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Fragile X Syndrome | Fragile X Society | UK
Information and support on Fragile X syndrome for families, carriers and people living with the condition in the UK. Read more about the Fragile X Society.
Home | Dravet Syndrome UK
Welcome to the Dravet Syndrome UK website. We are dedicated to improving the lives of those affected by Dravet Syndrome through support, education and medical research.
Turner Syndrome Support Society (UK) - Home
The Turner Syndrome Support Society is a national charity caring for the needs of those with Turner Syndrome throughout the United Kingdom.
Headlines Craniofacial Support Group - support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and as
Headlines is a charitable organisation based in the UK which aims to provide support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and associated conditions.
Supporting Families who have Children and Adults with Smith-Magenis Syndrome - Smith-Magenis Syndrome Foundation UK
Help us support a fulfilling future for everyone living with Smith-Magenis syndrome We want to bring more families together, provide education and awareness training, and sponsor research into SMS. But we can’t do it without your help. We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with …
SOFT UK - Support Organisation for Trisomy 13 and Trisomy 18
SOFT UK provides information and support to families affected by Trisomy 13 (Patau's Syndrome) and Trisomy 18 (Edwards' Syndrome) and to associated professional
Worldwide Society of Wolfram Syndrome Families - Support Group
Information and support group for families with Wolfram Syndrome or DIDMOAD
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M-CM, MCAP, M-CMTC Syndrome Information and Support | M-CM Network
Support and resources for people with macrocephaly-capillary malformation syndrome (also known as M-CM, M-CMTC, MCAP)
DownSyndrome SA - Supporting people with Down Syndrome in SA
Down Syndrome South Australia supports people with Down syndrome, their families and carers by offering a broad range of services and support.
Alström Syndrome International | Supporting those affected by Alström Syndrome
Supporting those affected by Alström Syndrome
Angelman Syndrome - UK Support, Education and Research Trust - Angelman Syndrome
UK Support, Education and Research Trust
CSRF - Cushing's Support & Research Foundation - Cushing's Syndrome Resources
Cushing's Syndrome Resources
The George Pantziarka TP53 Trust – Li Fraumeni Syndrome – supporting families and individuals with this cancer predisposition syndrome
Li Fraumeni Syndrome - supporting families and individuals with this cancer predisposition syndrome
Proteus Syndrome Foundation - Support and Education
The Proteus Syndrome Foundation's goals are Supporting / Educating Families of individuals living with Proteus Syndrome, public education, research funding
Asherman's Syndrome
Information and support for Asherman's Syndrome, intrauterine adhesions/scarring, or related problems.
Loeys-Dietz Syndrome Foundation
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical information and personal support to assist you and your family on your journey with Loeys-Dietz Syndrome. Learn more about our foundation and
The HMSA | The Hypermobility Syndromes Association
The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.
Aspergers Syndrome - Community for people with Aspergers Syndrome
Welcome to our Asperger’s Syndrome blog. We like to encourage and invite people with Asperger’s Syndrome to share their own experiences and blog about it. Below is information about the disorder guided by frequently asked questions. What is Asperger’s Syndrome? Asperger’s syndrome is a disorder that is classified as a part of autism and Sensory […]
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Overcome PCOS | Support PCOS Awareness
Overcome PCOS with Support PCOS Awareness- The mission of ConquerPCOS is to spread PCOS awareness about polycystic ovarian syndrome & overcome it, support pcos awareness by providing information & resources for women.
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Endometriosis UK | the leading UK charity that supports women living with endometriosis
Find out more about endometriosis from the leading UK charity dedicated to providing information and support to those with endometriosis.
ACT ME/Chronic Fatigue Syndrome - Providing support for people affected by ME/CFS
Welcome Thank you for visiting. We provide support and information for people affected by Myalgic Encephalomyelitis (ME) /Chronic Fatigue Syndrome (CFS) and Fibromyalgia Syndrome (FMS) in the Canberra region. Build a Better Me: Arthritis, Pain Support & ME/CFS ACT is a not for profit, self help organisation which provides support services such as monthly information … Continue reading "ACT ME/Chronic Fatigue Syndrome"
Propel | Home
A comprehensive online resource for care leavers with information about the support available to them from universities and colleges in the UK.
Short Gut Syndrome: Parents' Support Group
A support group for families of children with short gut syndrome
Lennox-Gastaut Syndrome | Living With LGS
Get to know Lennox-Gastaut Syndrome. Find useful information to help you learn about treatment options, caregiver support, and more.
Rett Syndrome Association of IrelandThe Rett Syndrome Association of Ireland | Just another WordPress site
The Rett Syndrome Association of Ireland. Rett Syndrome normally affect girls. Get information on these conditions and the supports available.
London Down Syndrome Association – Supporting and Enriching Lives!
Established in 1983, the London Down Syndrome Association is a volunteer-run charity, raising funds to provide responsive, compassionate support services to children, youth, adults and families living with Down syndrome in London, Ontario, and surrounding areas. Providing support within the counties of Elgin, Huron, Middlesex, Oxford and Perth. LEARN ABOUT US
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Central Pain Syndrome
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Angelman Syndrome Association of WA – Providing support in Western Australia since 2007
Our mission is to support, inform, educate, network, and advocate for families with a child with Angelman Syndrome
Down Syndrome Association of Wisconsin
The Down Syndrome Association of Wisconsin supports individuals with Down syndrome and their families through education, information, programs, services, and the exchange of ideas and experiences.
Vancouver Island Down Syndrome Society
Supporting the Down syndrome community on Vancouver Island by providing resources, educational, vocational, and life enhancement assistance.
APDS | Activated PIK3 Delta Syndrome | All About APDS
Learn more about APDS (Activated PI3K Delta Syndrome), previously known as PASLI Disease. Get Useful information and resources. Hear from APDS specialists
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Sjögren’s Syndrome information, medication resources and patient materials from the Johns Hopkins Jerome L. Greene Sjögren’s Syndrome Center
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Supporting families living with chronic fatigue syndrome
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Gorlin Syndrome Alliance – Treatment | Symptoms | Basal Cell Carcinoma
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Sjorgens Syndrome Society New Zealand
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e-book A Familys Guide to Tourette Syndrome
Providing authoritative and up-to-date medical and scientific information about Tourette syndrome, A Family's Guide to Tourette Syndrome speaks to patients.
The UK Mastocytosis Support Group
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Kleefstra Syndrome - IDefine
I define my future.I will change the world. IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra Syndrome and other Intellectual Disabilities, building community and resources for families. About Kleefstra Syndrome To learn more about IDefine’s current efforts, please read this message from our founders. Donate Now IDefine is a nonprofit […]
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International Mosaic Down Syndrome Association
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Supporting people with Prader Willi Syndrome, their parents and carers in all aspects of their care, education and well-being
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Cornelia de Lange Syndrome Association (Australasia)
The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA) is a family support organisation. We exist to support you and your family, with emotional support, a community, and quality information so you can make informed decisions. We also work to assist the accurate diagnosis of CdLS and promote research into the cause and manifestations of the syndrome.
UK Cyber Security Forum
Information about the UK Cyber Security Forum, supporting the UK's cyber security SMEs within a network of clusters.
Welcome - Down Syndrome Cork
Welcome Down Syndrome Cork is the Cork branch of the national organisation, Down Syndrome Ireland. In Cork, we have over 360 member families across the city and county. Our main aims as a branch are: to provide support and resources to encourage active participation in the community to foster positive attitudes and most importantly to help individuals …
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A website dedicated to supporting families and those with PHACE Syndrome.
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This is the community website for the Down Syndrome Association of Simcoe County, a group offering support to those with a family member living with Down syndrome. Here you will find information...
Supporting Hospices In The UK – Hospice Aid UK
Hospice AID UK supporting hospices in the UK with grants and emergency funding, giving support where it is needed, when it is needed.
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KUB-IT aps yder IT-support, opsætning og udbygning af PC'ere og netværk, IT-sikkerhedsarbejde og IT-projektledelse
Down Syndrome Education USA
We support scientific research and deliver evidence-based advice and information to improve educational outcomes for children with Down syndrome.
Down Syndrome Education Enterprises CIC
We are a social enterprise that develops and supplies specialist, evidence-based resources and services to support effective early intervention and education for children with Down syndrome worldwide.
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