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HRA | Hra-veba
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Rare Disease Database
Hypermobile Ehlers-Danlos syndrome and physiotherapy were the main keywords of the research. [Results] 1, articles emerged from the.
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Welcome to the Sensi Pharma website
Sensi Pharma is dedicated to developing the highest quality medicinal cannabis as well as providing cannabis consultancy services to both medicinal and governmental institutions.
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We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
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Curium Pharma is a nuclear medicine company dedicated to providing exceptional outcomes to patients by enabling the highest quality care. Learn more.
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CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
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Fleming Ecology, the provider of expert advice on the Habitats Directive and Habitats Regulations Assessment (HRA) for business and regulators across the UK.
alagille syndrome | rare liver disorder | great place for resources | 120
EVERY CONNECTION COUNTS Alagille Syndrome is a complex and sometimes frustrating syndrome. That’s why it's important that everyone coming here for information leaves feeling they have comprehensive support available at any time.
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Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
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Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
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Cush Media is dedicated to providing cost effective digital solutions to small and medium sized businesses.
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The Autoinflammatory Alliance is a non-profit dedicated to increasing awareness, care and treatment for patients with Cryopyrin-Associated Periodic Syndromes, including: NOMID/CINCA, Muckle-Wells (MWS) Familial Cold Autoinflammatory Syndromes (FCAS), and other autoinflammatory diseases.
Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support
The Autoinflammatory Alliance is a non-profit dedicated to increasing awareness, care and treatment for patients with Cryopyrin-Associated Periodic Syndromes, including: NOMID/CINCA, Muckle-Wells (MWS) Familial Cold Autoinflammatory Syndromes (FCAS), and other autoinflammatory diseases.
Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support
The Autoinflammatory Alliance is a non-profit dedicated to increasing awareness, care and treatment for patients with Cryopyrin-Associated Periodic Syndromes, including: NOMID/CINCA, Muckle-Wells (MWS) Familial Cold Autoinflammatory Syndromes (FCAS), and other autoinflammatory diseases.
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BioCryst designs and develops small molecule medicines for rare diseases like hereditary angioedema (HAE) and fibrodysplasia ossificans progressive (FOP).
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Medicines for rare diseases Discover ORPHELIA Pharma Development of essential medicines in the field of pediatric and rare diseases. Read more Discover Products & Projects Focus on deadly epileptic childhood syndromes and refractory and relapsed pediatric cancers. therapeutics areas Our products Latest news Visit our news flow to access our press release and latest news. […]
BALAJI PHARMA
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Our endeavor is to provide affordable yet highest quality medicines to everyone.
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Welcome to NEUPRO® (rotigotine transdermal system)
NEUPRO is a prescription medicine used to treat Parkinson's disease and moderate-to-severe primary restless leg syndrome. View Important Safety Information.
The Rare Village Foundation -Resources for Rare Families
Rare Village is a non-profit foundation dedicated to providing resources for families with rare disease children.
Arten Pharma
Arten Pharma is an international pharmaceutical wholesaler company providing brand name and generic medicines to its clients in global market.
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we care about rare disease patients | Sobi North America
Sobi is dedicated to developing and delivering innovative therapies to improve the lives of rare disease patients.
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Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.
Are you living with a rare disease? | Honeycomb Health
Honeycomb empower patients suffering from rare diseases by providing them with the ability to securely store, access, and share their health information all in one.
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
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Lyme Disease Network (LymeNet): a non-profit org dedicated to providing physicians, patients and researchers with current info on tick-borne illnesses
Lyme Disease Network
Lyme Disease Network (LymeNet): a non-profit org dedicated to providing physicians, patients and researchers with current info on tick-borne illnesses
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