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Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
ICORD | International Collaboration on Rare Diseases and Orphan Drugs
ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs.
Author: Published; Last Modified
Pharma Conference London | Orphan Drugs & Rare Diseases 2022
Orphan Drugs & Rare Diseases Global Congress is a unique tri-annual Congress for the orphan **** & industry, taking place on the 13th-15th of September 2021.
Author: Paradigm Global Events
Orphan Disease Therapy and **** Accelerator | Cydan
Cydan accelerates compelling science and develops that path for efficiently launching companies to bring those assets to orphan disease patients. Read more.
AI Therapeutics - Life Saving Drugs for Rare Diseases
At AI Therapeutics, we are focused on identifying and developing treatments for rare orphan conditions. Our current clinical stage **** candidates target several orphan disorders including pulmonary sarcoidosis, bronchiolitis obliterans post lung transplant and amyotrophic lateral sclerosis (ALS).
AcceleRare – Advancing **** discovery for rare diseases
Advancing **** discovery for rare diseases
Institute for Rare and Neglected Diseases **** Discovery - iRND3
iRND3 is a non-profit company addressing unmet medical needs for rare and neglected diseases by discovering innovative **** molecules for development as affordable, quality, medicines.
BioCryst | **** Drugs for HAE and Other Rare Diseases | Home
BioCryst designs and develops small molecule medicines for rare diseases like hereditary angioedema (HAE) and fibrodysplasia ossificans progressive (FOP).
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Rare Disease News, Perspectives & Resources - Rare Disease Advisor
more news >> more features >> Rare Care Podcast Browse Rare Disease Advisor's engaging "Rare Care" podcast series, featuring
Author: Ryner Lai; MBBS
Rare Disease Legislative Advocates | EveryLife Foundation for Rare Diseases
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
Rare Disease Database
Hypermobile Ehlers-Danlos syndrome and physiotherapy were the main keywords of the research. [Results] 1, articles emerged from the.
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
Orphan **** Discovery and Development
Orphan **** Discovery and Development
Author: Gennome com
Rare Diseases Ireland – Supporting rare disease patients and their families in Ireland
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Other sites like rarejournal org
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
IORD - Indian Organization for Rare Diseases | A not-for-profit organization for Rare Diseases in India.
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
CENTOGENE - The Rare Disease Company
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
Journal of Rare Cardiovascular Diseases
international, quarterly, peer reviewed journal that keeps cardiologists up to date with rare disorders of heart and vessels.
Author: Podolec P
Rare Genetic Diseases | Ultragenyx
Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases. Founded in 2010, the company has rapidly built a diverse portfolio of product candidates with the potential to address diseases for which the unmet medical need is high, the biology for treatment is clear, and for which there are no approved therapies.
Rare Disease Day Australia
HRA Pharma Rare Diseases
Dedicated to Cushing's syndrome and Adrenocortical Carcinoma and providing important medicines: Metopirone (Metyrapone), Ketoconazole HRA, Lysodren (Mitotane).
Centre for Rare Cardiovascular Diseases
Visit the post for more.
Radico - Rare Disease Cohorts
L’objectif principal de RaDiCo est le recueil prospectif, dans le domaine des maladies rares (MR), de données phénotypiques extensives à des fins de recherche clinique et épidémiologique en lien avec la recherche translationnelle et fondamentale. Ces données peuvent être diverses : anatomiques (imagerie médicale), biochimiques, moléculaires, etc.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
Amir health care | Drugs and Diseases
Drugs and Diseases
Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Diploid - Supporting Rare Disease Diagnostics
HCP Login | Rare Metabolic Diseases
F2G
- The Rare Fungal Disease Company
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Startseite - Rare Diseases Academy 2021
What else rarejournal.org alternative websites
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Northern Ireland Rare Disease Partnership
Radiorg – Rare Diseases organisation Belgium
Edelweiss Awards 2021 Belgische koepel voor patiënten met een zeldzame ziekte RaDiOrg is de Belgische koepelvereniging voor mensen met een zeldzame ziekte. Wij tellen meer dan 80 verenigingen voor specifieke zeldzame ziekten en tellen ook honderden individuele leden met een ziekte waarvoor geen vereniging bestaat. Onze missie? Zorgen dat de stem van de zeldzame ziekten wordt gehoord door beleidsmakers. Het grote publiek sensibiliseren voor de zeldzame ziekten. De weg wijzen met heldere informatie. Mensen met zeldzame ziekten verbinden. Ruchtbaarheid geven aan de activiteiten voor en door mensen met zeldzame ziekten. We zijn zeldzaam, maar we zijn talrijk! Nieuws Blijf op
Rare Disease Action Forum | RDAF
HCP Login | Takeda Rare Diseases
Zogenix - Therapeutic Solutions for Rare Diseases
Zogenix is committed to developing and commercializing transformative therapies to improve the lives of patients and their families living with rare diseases.
CureCMT4J | Advancing Treatments for Rare Diseases
RAMEDIS: Rare Metabolic Diseases Database
The RAMEDIS system is a platform independent, web-based information system for rare metabolic diseases based on filed case reports
Author: Bielefeld University Faculty
RAREVE - relieve people with rare diseases
In Rareve our mission is to relieve people with rare diseases. Build a community, knowledge base and full of support and professional help place for people. If you feel that you need help, or you can help yourself, than…
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
Rare Diseases: Models & Mechanisms Network
HCP Login | Takeda Rare Diseases
My Normal | storytelling for rare disease health
My Normal | storytelling for rare disease health
Author: My Normal
Home - Rare Diseases India Foundation
AllStripes - Be part of the solution for your rare disease
We empower patients and communities to change the way that **** development happens in rare disease.
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
Welcome to Rare Opportunities in Primary Care, your source for information on primary care in rare diseases
Other websites similar as rarejournal.org
Erytech – We are a clinical-stage biopharmaceutical company developing innovative therapies for rare forms of cancer and orphan diseases.
Checker **** and disease interaction | disedoc.com
Checker of disease and alcohol interactions from the service disedoc.com. We use information from reputable references and websites.
Home - Huntington’s Disease **** Works
Education and support for people with Huntington's disease
Orphan No more - Orphan No More Co
A creative community located in Bath, UK. Bringing redemptive art to the table through music, books, podcasts, merchandise and blogs.
No More Orphans – No More Orphans
Jack McGovern Coats' Disease - Rare Eye Disease - Home Page
Jack McGovern Coats' Disease - Funds research to find a cure for Coats’ Disease and pediatric retinal Disease - We serve as a hub for the Coats’ Disease community
Intractable & Rare Diseases Research - Current Issue
BioScienceTrends
Author: Yang D; Ren X; Lu Y; Han J
Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
Author: Drawesome
3billion | Genetic test for rare disease patients
Patients with rare genetic disease undergo long odyssey to receive a diagnosis. Visit 3billion and find how to order our rare disease genetic testing.
Developing novel therapeutics for the treatment of rare diseases.
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Electronic Journal of Graph Theory and Applications (EJGTA)
Electronic Journal of Graph Theory and Application
Author: Thomas Schweser; Michael Stiebitz
International Journal of Progressive Sciences and Technologies
The International Journal of Progressive Sciences and Technologies is a peer reviewed journal and indexed journal with an open source access. Moreover, it is a fast publishing journal with impact factor and a journal with fast review process.
Author: Olimova Nargiz Gulamovna; Alieva Rena A’zer kizi
European Journal of Chemistry
European Journal of Chemistry
Author: Hakan Arslan
Open Praxis
Open Praxis is a peer-reviewed open access scholarly journal focusing on research and innovation in open, distance and flexible education
Bina Hukum Lingkungan
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Revista de Direito Público Contemporâneo
Revista de Direito Público
Journal of Education in Science, Environment and Health
Author: Gokhan Kaya; Metin Sardag
International Journal of Learning, Teaching and Educational Research
International Journal of Learning, Teaching and Educational Research
Revista Mediterránea de Comunicación
Revista electrónica, académica y científica de Comunicación Social en open access
Author: Aportaciones femeninas para romper el techo de cristal [Editorial] Carmen Marta-Lazo
South African Journal of Occupational Therapy
Occupational Therapy in Africa
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Journal of English Language Teaching and Linguistics
Journal of English Language Teaching and Linguistics
Author: Mohammad Amiruddin; Ukhti Raudhatul Jannah
Jurnal IUS Kajian Hukum dan Keadilan
jurnal ius kajian hukum dan keadilan
Author: Ria Casmi Arrsa; Anindita Purnama Ningtyas; Fransiska Ayulistya Sutanto
Galen Medical Journal
GMJ is the Official Publication of Noncommunicable Diseases (NCD) Research Center of Fasa Universities of Medical Sciences.
Author: Farzaneh Agha-Hosseini; Mahdieh-Sadat Moosavi; Sanam Talaei
JURNAL ILMU FAAL OLAHRAGA INDONESIA
Author: Wigit Kisworo; Hamidie Ronald Daniel Ray; Ugelta Surdiniaty
Scientific Papers Animal Science and Biotechnologies
Journal of Radiology Case Reports
Journal of Radiology Case Reports is a journal dedicated to publishing Radiology case reports and review articles
Journal of Radiology Case Reports
Journal of Radiology Case Reports is a journal dedicated to publishing Radiology case reports and review articles
Journal of Radiology Case Reports
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Атомная энергия
Ежемесячный теоретический и научно-технический журнал министераства Российской Федерации по атомной энергии, Ядерного общества России и Российской академии наук. Публикует обзорные и оригинальные статьи, посвященные последним достижениям в России в области мирного использования атомной энергии. Тематика журнала включает следующие разделы: ядерная физика и химия, физика плазмы, ускорители, ядерная энергетика, радиохимическая промышленность, теория и практика обращения с радиоактивными отходами, радиационная безопасность и радиоэкология, а также научные аспекты обеспечения безопасности АЭС и предприятий ядерного топливного цикла.
Author: Г Г Гладуш; С В Мирнов; А В Лопаткин; И Б Лукасевич
Journal of Radiology Case Reports
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The Eurasia Proceedings of Health, Environment and Life Sciences
Author: Merita Rumano; Lorena Kola Bida; Elvisa Rumano
Journal of Radiology Case Reports
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Transactions on Environment and Electrical Engineering
Transactions Environment and Electrical Engineering ISSN 2450-5730 is a peer-reviewed, open access interdisciplinary journal that publishes original research articles, review articles, and case studies in all areas of Electrical, Electronic and Environmental Engineering.
Author: Murat Kubilay Ozguc; Eymen Ipek; Kadir Aras; Koray Erhan
International Journal of Technology in Education
International Journal of Technology in Education
Author: Kimberly Woods; Jillian L Wendt; Amy Barrios; Rebecca Lunde
Journal of Radiology Case Reports
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Journal of Ethnic and Cultural Studies
Journal of Ethnic and Cultural Studies
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Journal of Radiology Case Reports
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International Journal of Advances in Intelligent Informatics
International Journal of Advances in Intelligent Informatics is a peer reviewed open-access journal. The journal invites scientists and engineers throughout the world to exchange and disseminate theoretical and practice-oriented topics of advances in intelligent informatics which covers four (4) majors areas of research that includes 1) Machine Learning and Soft Computing, 2) Data Mining & Big Data Analytics, 3) Computer Vision and Pattern Recognition, and 4) Automated reasoning. Submitted papers must be written in English for initial review stage by editors and further review process by minimum two international reviewers.
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