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Pituitary Society - Educational Source for Pituitary Diseases & Disorders |
National Adrenal Diseases Foundation - Home
National Adrenal Disease Foundation. See News, COVID-19 Updates, and Hydrocortisone Availability.
Adrenal Fatigue: How To Recover Naturally
Author: —Chris A
Pituitary Network Association | News » Latest News and Articles
The Pituitary Network Association is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.
Vetoryl for treatment of Cushing's syndrome in your dog
Cushing’s syndrome or hyperadrenocorticism is one of the most common endocrine disorders. Use Vetoryl to restore life and vitality in your dog.
Vetoryl for treatment of Cushing's syndrome in your dog
Cushing’s syndrome or hyperadrenocorticism is one of the most common endocrine disorders. Use Vetoryl to restore life and vitality in your dog.
Cushing Syndrome & Korlym® (mifepristone)
Have you been diagnosed with Cushing syndrome? Learn about Korlym, an approved medication for treating its symptoms.
Trilostan för behandling av Cushings syndrom hos hund
Cushings syndrom eller hyperadrenokorticism är ett av de vanligaste endokrina problemen hos hund. Använd trilostan för att återställa din hunds livskvalitet.
Trilostan til behandling av Cushings syndrom hos din hund
Cushings syndrom eller hyperadrenokortisisme er en av de vanligste endokrine sykdommene. Bruk Trilostan til å gjenopprette hundens liv og vitalitet.
Startseite - Cushing-Hat-Viele-Gesichter
Hier erfahren Sie alles zum Equinen Cushing Syndrom (ECS).
Cushing's Help and Support
Cushing's Help and Support
The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research - Home - The Cute Syndrome Foundation
Learn more about The Cute Syndrome Foundation and the SCN8A Epilepsy and PCDH19 Epilepsy Research we fund
Proteus Syndrome Foundation - Support and Education
The Proteus Syndrome Foundation's goals are Supporting / Educating Families of individuals living with Proteus Syndrome, public education, research funding
Alport Syndrome Foundation - Hope, Action, Support
Alport Syndrome Foundation is a patient-led non-profit dedicated to improving the lives of those affected by Alport Syndrome.
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
The Global Down Syndrome Foundation is dedicated to improving the lives of people with Down syndrome through research, medical care, education and advocacy.
APS Support UK | APS - antiphospholipid syndrome
APS Support UK is your online resource for information about antiphospholipid syndrome (APS)
Angelman Syndrome Foundation | Welcome
Angelman Syndrome Foundation
Author: Angelman Syndrome Foundation
Noonan Syndrome Foundation
The Noonan Syndrome Foundation: created to help support, educate, & advocate for and on behalf of all those who have bee affected by Noonan Syndrome.
Down Syndrome Research Foundation | DSRF UK
The DSRF UK Is A National Charity Formed By Parents Of Down’s Syndrome Children Who Want Greater Emphasis Placed On Medical Research.
Author: Down's Syndrome Research Foundation
Other sites like csrf net
Home - Phelan-McDermid Syndrome Foundation
Improving lives affected by Phelan-McDermid Syndrome Join Donate Newly Diagnosed International DataHub Upcoming Events Resource Library It is the mission of the Phelan-McDermid Syndrome Foundation to improve the quality of life of those affected by Phelan-McDermid syndrome worldwide by providing family support, accelerating research, and raising awareness. Latest News & Blog Post We are Phamily […]
False Memory Syndrome Foundation
The False Memory Syndrome Foundation is a 501(c)(3) organization founded in March, 1992 to seek the reasons for the spread of the false memory syndrome, to work for ways to prevent the spread of the false memory syndrome, and to aid those who were affected by the false memory syndrome and bring their families into reconciliation.
Welcome « Stevens Johnson Syndrome Foundation
Stevens Johnson Syndrome Foundation
M-CM, MCAP, M-CMTC Syndrome Information and Support | M-CM Network
Support and resources for people with macrocephaly-capillary malformation syndrome (also known as M-CM, M-CMTC, MCAP)
Home - Dravet Syndrome Foundation
Your Content Goes Here More News Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form
Author: Admin
Jerome Lejeune Foundation USA - Down Syndrome Research, Care, and Advocacy
The Jerome Lejeune Foundation USA centers its activities on Research, Care, and Advocacy for people with Down Syndrome.
Author: JLF USA Team
Pallister-Killian Syndrome Foundation of Australia
Pallister-Killian Syndrome Foundation of Australia
Author: Catch Themes
DICER1 Syndrome Information Network - Online resources for all
Up-to-date information curated by world experts in DICER1 Syndrome. Resources for physicians, researchers, patients, and families of individuals affected.
Alström Syndrome International | Supporting those affected by Alström Syndrome
Supporting those affected by Alström Syndrome
Gould Syndrome - COL4A1 - COL4A2 genes - Gould Syndrome Foundation
Gould Syndrome Foundation a 501(c)3 Nonprofit, exists to provide hope and help to children and adults with the Ultra Rare Disease, Gould Syndrome; affecting COL4A1 and COL4A2 genes.
Author: Jselser
Fragile X Syndrome Research & Treatment • FRAXA Research Foundation - Finding a Cure for Fragile X
FRAXA Research Foundation’s mission is to find effective treatments and ultimately a cure for Fragile X syndrome. Fragile X syndrome is the most common inherited cause of autism and intellectual disabilities We directly fund research grants and fellowships at top universities around the world. We partner with biomedical and pharmaceutical companies, large and small, to bridge the gap between research discoveries and actual treatments.
Author: Holly Roos
DownSyndrome SA - Supporting people with Down Syndrome in SA
Down Syndrome South Australia supports people with Down syndrome, their families and carers by offering a broad range of services and support.
Rett Syndrome Research Trust: The Trusted Source for Rett Syndrome Information
Rett Syndrome Research Trust advances medical research, news and information about Rett Syndrome. A singular guide for parents and the scientific and medical community.
Headlines Craniofacial Support Group - support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and as
Headlines is a charitable organisation based in the UK which aims to provide support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and associated conditions.
Supporting Families who have Children and Adults with Smith-Magenis Syndrome - Smith-Magenis Syndrome Foundation UK
Help us support a fulfilling future for everyone living with Smith-Magenis syndrome We want to bring more families together, provide education and awareness training, and sponsor research into SMS. But we can’t do it without your help. We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with …
Find a Participating Research Site
The Grace Study is a clinical research study that is enrolling adults who've been diagnosed with endogenous Cushing syndrome. Find a research site near you.
Loeys-Dietz Syndrome Foundation
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical information and personal support to assist you and your family on your journey with Loeys-Dietz Syndrome. Learn more about our foundation and
Turner Syndrome Support Society (UK) - Home
The Turner Syndrome Support Society is a national charity caring for the needs of those with Turner Syndrome throughout the United Kingdom.
The George Pantziarka TP53 Trust – Li Fraumeni Syndrome – supporting families and individuals with this cancer predisposition syndrome
Li Fraumeni Syndrome - supporting families and individuals with this cancer predisposition syndrome
Reye's Syndrome | National Reye's Syndrome Foundation | United States
In 1974, the National Reye's Syndrome Foundation, a children's health advocacy organization, was incorporated as a 501(c)3 charity, with a mission to eradicate the incidence of Reye's Syndrome. The Foundation does not receive, nor seek, government funding, and relies on the generosity of donors for support of all progr
What else csrf.net alternative websites
Johns Hopkins Jerome L. Greene Sjögren’s Syndrome Center
Sjögren’s Syndrome information, medication resources and patient materials from the Johns Hopkins Jerome L. Greene Sjögren’s Syndrome Center
Restless Legs Syndrome Foundation Blog
Support for those affected by restless legs syndrome (RLS). For more info visit www.rls.org.
Author: Restless Legs Syndrome Foundation
Shwachman-Diamond Syndrome Foundation
What is SDS? Shwachman Diamond Syndrome (SDS) is a rare blood disorder that affects the pancreas, bone marrow, and skeleton, but other organs may also be affected.
Fragile X | Supporting Families living with Fragile X Syndrome
Around 22,000 New Zealanders are affected by Fragile X Syndrome (FXS). Fragile X syndrome is the world’s leading cause of inherited intellectual disability.
ADNP Kids Research Foundation - ADNP Kids Research Foundation
ADNP Kids Research Foundation Advocacy Non-Profit - Helsmoortel-Van Der Aa Syndrome
FAST (Foundation for Angelman Syndrome Therapeutics) in Canada
Learning that your loved one has Angelman syndrome can be scary and overwhelming, but hope is here. FAST’s sole mission is to cure Angelman syndrome and, with our partners around the world, we are getting closer every day. Five gene therapy strategies are in development to treat Angelman syndrome. Your donation to FAST Canada helps fund all of them.
Author: Gerardo
Home Page - Koolen-de Vries Syndrome Foundation | KDVS
Koolen-de Vries Syndrome Foundation's mission revolves around Awareness, Education and Research. Learn more about the syndrome, research and upcoming events
Home – Li-Fraumeni Syndrome Association: LFS Patient Advocacy | Support | Research | Awareness
LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li-Fraumeni Syndrome.
Author: LFS Association
Short Gut Syndrome: Parents' Support Group
A support group for families of children with short gut syndrome
Living LFS: Li-Fraumeni Syndrome
At Living LFS, we encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Author: Living LFS
Lynch Syndrome Hereditary Cancer Foundation | AliveAndKickn
Hereditary cancer foundation, lynch syndrome, non-profit, patient advocacy organization, colon cancer, endometrial cancer, genetic mutation, AliveAndKickn AliveAndKickn is a patient advocacy organization for individuals and families with Lynch syndrome hereditary cancer genetic mutations.
Chronic Fatigue Syndrome Information | FightingFatigue.org
FightingFatigue.org is a top resource site for information on Chronic Fatigue Syndrome, Fibromyalgia, Interstitial Cystitis, and other chronic illnesses.
Author: Judy
Vancouver Island Down Syndrome Society
Supporting the Down syndrome community on Vancouver Island by providing resources, educational, vocational, and life enhancement assistance.
Books & Research on Tourette Syndrome, Attention Deficit Hyperactivity Disorder (ADHD, ADD), Conduct Disorder and other psychological, psych
Providing books,research and resources on tourette syndrome,attention deficit hyperactivity disorder(ADHD,ADD) and other behavioral problems.
CHARGE Syndrome Foundation - Providing a better world for people with CHARGE
A better world for people with CHARGE Syndrome.
FAST (Foundation For Angelman Syndrome Therapeutics) - Home
FAST is committed to assisting individuals living with Angelman syndrome to realize their full potential and quality of life.
Author: Gerardo Duenas
Living With Carcinoid Syndrome & Neuroendocrine Tumors
Find information and resources for living with carcinoid syndrome, carcinoid tumors, and neuroendocrine tumors (NET) of the GI tract, lungs, or pancreas.
Welcome - Down Syndrome Cork
Welcome Down Syndrome Cork is the Cork branch of the national organisation, Down Syndrome Ireland. In Cork, we have over 360 member families across the city and county. Our main aims as a branch are: to provide support and resources to encourage active participation in the community to foster positive attitudes and most importantly to help individuals …
Author: Karen O Sullivan
Mal de Débarquement, Debarkation Syndrome | MdDS Foundation
Mal de Débarquement, Disembarkment or Debarkation Syndrome is a disorder that leaves patients with a constant feeling of movement, as if on a boat. The MdDS Foundation advocates for and seeks treatments to end the suffering from MdDS. Learn more!
Author: MdDS Foundation
Worldwide Society of Wolfram Syndrome Families - Support Group
Information and support group for families with Wolfram Syndrome or DIDMOAD
Author: RT Birkinshaw
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Kleefstra Syndrome - IDefine
I define my future.I will change the world. IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra Syndrome and other Intellectual Disabilities, building community and resources for families. About Kleefstra Syndrome To learn more about IDefine’s current efforts, please read this message from our founders. Donate Now IDefine is a nonprofit […]
Activating Wellness - Supporting families living with chronic fatigue syndrome
Supporting families living with chronic fatigue syndrome
Author: Annette Ford
Williams Syndrome | Information, support, personal stories, research | WS Australia
Williams syndrome (WS) is a genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. It affects 1 in 10,000 people worldwide and occurs equally in both males and females and in every culture.
International Mosaic Down Syndrome Association
We are The International Mosaic Down Syndrome Association. A community that supports the awareness of Mosaic Down Syndrome via content publishing, sharing of resources and annual conferences. Providing support for families and individuals whose life has been touched by Mosaic Down Syndrome. We are continuously pursuing research opportunities and increasing awareness in medical, educational and public communities throughout the world.
Home - Intractable Pain Syndrome Research and Education Project
Intractable pain syndrome IPS, a complication of a painful underlying disease, characterized by constant pain and physiologic abnormalities.
Author: IPS Research; Education Editorial Committee
Down Syndrome Education Enterprises CIC
We are a social enterprise that develops and supplies specialist, evidence-based resources and services to support effective early intervention and education for children with Down syndrome worldwide.
Cure Sanfilippo Foundation | Accelerating a cure for Sanfilippo Syndrome
Our mission: Advocate for and fund research directed towards a cure and treatment options for children with Sanfilippo Syndrome (MPS III).
Author: Katie Walton
International Bipolar Foundation | Hope, Resources & Support
IBPF provides a world of hope, resources and support. Browse our education articles, educational videos, faces of hope and recovery, and other resources.
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Prader Willi Syndrome Association Ireland – Supporting people with Prader Willi Syndrome, their parents and carers in all aspects of their c
Supporting people with Prader Willi Syndrome, their parents and carers in all aspects of their care, education and well-being
Author: Emwa
Fetal Health Foundation: Hope for Families Experiencing Fetal Syndromes
The Fetal Health Foundation gives hope to families who are hearing a fetal syndrome diagnosis. We understand the scary moment when a parent hears their baby is in danger. We connect patients with world-class maternal fetal medical centers, and fund fetal syndrome-related medical research.
22q Foundation Australia and New Zealand, 22q11.2 Deletion Syndrome, VCFS, Di George
22q Foundation Australia and New Zealand Home Page. Supporting people affected by 22q11.2 Deletion Syndrome and Di George, VCFS, DiGeorge, Velo Cardio **** Syndrome, 22q11.2 Duplication
London Down Syndrome Association – Supporting and Enriching Lives!
Established in 1983, the London Down Syndrome Association is a volunteer-run charity, raising funds to provide responsive, compassionate support services to children, youth, adults and families living with Down syndrome in London, Ontario, and surrounding areas. Providing support within the counties of Elgin, Huron, Middlesex, Oxford and Perth. LEARN ABOUT US
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ТРИБУНА: актуальные новости Одессы в реальном времени, информация о событиях в Одессе, регионе и мире.. Аналитические материалы и эксклюзивные интервью.
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Welcome Customer Support - Support & Information
Welcome to the Wellsites Customer Support and Information website This website provides: Articles that help you build your website. Product and Upgrade Announcements Scheduled Outages Wellsites Support Email Database All our customers are automatically added to our Wellsites Support Email Database. This helps us keep our customers informed of any major upgrades, news, unscheduled outages. […]
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Razor Micro, Inc. | Cutting Edge Web and Mobile Solutions for Small & Medium Size Businesses
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TDRp (Talent Development Reporting Principles)
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Home - Harpswell Heritage Land Trust
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Unified... Ordinary People Unified In God's Extraordinary Grace
E komo mai, e ho’olokahi! Come, you are invited in, let’s unite! Pronunciation: (yōō’nē fīed dot dot dot) We seek to know **** by having fun and experiencing Divine favor. As the Spirit transforms us, we become dispensers of ****’s extreme grace throughout the world. We are ordinary people Unified… in ****’s extraordinary grace! Upcoming […]
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Brisbane Precast Australian Manufacturers Of Panels, Walls And Other Precast Concrete Products For Commercial & Residential Projects Across Australia.
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