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Familial chylomicronemia syndrome
FCSFocus.com is for people living with familial chylomicronemia syndrome who may have high triglycerides that can cause pancreatitis.
The Down Syndrome Development Trust (DSDT)
Down Syndrome Development Trust exists to improve the lives of people living with Down syndrome. Including support to individuals and their families via research-based training workshops, outreach, educational enrichment and social groups for children and young people living with Down syndrome.
Author: Dsdt Updates
Activating Wellness - Supporting families living with chronic fatigue syndrome
Supporting families living with chronic fatigue syndrome
Author: Annette Ford
Down Syndrome Ireland
Down Syndrome Ireland offers support and services to people with Down syndrome and their families throughout Ireland.
Fragile X Syndrome | Fragile X Society | UK
Information and support on Fragile X syndrome for families, carriers and people living with the condition in the UK. Read more about the Fragile X Society.
Fragile X | Supporting Families living with Fragile X Syndrome
Around 22,000 New Zealanders are affected by Fragile X Syndrome (FXS). Fragile X syndrome is the world’s leading cause of inherited intellectual disability.
Home | Downs Syndrome Association
The Down's Syndrome Association are here to support and walk along life's journey with both old and young people living with Down's Syndrome.
The George Pantziarka TP53 Trust – Li Fraumeni Syndrome – supporting families and individuals with this cancer predisposition syndrome
Li Fraumeni Syndrome - supporting families and individuals with this cancer predisposition syndrome
Cornelia de Lange Syndrome Association (Australasia)
The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA) is a family support organisation. We exist to support you and your family, with emotional support, a community, and quality information so you can make informed decisions. We also work to assist the accurate diagnosis of CdLS and promote research into the cause and manifestations of the syndrome.
Noonan Syndrome Awareness Association
Help us raise to rise! Join us in raising funds so we can all help more people rise above the challenges of living with Noonan Syndrome Donate What is Noonan Syndrome? Noonan syndrome (NS) is a genetic condition that affects many areas of the body that occurs in between 1 in 1000 to 1 in…
National Down Syndrome Congress
The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.
e-book A Familys Guide to Tourette Syndrome
Providing authoritative and up-to-date medical and scientific information about Tourette syndrome, A Family's Guide to Tourette Syndrome speaks to patients.
Rett Syndrome Society of British Columbia : Rett Syndrome Society of BC
Rett Syndrome Rett Syndrome is a unique developmental disorder impacting mainly females and begins to appear in early childhood. Symptoms can include regression in communication skills, motor skills and other health issues. Learn about Rett Syndrome Our Mission Our mission is to support, educate, and empower those that live with Rett Syndrome and their families. […]
DownSyndrome SA - Supporting people with Down Syndrome in SA
Down Syndrome South Australia supports people with Down syndrome, their families and carers by offering a broad range of services and support.
Proteus Syndrome Foundation - Support and Education
The Proteus Syndrome Foundation's goals are Supporting / Educating Families of individuals living with Proteus Syndrome, public education, research funding
Gorlin Syndrome Alliance – Treatment | Symptoms | Basal Cell Carcinoma
The Gorlin Syndrome Alliance serves people with Gorlin syndrome (Gorlin Goltz syndrome) and their families with disease information, support and research.
Supporting Families who have Children and Adults with Smith-Magenis Syndrome - Smith-Magenis Syndrome Foundation UK
Help us support a fulfilling future for everyone living with Smith-Magenis syndrome We want to bring more families together, provide education and awareness training, and sponsor research into SMS. But we can’t do it without your help. We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with …
SJSR - Syndrome des Jambes Sans Repos
Site de référence du syndrome des jambes sans repos : Définition et chiffres • Signes cliniques • Causes du syndrome des jambes sans repos.
About IBS | About Irritable Bowel Syndrome
What is Irritable Bowel Syndrome (IBS)? IBS is a disorder that can be caused by foodborne illness from pathogens like Salmonella and Campylobacter.
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Global Down Syndrome Foundation | Research, Care, Education, Advocacy
The Global Down Syndrome Foundation is dedicated to improving the lives of people with Down syndrome through research, medical care, education and advocacy.
Idiopathic scoliosis – the milkmaid syndrome
The 'MILKMAID SYNDROME' Or the cause of a juvenile and adolescent idiopathic scoliosis.
Worldwide Society of Wolfram Syndrome Families - Support Group
Information and support group for families with Wolfram Syndrome or DIDMOAD
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Our Down syndrome achievement centers provide programing and support for people with Down syndromeand their families. Our Vision is to see a world where individuals with Down syndrome are accepted and embraced in their families, schools, and communities.
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World Down Syndrome congress is the leading biennial event for people with Down syndrome, their families, advocates, experts and researchers.
Down Syndrome International
Charity working with people with Down syndrome
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This is the community website for the Down Syndrome Association of Simcoe County, a group offering support to those with a family member living with Down syndrome. Here you will find information...
Turner Syndrome Support Group (NZ) Incorporated - New Zealand Registered Charity
Providing support to people affected by Turner Syndrome and their families in New Zealand
History of Down Syndrome
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Free Essays from Bartleby | Fetal Alcohol Syndrome According to Seaver, Fetal Alcohol Syndrome (FAS) is birth defects causing learning, and behavioral.
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Welcome to our Asperger’s Syndrome blog. We like to encourage and invite people with Asperger’s Syndrome to share their own experiences and blog about it. Below is information about the disorder guided by frequently asked questions. What is Asperger’s Syndrome? Asperger’s syndrome is a disorder that is classified as a part of autism and Sensory […]
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New Zealand Down Syndrome Association
To work alongside families, whānau and carers to support and empower people with Down syndrome to realise their potential and aspirations through all life stages and within all communities
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DSActive | sport for people with Down's Syndrome
sport for people with Down's Syndrome
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PHACE Syndrome Community
A website dedicated to supporting families and those with PHACE Syndrome.
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Mencap is a UK charity for people with a learning disability. We support their families and carers, too. We want the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.
Central Pain Syndrome
This Central Pain Syndrome (CPS) website describes this specific type of pain and provides information about the cause and prognosis. The Central Pain Syndrome website also discusses treatment and pain management plans. In addition, there is a support forum for CPS sufferers to discuss common issues. Central Pain Syndrome is a website created and owned by The **** Network.
Home | Dravet Syndrome UK
Welcome to the Dravet Syndrome UK website. We are dedicated to improving the lives of those affected by Dravet Syndrome through support, education and medical research.
Down Syndrome Association of Wisconsin
The Down Syndrome Association of Wisconsin supports individuals with Down syndrome and their families through education, information, programs, services, and the exchange of ideas and experiences.
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Download PDF DNA Alterations in Lynch Syndrome: Advances in molecular diagnosis and genetic counselling
Lynch syndrome (LS) is the most common cause of inherited colorectal cancer, a disease with a high mortality rate. An estimated 37, of diagnosed colorectal cancer cases worldwide...
International WAGR Syndrome Association
The International WAGR Syndrome Association is a not-for-profit organization comprised of an international network of families, health care professionals and researchers, and others who care for individuals with WAGR syndrome.
Living LFS: Li-Fraumeni Syndrome
At Living LFS, we encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Author: Living LFS
Sjorgens Syndrome Society New Zealand
Sjorgens Syndrome Society New Zealand is a volunteer Not for Profit organisation formed to give support and information to people suffering from Sjögren’s Syndrome.
Dry Eye News | Dry Eye Syndrome News, Treatment, Causes & Symptoms
At DryEyeNews.com you can ask a doctor about dry eye syndrome, learn about the causes & symptoms of dry eye, discover dry eye treatment options, and more!
Alport Syndrome Foundation - Hope, Action, Support
Alport Syndrome Foundation is a patient-led non-profit dedicated to improving the lives of those affected by Alport Syndrome.
Home - Phelan-McDermid Syndrome Foundation
Improving lives affected by Phelan-McDermid Syndrome Join Donate Newly Diagnosed International DataHub Upcoming Events Resource Library It is the mission of the Phelan-McDermid Syndrome Foundation to improve the quality of life of those affected by Phelan-McDermid syndrome worldwide by providing family support, accelerating research, and raising awareness. Latest News & Blog Post We are Phamily […]
False Memory Syndrome Foundation
The False Memory Syndrome Foundation is a 501(c)(3) organization founded in March, 1992 to seek the reasons for the spread of the false memory syndrome, to work for ways to prevent the spread of the false memory syndrome, and to aid those who were affected by the false memory syndrome and bring their families into reconciliation.
Manitoba Rett Syndrome Association - Home Page
Rett Syndrome (RS) is a neurological disorder seen almost exclusively in females and found in a variety of racial and ethnic backgrounds. The cause of Rett Syndrome has been traced to a defective gene on the X chromosome called MeCP2.
Cockayne Syndrome Homepage
Share and Care Self Support group to provide information to families and professionals with an interest in Cockayne Syndrome (CS).
Dravet Europe | Dravet Syndrome European Federation
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy. Dravet Syndrome European Federation (DSEF) is a non-profit organisation, a federation of European organisations, active in the field of Dravet Syndrome and driven by patients and patients’ caregivers. Together we have built a strong European community of people living with Dravet Syndrome. We are this community’s voice and, directly or indirectly, we fight against the impact of Dravet Syndrome.
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CHARGE Syndrome Foundation - Providing a better world for people with CHARGE
A better world for people with CHARGE Syndrome.
SHIPMAN FAMILY HOME CARE, INC.
FAMILY HOME CARE IS TO CONSISTENTLY STRIVE TO IDENTIFY IN-HOME SERVICES. THIS SERVICE PROVIDES SUPPORT PEOPLE MAY NEED TO REMAIN IN THEIR HOMES WHEN DISRUPTIONS ARE CAUSED DUE TO ILLNESS, DISABILITY, SOCIAL DISADVANTAGE AND OTHER PROBLEMS AFFECTING THE QUALITY OF DAILY LIVING. OVER 30 YEARS OF SERVICE. We are one of the oldest and most respected home care agencies in the Carolinas.
Welcome to The Canadian Association for Williams Syndrome
Get to know The Canadian Association for Williams Syndrome. Find out how you can get involved in the annual walks, how you can donate or shop today and find support for those with Williams syndrome.
The Turner Syndrome Society of the United States
The Turner Syndrome Society offers education and support for all people touched by TS.
Exocrine Pancreatic Insufficiency in Humans | Identify EPI
Exocrine pancreatic insufficiency (EPI) affects digestion and absorption of nutrients. Find out if your symptoms may be caused by EPI now.
Wellington Down Syndrome Association for the Greater Wellington Region
The Wellington Down Syndrome Association supports, educates and advocates for people within the Down syndrome community in the greater Wellington Region.
Author: Colleen Brown
Short Gut Syndrome: Parents' Support Group
A support group for families of children with short gut syndrome
Down Syndrome Association of Toronto, DSAT Non-Profit Charity
Down Syndrome Association of Toronto, DSAT mission is to support and empower individuals with Down Syndrome and their families throughout the GTA.
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Stories of Down Syndrome | Now I See Project
The Now I See Project shares personal and poignant stories of Down Syndrome to dispel outdated ideas and shed light on the potential and possibilities for people with Down syndrome today.
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Living with XXY Non-Profit - Awareness for Klinefelter syndrome
WE ARE LIVING WITH KLINEFELTER SYNDROME/47 XXY Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits. About Us donate
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Fetal Health Foundation: Hope for Families Experiencing Fetal Syndromes
The Fetal Health Foundation gives hope to families who are hearing a fetal syndrome diagnosis. We understand the scary moment when a parent hears their baby is in danger. We connect patients with world-class maternal fetal medical centers, and fund fetal syndrome-related medical research.
Down Syndrome Alliance of the Midlands | Omaha
The Down Syndrome Alliance of the Midlands is a non-profit organization which serves families of children and adults with Down syndrome, and interested professionals in the Omaha, Nebraska and surrounding areas.
Central Illinois Down Syndrome Organization
Central Illinois Down Syndrome Organization (CIDSO) acts as a support service for the families in McLean County and in Central Illinois who had been touched by Down syndrome.
Home | Down Syndrome Limerick
We support families and individuals with Down Syndrome throughout their life, with a range of Social, Education and Development activities.
Author: Bluescope
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Alice, Your Family Chiropractor At Your Family Chiropractor we are passionate about resolving the underlying causes of people’s symptoms – whatever they are. Book an appointment We
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Cassandra – Community for spouses and partners of people affected by Aspergers Syndrome
Community for spouses and partners of people affected by Aspergers Syndrome
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GBE Group - GB Electrical - Newcastle & the Hunter Region of NSW
GBE Group is a Newcastle based electrical services company, providing a full range of electrical services to Newcastle & the surrounding areas.
GBE Group - GB Electrical - Newcastle & the Hunter Region of NSW
GBE Group is a Newcastle based electrical services company, providing a full range of electrical services to Newcastle & the surrounding areas.
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