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Intractable & Rare Diseases Research - Current Issue
BioScienceTrends
Author: Yang D; Ren X; Lu Y; Han J
Rare Disease Research Partners – Helping people
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
Alzheimer's Disease DNA – DNA Testing for Alzheimer's Disease
Alzheimer's Disease (APOE) DNA Test Find out if you are at increased risk of Late-Onset Alzheimer's Disease. Alzheimer's is a progressive debilitating disease characterized by memory loss in its early stages More than 5.4 million Americans have Alzheimer's Disease The APOE e4 genetic type increases the lifetime risk of late-onset Alzheimer’s disease by 3- to
Author: Dnaserver
Celiac Disease DNA – DNA testing for Celiac disease
Celiac Disease DNA Test (HLA-DQA1 and HLA-DQB1) Find out if you are at increased risk Celiac disease is an autoimmune disorder triggered by gluten consumption Celiac disease affects up to 1 in 100 people Nearly 100% of celiac patients carry one or more of these alleles; HLA-DQA1*05, HLA-DQB1*02 and HLA-DQB1*0302 Having a family member with
Author: Dnaserver
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Cloud-R | Rare disease from a community to data | Italy
Cloud-r digital startup focuses on digital solutions and processes for the collection and analysis of observational data on rare diseases.
TBTBGLOBAL - Helping the rare and cancer disease communities
We are TBTB Global a company dedicated to help other companies to improve their business and lifestyle of patients dealing with cancer and rare disease.
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Rare Disease News, Perspectives & Resources - Rare Disease Advisor
more news >> more features >> Rare Care Podcast Browse Rare Disease Advisor's engaging "Rare Care" podcast series, featuring
Author: Ryner Lai; MBBS
Rare Disease Legislative Advocates | EveryLife Foundation for Rare Diseases
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
Rare Disease Database
Hypermobile Ehlers-Danlos syndrome and physiotherapy were the main keywords of the research. [Results] 1, articles emerged from the.
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
dna Communications | dna Communications
dna Communications
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
UK ATTR Amyloidosis Research Association - Journal of Rare Diseases
Journal of Rare Diseases
Author: Jayden Ortiz
Rare Diseases Ireland – Supporting rare disease patients and their families in Ireland
Other sites like dnaid co
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Chronic Disease Innovation Centre | Accelerating research at the speed of business
Author: SevenOaksCDIC
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
IORD - Indian Organization for Rare Diseases | A not-for-profit organization for Rare Diseases in India.
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
CENTOGENE - The Rare Disease Company
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
Journal of Rare Cardiovascular Diseases
international, quarterly, peer reviewed journal that keeps cardiologists up to date with rare disorders of heart and vessels.
Author: Podolec P
Rare Genetic Diseases | Ultragenyx
Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases. Founded in 2010, the company has rapidly built a diverse portfolio of product candidates with the potential to address diseases for which the unmet medical need is high, the biology for treatment is clear, and for which there are no approved therapies.
Rare Disease Day Australia
HRA Pharma Rare Diseases
Dedicated to Cushing's syndrome and Adrenocortical Carcinoma and providing important medicines: Metopirone (Metyrapone), Ketoconazole HRA, Lysodren (Mitotane).
Centre for Rare Cardiovascular Diseases
Visit the post for more.
Rare Diseases and Orphan Drugs
Radico - Rare Disease Cohorts
L’objectif principal de RaDiCo est le recueil prospectif, dans le domaine des maladies rares (MR), de données phénotypiques extensives à des fins de recherche clinique et épidémiologique en lien avec la recherche translationnelle et fondamentale. Ces données peuvent être diverses : anatomiques (imagerie médicale), biochimiques, moléculaires, etc.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
The Rare Breed Digital by DNA
Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
One Platform. All Together.
SimpleNexus is the mortgage industry's Mobile Originator bi-directional platform bridging loan originators, real estate, and borrowers.
Research in Plant Disease
Research in Plant Disease is an international journal for papers related to fundamental research that advances understanding of the nature of plant diseases and rapid reporting of research on new diseases, epidemics and methods for disease control. It covers basic and applied research focusing on practical aspects of disease diagnosis and treatment
Author: Hyo-Jeong Lee; Ki Beom Park; Yeon Soo Han; Et Al
DNAP: DNA Platform
DNAP, which is Dynamic Nuchwezi Architecture Platform, is a suite of technologies for simplified data and business engineering
What else dnaid.co alternative websites
Tech Community - A community platform for companies to Collaborate and Work together
Forschungsverbünde - Research for Rare
Translationsorientierte Forschung zu seltenen Erkrankungen Seit 2003 fördert das BMBF Forschungsvorhaben, deren Ziel es ist, durch Grundlagen- und Therapieforschung die Diagnostik seltener Erkrankungen zu beschleunigen und den Betroffenen zügig eine adäquate Behandlung zu ermöglichen. Durch Vernetzung und Zusammenschluss von Spezialist*innen zu diesen bundesweit tätigen Forschungsverbünden kann dem Problem der geringen Patient*innenzahlen entgegengetreten und neueste Erkenntnisse […]
Accelerate Communications
Communications & Civils - Design & Construct - Servicing Brisbane, Mackay, and all of Queensland.
A career accelerator platform.
Accelerating your career growth with curated content and proper mentoring .
Author: A career accelerator platform
Research Accelerator Membership
Author: Denise Fyffe; Senior Research Scientist; Kessler Foundation United States
Energy Research Accelerator | ERA
ERA is the first truly embedded cross-disciplinary energy research partnership in the UK.
Advanced Data Science Experts, AI Driven Platform, Accelerate Disease Diagnosis | 81qd
81qd uniquely integrates data science, medical strategy, and marketing expertise to generate the analytics-driven solutions that produce results. Our methods of utilizing advanced data science and artificial intelligence (AI) technology to accelerate disease diagnosis, drive product adoption, and maximize therapy adherence have benefited clients across a wide breadth of therapeutic areas.
Diploid - Supporting Rare Disease Diagnostics
HCP Login | Rare Metabolic Diseases
F2G
- The Rare Fungal Disease Company
Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Startseite - Rare Diseases Academy 2021
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Northern Ireland Rare Disease Partnership
Radiorg – Rare Diseases organisation Belgium
Edelweiss Awards 2021 Belgische koepel voor patiënten met een zeldzame ziekte RaDiOrg is de Belgische koepelvereniging voor mensen met een zeldzame ziekte. Wij tellen meer dan 80 verenigingen voor specifieke zeldzame ziekten en tellen ook honderden individuele leden met een ziekte waarvoor geen vereniging bestaat. Onze missie? Zorgen dat de stem van de zeldzame ziekten wordt gehoord door beleidsmakers. Het grote publiek sensibiliseren voor de zeldzame ziekten. De weg wijzen met heldere informatie. Mensen met zeldzame ziekten verbinden. Ruchtbaarheid geven aan de activiteiten voor en door mensen met zeldzame ziekten. We zijn zeldzaam, maar we zijn talrijk! Nieuws Blijf op
Rare Disease Action Forum | RDAF
HCP Login | Takeda Rare Diseases
Other websites similar as dnaid.co
Zogenix - Therapeutic Solutions for Rare Diseases
Zogenix is committed to developing and commercializing transformative therapies to improve the lives of patients and their families living with rare diseases.
CureCMT4J | Advancing Treatments for Rare Diseases
Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
RAMEDIS: Rare Metabolic Diseases Database
The RAMEDIS system is a platform independent, web-based information system for rare metabolic diseases based on filed case reports
Author: Bielefeld University Faculty
RAREVE - relieve people with rare diseases
In Rareve our mission is to relieve people with rare diseases. Build a community, knowledge base and full of support and professional help place for people. If you feel that you need help, or you can help yourself, than…
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
Rare Diseases: Models & Mechanisms Network
HCP Login | Takeda Rare Diseases
My Normal | storytelling for rare disease health
My Normal | storytelling for rare disease health
Author: My Normal
Home - Rare Diseases India Foundation
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We make risk assessment of enterprise IT systems faster and more reliable for cyber security professionals. SPYDERISK automates four processes: it finds all the threats in a system, following the web of attack paths; it calculates risk based on the threat likelihood and business impact; it proposes mitigations, drawn from a detailed knowledgebase; and finally, it generates the reports needed to get ISO 27001 certification. This is vital because right now such risk analysis is generally done manually and is therefore time-consuming and error-prone.
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Software | Prague | Soulution
Software development boutique company based in Prague. We build reliable software with love and reasonable pricing. We do web applications with React JS, cloud computing, Amazon AWS and modern frameworks. Clean design, simple and effective.
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Author: Info Com
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