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Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
Home - Rare Diseases India Foundation
Consumers India | A non profit organization
Consumers India is an organization comprising senior officers of Govt. of India who have joined to use their knowledge & experience for the well being of consumers.
Lyme Disease Non-Profit Organization | LivLyme Foundation
Hello, my name is Olivia,and I have Lyme disease. When I was 12 years old, I started the LivLyme Foundation to raise money for children that cannot afford their Lyme medication, and to raise money to find a cure for all of us suffering from Lyme disease. Thank you for visiting my website, and remember you are just one bite away from getting Lyme disease.
Non-Profit Organization | Rare Heart | United States
Rare Heart is a Non-Profit Organization that mission is about exploiting universal love and placing it on aplatform to be recognized more frequently.
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Rare Disease News, Perspectives & Resources - Rare Disease Advisor
more news >> more features >> Rare Care Podcast Browse Rare Disease Advisor's engaging "Rare Care" podcast series, featuring
Author: Ryner Lai; MBBS
Rare Disease Legislative Advocates | EveryLife Foundation for Rare Diseases
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
Rare Disease Database
Hypermobile Ehlers-Danlos syndrome and physiotherapy were the main keywords of the research. [Results] 1, articles emerged from the.
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
Recycle India Foundation | Non profit organization
Recycle India Foundation is an NGO that works for purifying our environment and making our lives better by educating, promoting and working in recycling plastic and E-Wastes.
Author: Recycle India
Little Love India | Non Profit Organization
Little Love is Non Profit Organization that works towards helping children and animals in India
Author: Vansh Bordia
VHAI Non-Profit Organizations Public Health Organizations in India
VHAI working on Non-Profit Organizations in India, Public Health Organizations in India, Public Health Organizations in Delhi India.
Rare Diseases Ireland – Supporting rare disease patients and their families in Ireland
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
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Indian Dances Organizers in Delhi, India
Indian dances organizers in India, Rajasthan, Haryana, Punjabi, Manipuri, Gujarati dances organizations in delhi, Indian folk dances organizations in delhi
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
CENTOGENE - The Rare Disease Company
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
Journal of Rare Cardiovascular Diseases
international, quarterly, peer reviewed journal that keeps cardiologists up to date with rare disorders of heart and vessels.
Author: Podolec P
Rare Genetic Diseases | Ultragenyx
Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases. Founded in 2010, the company has rapidly built a diverse portfolio of product candidates with the potential to address diseases for which the unmet medical need is high, the biology for treatment is clear, and for which there are no approved therapies.
Rare Disease Day Australia
HRA Pharma Rare Diseases
Dedicated to Cushing's syndrome and Adrenocortical Carcinoma and providing important medicines: Metopirone (Metyrapone), Ketoconazole HRA, Lysodren (Mitotane).
Centre for Rare Cardiovascular Diseases
Visit the post for more.
Rare Diseases and Orphan Drugs
Radico - Rare Disease Cohorts
L’objectif principal de RaDiCo est le recueil prospectif, dans le domaine des maladies rares (MR), de données phénotypiques extensives à des fins de recherche clinique et épidémiologique en lien avec la recherche translationnelle et fondamentale. Ces données peuvent être diverses : anatomiques (imagerie médicale), biochimiques, moléculaires, etc.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
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Mother India Charitable Trust – Non Profit Organization
Non Profit Organization for children| India,USA - ANNAMRITA
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Udaan India Foundation | Non profit organization in Mumbai
Udaan India Foundation (Udaan) is a non profit organization in Mumbai working with children from low-income communities in the field of education.
Non-Profit Organization
Goodwill Mokan is a non-profit organization that uses its resources to empower people through employment services offered in the Kansas City area. Learn more here!
Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Non Profit Organizations – Non Profit Szervezetek
Non Profit Organizations Search | Find Non Profit Organizations | NonProfitList.org
View our listings of non profit organizations. We provide information, details, and maps of all non profit organizations. Add your non profit organization with us for free.
What else rarediseases.in alternative websites
Diploid - Supporting Rare Disease Diagnostics
HCP Login | Rare Metabolic Diseases
F2G
- The Rare Fungal Disease Company
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Startseite - Rare Diseases Academy 2021
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Northern Ireland Rare Disease Partnership
Radiorg – Rare Diseases organisation Belgium
Edelweiss Awards 2021 Belgische koepel voor patiënten met een zeldzame ziekte RaDiOrg is de Belgische koepelvereniging voor mensen met een zeldzame ziekte. Wij tellen meer dan 80 verenigingen voor specifieke zeldzame ziekten en tellen ook honderden individuele leden met een ziekte waarvoor geen vereniging bestaat. Onze missie? Zorgen dat de stem van de zeldzame ziekten wordt gehoord door beleidsmakers. Het grote publiek sensibiliseren voor de zeldzame ziekten. De weg wijzen met heldere informatie. Mensen met zeldzame ziekten verbinden. Ruchtbaarheid geven aan de activiteiten voor en door mensen met zeldzame ziekten. We zijn zeldzaam, maar we zijn talrijk! Nieuws Blijf op
Rare Disease Action Forum | RDAF
HCP Login | Takeda Rare Diseases
Zogenix - Therapeutic Solutions for Rare Diseases
Zogenix is committed to developing and commercializing transformative therapies to improve the lives of patients and their families living with rare diseases.
CureCMT4J | Advancing Treatments for Rare Diseases
Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
RAMEDIS: Rare Metabolic Diseases Database
The RAMEDIS system is a platform independent, web-based information system for rare metabolic diseases based on filed case reports
Author: Bielefeld University Faculty
RAREVE - relieve people with rare diseases
In Rareve our mission is to relieve people with rare diseases. Build a community, knowledge base and full of support and professional help place for people. If you feel that you need help, or you can help yourself, than…
Rare Diseases: Models & Mechanisms Network
HCP Login | Takeda Rare Diseases
Other websites similar as rarediseases.in
My Normal | storytelling for rare disease health
My Normal | storytelling for rare disease health
Author: My Normal
AllStripes - Be part of the solution for your rare disease
We empower patients and communities to change the way that **** development happens in rare disease.
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
Miracle Foundation India | International Non-Profit Organization For Children
Miracle Foundation India is an international non-profit organization for children, partnered with over 300 Child Care Institutions in India.
Welcome to Rare Opportunities in Primary Care, your source for information on primary care in rare diseases
Asbestos Disease Awareness Organization - ADAO - Asbestos Disease Awareness Organization
Author: Linda Reinstein
Indian Non-communicable diseases network
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Author: Manyavar Kanshi Ram Founder fo BSP; DS-4; BAMCAF
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