.
The Kidney Foundation of Canada is committed to achieving excellent kidney health, optimal quality of life, and a cure for kidney disease.
The Will Herndon Fund for Juvenile Batten Disease Research
The Will Herndon Fund for Juvenile Batten Disease Research has partnered with the Beyond Batten Disease Foundation to find a cure for Juvenile Batten Disease. With your HELP, we will provide HOPE to Will and the hundreds of children like Will.
Funding Research for Shone's Syndrome
The Christina Capozzi Foundation is a non-profit foundation which was formed to raise funds for research on heart disease at Childrens Hospital in Boston, MA.
Home | Alzamend
Dedicated to Finding the Treatment and Cure of Alzheimer's disease.
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The Tyrosinemia Foundation raises funds for research into the rare metabolic disease Tyrosinemia Type 1. We provide information about the disease and give insights in available researches.
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Paul Ruby Foundation for Parkinsons Research
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Homepage | Crohn's & Colitis Foundation
We are a non-profit, volunteer-fueled organization dedicated to finding cures for Crohn's disease and ulcerative colitis, and improving the quality of life of children and adults affected by these diseases.
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The GBM Foundation is a non-profit (501c3) organization committed to funding research to ultimately find a cure for Glioblastoma
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Mesothelioma is a rare and lethal form of cancer caused by exposure to asbestos. When diagnosed, the prognosis is usually very poor, as there is no cure for the disease and typically it is discovered…
Steve Waugh Foundation | Rare Disease Foundation Australia
Steve Waugh Foundation's mission is to enhance the lives of children and families affected by a rare disease. Grants and fundraising assistance available.
Prion Alliance
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PSC Partners Seeking a Cure | Education, Research & Treatment
PSC Partners Seeking a Cure provides education and support to people directly affected by this rare liver disease. Learn about primary sclerosing cholangitis and how we’re striving to find treatments and a cure.
Awareness for Motor Neurone Disease - Racing For MNDi
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Hemogenyx Pharmaceuticals plc - Hemogenyx Pharmaceuticals | Home
Breakthrough Therapies for the Treatment of Blood and Autoimmune Diseases
Home - Dravet Syndrome Foundation
Your Content Goes Here More News Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form
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Home
The term peripheral vascular disease is commonly referred to as a collection of diseases of the circulatory system, any disorder that affects blood vessels.
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Leading the cause to treat and cure Tay-Sachs and other Allied Diseases
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JP2MRI is a non-profit medical research institute devoted to find cures for medical diseases for the use of ethical adult stem cells.
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Home - Arch Venture Partners
We’re catalyzing discoveries that prevent, detect, and cure disease.
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Canavan Foundation
The Canavan Foundation is a not-for-profit organization that was founded in 1992 by the parents and friends of children affected by the Canavan disease.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
MyGene2 - Home
Uniting families, clinicians, and researchers for rare disease discovery.
Cure Sickle Cell Initiative | Advancing research in sickle cell disease | Cure Sickle Cell
Following a long tradition of advancing research in sickle cell disease, the National Heart, Lung, and Blood Institute (NHLBI) launched the Cure Sickle Cell Initiative in September 2018.
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NEHI Research Foundation is working to improve the diagnostic process, find treatments, and ultimately cure all forms of Children's Interstitial Lung Disease through the support of research.
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Arms of Mercy NPC. Unique, handmade bracelets to raise funds for children with cancer, rare diseases & special needs in SA. Non-profit...
Leber Congenital Amaurosis Non-Profit | Hope in Focus
Hope in Focus is a non-profit organization dedicated to providing information and support to those affected by LCA and other rare inherited retinal diseases.
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Raising funds for Medicinal Cannabis Research | Drop A Dollar
Drop a Dollar is a not-for-profit charity raising awareness for Medicinal Cannabis Research. Join us in funding research and treatments for rare diseases.
Home | LSBR | Landsteiner Foundation for Blood Transfusion Research
The LSBR supports clinical and experimental scientific research in the field of blood, blood-forming tissue, blood products, and blood (related) diseases, provided that the research bears a relationship to the field of transfusion or transplantation of blood cells.
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