Top 100 alternative sites to fragilex.org.uk
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livingwithfragilex.com
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sjogrensnewzealand.co.nz
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turnersyndrome.org
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aps-support.org.uk
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fragilex.org
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tss.org.uk
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dravet.org.uk
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rettbc.org
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22qsociety.org
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cdss.ca
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wolframsyndrome.org
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loeysdietz.org
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smith-magenis.org
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downsyndrome.ie
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downsyndromedevelopment.org.uk
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gorlinsyndrome.org
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mencap.org.uk
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brittlebone.org
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nervetumours.org.uk
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rettsyndrome.ie
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downssa.oranaonline.com.au
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headlines.org.uk
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downs-syndrome.org.uk
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activatingwellness.com.au
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dsasc.ca
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fcsfocus.com
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fcsfocus.ca
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ukgoutsociety.org
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proteus-syndrome.org
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aspergers-syndrome.com.au
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vulvalpainsociety.org
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ehlers-danlos.com
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soft.org.uk
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dsaw.org
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vansten-design.de
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ndsccenter.org
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turnersyndrome.co.nz
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vegsoc.org
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tersgabgialynb.tk
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gigisplayhouse.org
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noonansyndrome.com.au
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gmdss.ca
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dscba.org
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beadsofcourageuk.org
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mecfscanberra.org.au
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cdls.org.au
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nzdsa.org.nz
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haemophilia.org.uk
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haemophilia.ie
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idefine.org
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ldsa.ca
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cgdsociety.org
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reginaostomy.ca
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autism.org.uk
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satb2gene.org
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angelmanwa.com.au
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publicrecordsearch.co.uk
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livingwithlgs.com
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bipolaruk.org
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ukcps.org.uk
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vitiligosociety.org
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centralpainsyndrome.net
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dsdiagnosisnetwork.org
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lfsassociation.org
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ostomy.org.nz
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smile-cbd.co.uk
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ms-uk.org
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smsaustralia.org
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gendersociety.com
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hearinglink.org
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editions-h2t.fr
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zanshin-erlangen.de
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stoffe-koffe.be
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mediakom.cz
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formaconsult.net
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zvonainari.hr
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marketingcriativo.com.br
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agri-lab.eu
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diereisereporter.at
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101ei.ca
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nikolabhram.info
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bac.com.uy
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boutique-retreats.de
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magistram.fr
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jkohut.com
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yuanheng.tw
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readingisresistance.com
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sedac-ceadema.com.br
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sna.edu.ph
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jfpereira.com.br
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comiteanimation.fr
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educasan.be
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turbotrading.biz
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ss3tecnologia.com.br
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pureimaginationparty.com
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amacle.fr
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sweatndance.com
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vivicorsi-bio.fr
Living with Fragile X
Living with Fragile X takes a rare and intimate look at lives of several families who have a member affected by fragile x syndrome. Available to watch at www.livingwithfragilex.com
Sjorgens Syndrome Society New Zealand
Sjorgens Syndrome Society New Zealand is a volunteer Not for Profit organisation formed to give support and information to people suffering from Sjögren’s Syndrome.
The Turner Syndrome Society of the United States
The Turner Syndrome Society offers education and support for all people touched by TS.
APS Support UK | APS - antiphospholipid syndrome
APS Support UK is your online resource for information about antiphospholipid syndrome (APS)
The National Fragile X Foundation | Fragile X Syndrome
The NFXF serves all those living with Fragile X, including awareness, research, and community for individuals and families at all stages of life.
Turner Syndrome Support Society (UK) - Home
The Turner Syndrome Support Society is a national charity caring for the needs of those with Turner Syndrome throughout the United Kingdom.
Home | Dravet Syndrome UK
Welcome to the Dravet Syndrome UK website. We are dedicated to improving the lives of those affected by Dravet Syndrome through support, education and medical research.
Rett Syndrome Society of British Columbia : Rett Syndrome Society of BC
Rett Syndrome Rett Syndrome is a unique developmental disorder impacting mainly females and begins to appear in early childhood. Symptoms can include regression in communication skills, motor skills and other health issues. Learn about Rett Syndrome Our Mission Our mission is to support, educate, and empower those that live with Rett Syndrome and their families. […]
22q11.2 Society
22q11.2 Society is a UK registered charity supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion
Canadian Down Syndrome Society
Canadian Down Syndrome Society The Canadian Down Syndrome Society (CDSS) is a non-profit organization focused upon human rights, health, social participation, inclusive education, and employment for those with Down syndrome. Celebrating this summer? Why not host a fundraiser to support CDSS FUNDRAISE MY WAY Our Vision All people are valued, fully participating citizens. Our Mission To...
Worldwide Society of Wolfram Syndrome Families - Support Group
Information and support group for families with Wolfram Syndrome or DIDMOAD
Author: RT Birkinshaw
Loeys-Dietz Syndrome Foundation
Our purpose is to provide information about what Loeys-Dietz Syndrome is and give hope to those impacted by the condition. We hope that you will find medical information and personal support to assist you and your family on your journey with Loeys-Dietz Syndrome. Learn more about our foundation and
Supporting Families who have Children and Adults with Smith-Magenis Syndrome - Smith-Magenis Syndrome Foundation UK
Help us support a fulfilling future for everyone living with Smith-Magenis syndrome We want to bring more families together, provide education and awareness training, and sponsor research into SMS. But we can’t do it without your help. We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with …
Down Syndrome Ireland
Down Syndrome Ireland offers support and services to people with Down syndrome and their families throughout Ireland.
The Down Syndrome Development Trust (DSDT)
Down Syndrome Development Trust exists to improve the lives of people living with Down syndrome. Including support to individuals and their families via research-based training workshops, outreach, educational enrichment and social groups for children and young people living with Down syndrome.
Author: Dsdt Updates
Gorlin Syndrome Alliance – Treatment | Symptoms | Basal Cell Carcinoma
The Gorlin Syndrome Alliance serves people with Gorlin syndrome (Gorlin Goltz syndrome) and their families with disease information, support and research.
Learning Disability - Down's Syndrome - Williams syndrome | Mencap
Mencap is a UK charity for people with a learning disability. We support their families and carers, too. We want the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.
Brittle Bone Society UK & ROIBrittle Bone Society
Supporting people affected by Osteogenesis Imperfecta throughout the UK and Ireland. The Brittle Bone Society is the national charity that supports individuals and families affected by Osteogenesis Imperfecta. See how we can support you and your loved ones...
Nerve Tumours UK | Home | Nerve Tumours UK
Nerve Tumours UK is the national charity providing support to people with conditions that cause nerve tumours, such as neurofibromatosis, Schwannomatosis and legius syndrome
Other sites like fragilex org uk
Rett Syndrome Association of IrelandThe Rett Syndrome Association of Ireland | Just another WordPress site
The Rett Syndrome Association of Ireland. Rett Syndrome normally affect girls. Get information on these conditions and the supports available.
DownSyndrome SA - Supporting people with Down Syndrome in SA
Down Syndrome South Australia supports people with Down syndrome, their families and carers by offering a broad range of services and support.
Headlines Craniofacial Support Group - support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and as
Headlines is a charitable organisation based in the UK which aims to provide support and help to all those affected by Craniosynostosis (both syndromic and non-syndromic) and associated conditions.
Home | Downs Syndrome Association
The Down's Syndrome Association are here to support and walk along life's journey with both old and young people living with Down's Syndrome.
Activating Wellness - Supporting families living with chronic fatigue syndrome
Supporting families living with chronic fatigue syndrome
Author: Annette Ford
Down Syndrome Association of Simcoe County - Home
This is the community website for the Down Syndrome Association of Simcoe County, a group offering support to those with a family member living with Down syndrome. Here you will find information...
Familial chylomicronemia syndrome
FCSFocus.com is for people living with familial chylomicronemia syndrome who may have high triglycerides that can cause pancreatitis.
Familial chylomicronemia syndrome
FCSFocus.ca is for people living with familial chylomicronemia syndrome who may have high triglycerides that can cause pancreatitis.
The UK Gout Society: Gout - Arthritis. Symptoms, treatment and diet. - UK Gout Society
Gout is a common form of arthritis and affects approximately 1 in 40 people in the UK. Find out about symptoms, treatment and diet at the UK Gout Society.
Author: Gout Study Group
Proteus Syndrome Foundation - Support and Education
The Proteus Syndrome Foundation's goals are Supporting / Educating Families of individuals living with Proteus Syndrome, public education, research funding
Aspergers Syndrome - Community for people with Aspergers Syndrome
Welcome to our Asperger’s Syndrome blog. We like to encourage and invite people with Asperger’s Syndrome to share their own experiences and blog about it. Below is information about the disorder guided by frequently asked questions. What is Asperger’s Syndrome? Asperger’s syndrome is a disorder that is classified as a part of autism and Sensory […]
Author: Julia says
The Vulval Pain Society - The Vulval Pain Society
UK charity the Vulval Pain Society provides advice and resources for people living with vulval pain, families, healthcare providers and the wider public.
The Ehlers-Danlos Society
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.
SOFT UK - Support Organisation for Trisomy 13 and Trisomy 18
SOFT UK provides information and support to families affected by Trisomy 13 (Patau's Syndrome) and Trisomy 18 (Edwards' Syndrome) and to associated professional
Down Syndrome Association of Wisconsin
The Down Syndrome Association of Wisconsin supports individuals with Down syndrome and their families through education, information, programs, services, and the exchange of ideas and experiences.
Cockayne Syndrome Homepage
Share and Care Self Support group to provide information to families and professionals with an interest in Cockayne Syndrome (CS).
National Down Syndrome Congress
The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.
Turner Syndrome Support Group (NZ) Incorporated - New Zealand Registered Charity
Providing support to people affected by Turner Syndrome and their families in New Zealand
The Vegetarian Society UK
The Vegetarian Society influences, inspires and supports people to embrace and maintain a vegetarian lifestyle.
e-book A Familys Guide to Tourette Syndrome
Providing authoritative and up-to-date medical and scientific information about Tourette syndrome, A Family's Guide to Tourette Syndrome speaks to patients.
What else fragilex.org.uk alternative websites
Down Syndrome Achievement Centers - GiGi's Playhouse
Our Down syndrome achievement centers provide programing and support for people with Down syndromeand their families. Our Vision is to see a world where individuals with Down syndrome are accepted and embraced in their families, schools, and communities.
Noonan Syndrome Awareness Association
Help us raise to rise! Join us in raising funds so we can all help more people rise above the challenges of living with Noonan Syndrome Donate What is Noonan Syndrome? Noonan syndrome (NS) is a genetic condition that affects many areas of the body that occurs in between 1 in 1000 to 1 in…
Greater Moncton Down Syndrome Society
We are a not-for-profit organization that exists to provide support for individuals with Down syndrome and their families in Southeastern New Brunswick and even as far away as Amherst, Nova Scotia.
Down Syndrome Connection of the Bay Area
To empower, inspire and support people with Down syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.
Home - Beads Of Courage UK
Building Strength and Courage in Young People Here at Beads of Courage UK, our aim is to support children and their families through some of the toughest times in their lives. Find out more by taking a look at our … Read More
ACT ME/Chronic Fatigue Syndrome - Providing support for people affected by ME/CFS
Welcome Thank you for visiting. We provide support and information for people affected by Myalgic Encephalomyelitis (ME) /Chronic Fatigue Syndrome (CFS) and Fibromyalgia Syndrome (FMS) in the Canberra region. Build a Better Me: Arthritis, Pain Support & ME/CFS ACT is a not for profit, self help organisation which provides support services such as monthly information … Continue reading "ACT ME/Chronic Fatigue Syndrome"
Cornelia de Lange Syndrome Association (Australasia)
The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA) is a family support organisation. We exist to support you and your family, with emotional support, a community, and quality information so you can make informed decisions. We also work to assist the accurate diagnosis of CdLS and promote research into the cause and manifestations of the syndrome.
New Zealand Down Syndrome Association
To work alongside families, whānau and carers to support and empower people with Down syndrome to realise their potential and aspirations through all life stages and within all communities
Author: Gary Lee
The Haemophilia Society | The Haemophilia Society
The Haemophilia Society is the only UK-wide charity for all those affected by a genetic bleeding disorder. We help people... Read more
Welcome to haemophilia.ie - Irish Haemophilia Society
Representing people living with haemophilia, von willebrand’s and other inherited bleeding disorders The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital Read more >
Author: IrishHaemophiliaSoc
Kleefstra Syndrome - IDefine
I define my future.I will change the world. IDefine is committed to identifying life-changing treatments & cures for those with Kleefstra Syndrome and other Intellectual Disabilities, building community and resources for families. About Kleefstra Syndrome To learn more about IDefine’s current efforts, please read this message from our founders. Donate Now IDefine is a nonprofit […]
London Down Syndrome Association – Supporting and Enriching Lives!
Established in 1983, the London Down Syndrome Association is a volunteer-run charity, raising funds to provide responsive, compassionate support services to children, youth, adults and families living with Down syndrome in London, Ontario, and surrounding areas. Providing support within the counties of Elgin, Huron, Middlesex, Oxford and Perth. LEARN ABOUT US
Author: Kristen
CGD Society - CGDSociety
The leading UK charity supporting people and families affected by Chronic Granulomatous Disorder and providing information to the CGD community worldwide.
Home - Regina and District Ostomy Society
The Regina and District Ostomy Society is a non-profit mutual support society for the benefit of people who have had or are about to have intestinal or
Author: PeterFolk
National Autistic Society
We are the UKs leading charity for autistic people and their families. Since 1962, we have been providing support, guidance and advice, as well as campaigning for improved rights, services and opportunities to help create a society that works for autistic people.
Home - SATB2 Gene Foundation
OUR MISSION The SATB2 Gene Foundation, Inc. was established to enrich the lives of individuals with SATB2-associated syndrome, including those diagnosed with the condition and their families, through support, research and education. Our mission will be met by raising awareness about the characteristics of SATB2-associated syndrome, providing support to families, and supporting research in
Author: Brett Garwood
Angelman Syndrome Association of WA – Providing support in Western Australia since 2007
Our mission is to support, inform, educate, network, and advocate for families with a child with Angelman Syndrome
UK Public Records Resources - publicrecordsearch.co.uk
Millions of people are searching for information online. People are looking for many things including information about their lost family, relatives, ancestors or family lineage. In UK the government archives keep all sorts of information about the country and her people’s history. This includes family trees, marriage documents, adoption documents, and other legal documents that […]
Lennox-Gastaut Syndrome | Living With LGS
Get to know Lennox-Gastaut Syndrome. Find useful information to help you learn about treatment options, caregiver support, and more.
Bipolar UK
Bipolar UK is the national charity dedicated to supporting individuals with the much misunderstood and devastating condition of bipolar, their families and carers.
Author: Author Michael Morgan
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UK Coloured Pencil Society
UK Coloured Pencil Society - to promote the use of coloured pencil as a fine art medium and support artists who use coloured pencil at all levels
Author: Liz Ridley
Home - The Vitiligo Society
Established in 1985, The Vitiligo Society is a charity who supports, inspires and educates about vitiligo. UK based, global reach.
Central Pain Syndrome
This Central Pain Syndrome (CPS) website describes this specific type of pain and provides information about the cause and prognosis. The Central Pain Syndrome website also discusses treatment and pain management plans. In addition, there is a support forum for CPS sufferers to discuss common issues. Central Pain Syndrome is a website created and owned by The **** Network.
Down Syndrome Diagnosis Network
The mission of DSDN is to connect, support, and provide accurate information for families with a Down syndrome diagnosis. Our vision is to ensure families have unbiased and factually accurate diagnosis experiences, every time, through which families quickly know they're not alone.
Home – Li-Fraumeni Syndrome Association: LFS Patient Advocacy | Support | Research | Awareness
LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li-Fraumeni Syndrome.
Author: LFS Association
Ostomy New Zealand – Ostomy NZ – Ostomates News &
Welcome Ostomates! Ostomy NZ work's with member societies, individuals and families to promote quality of life for people with an Ostomy through education, support and advocacy. LEARN MORE ABOUT ONZ Get information about Ostomy surgery, living with
Smile CBD - 100% Natural & Organic | Buy CBD Oil UK
We’re passionate about helping people in the UK lead healthier and happier lives. We’re a small family-run business
MS-UK
This is the home page for MS-UK, About us MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full. We put people affected by MS at the heart of our work. We provide high quality, professional services to support people living with multiple sclerosis, and we listen to
Smith-Magenis Syndrome Australia |
Has your child or loved one recently been diagnosed with Smith-Magenis Syndrome (SMS)? Are you seeking local connection and support? SMS Australia is a local not-for-profit organisation which drives awareness, support and a sense of community; enhancing the lives of children with SMS, and their families.
The Gender Society - The Gender Society - Transgender Community
The Gender Society Social networking, support, resources and information for transsexuals, transvestites, crossdressers and transgender people everywhere.
Hearing Link - UK Hearing Loss Charity
We are Hearing Link - a leading UK charity for people with hearing loss, their families and friends. Contact us for support, information and advice.
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Editions H2T | France | Manga | Création
Maison d'Edition spécialisée dans la création manga.
Zanshin Erlangen - Selbstverteidigung speziell für Frauen | Kampfkunst
Selbstverteidigungskurse für Frauen, Kampfkunst und Workshops in Nürnberg, Fürth, Erlangen, Heroldsberg, Altdorf, Uttenreuth und Eckental.
Stoffenwinkel Antwerpen | Stoffe & Koffe
Ontdek het ruime aanbod stoffen en fournituren van onze stoffenwinkel in Schoten, Antwerpen, online of kom langs voor een lekkere kop koffie!
Jan Hlaváč | Mediakom | Česko
MEDIAKOM s.r.o.: specialisté na public relations (PR) a vztahy s médii. Propojujeme klienty s širokou veřejností, klíčovými novináři, zájmovými skupinami a influencery. Vytváříme obsah o který je mediích zájem. Garantem tvorby obsahu je Jan Hlaváč, mnohaletý profesionál v oblasti public relations.
Formaconsult | agréé CSE-SSCT | formation, conseil et expertise
Membre du CSE, de la commission SSCT, Formaconsult est à vos côtés partout en France tout au long de votre mandat par divers accompagnements juridiques et comptables.
Home | zvonainari
Marketing Criativo | Marketing Criativo & Sustentabilidade
Bem vido a plataforma de conteúdo sobre marketing criativo, cultural e digital, agregando ferramentas de renúncia fiscal e leis de incentivo a cultura.
Terapia Del Dolore | AgriLab | Albenga
AgriLab - Terapia del Dolore, Trattamento Malattie Autoimmuni e Fibromialgia. La 4-Step Therapy é nata dopo anni e anni di ricerca mettendo insieme Puri Cristalli di CBD e Monossido di Azoto. Sede e negozio ad Albenga.
Wandern | Die Reisereporter | Niederöstereich | Fotoreise
Wanderungen und Ausflüge in Niederösterreich, Wanderreisen nach Österreich und Deutschland. Fotoreisen zum Nordlicht nach Norwegen
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Free college application consulting | 101education | Burnaby 免费的大学申请顾问，100%升学，优秀大学保录取计划
Храм Святителя Николая Чудотворца
Официальная страница храма святителя Николая Чудотворца в пос.Володарского (Богородское) Ленинского района МО.
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Borche & Asuaga Consultores - BAC es una firma que ofrece un amplio abanico de soluciones contables a la medida del cliente.
START | boutique retreats
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Magistram | Urbanisme Aménagement | Paris 1 Panthéon-Sorbonne
Magistram, association des étudiants et anciens étudiants de la formation en Urbanisme et Aménagement de Paris 1
GŁÓWNA | Composer
元亨書院｜中國哲學｜Taiwan
書院歷來是民間講學、論學與學術傳承極重要的一環，像是宋代四大書院，其影響即十分深遠，長久以來林安梧教授對書院的功能和價值一直心嚮往之，故邀集有共同理念的同好一起籌辦書院。希望藉由元亨書院舉辦定期學術活動，以文會友、以友輔仁，讓同好可以發表學習心得成果，也藉彼此學術交流，擴展領域、增廣見聞，深化學養，以傳承學術命脈，發揚文化傳統。
Social Justice Education | Reading Is Resistance
Reading Is Resistance is a small, local, grassroots organization started by North Portland educators and parents Farnell Newton and Zapoura Newton-Calvert in 2016. Reading is Resistance provides educational materials and resources with social justice and anti-bias learning in mind.
Evangelização Infantil | SEDAC Evangelização Brasil
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School | Sto. Niño Academy | Bocaue
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Associations | Comité Animation de Chantenay-Villedieu | France
Acccueil du site du comité animation de Chantenay-Villedieu. Rillette Festivités Association
学習教室 | Educasan | ベルギー
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Turbo Trading Corp
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Dog Training|Daycare|The Dog Spot Training & Enrichment Center|Loganville GA
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