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NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
The Rare Village Foundation -Resources for Rare Families
Rare Village is a non-profit foundation dedicated to providing resources for families with rare disease children.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Wisconsin RARE
Wisconsin Rare is a coalition of rare disease stakeholders formed to organize the state's recognition of Rare Disease Day. Collaborate with us February 2017.
Author: Ginaszajnuk Com
Support for patients with chronic illness or rare disease
We provide social-emotional support for patients, teens, young adults, and seniors who are living with chronic illness, rare disease, long-covid, who are undiagnosed, or who are carriers of disease. Connect with patients, make a friend, get support, chronic illness coach, society for teens.
Author: Chronic Warrior Collective
swii.ch health | Rare Disease Patient Engagement Agency
Focused on rare diseases and specialty markets, we are a patient engagement agency serving pharmaceutical and biotech clients.
RARE-e-CONNECT - RARE-e-CONNECT
Secure multidisciplinary collaboration and knowledge sharing on rare diseases. For Healthcare Professionals and patients within Cyprus and abroad, large repository of medical centres in Europe and other countries with verified expertise in rare disease groups and rare diseases, Patient life stories, Continuous Medical Education via webinars and automated newsfeeds from key medical databases to stay up to date with important developments and clinical trials in rare diseases.
Author: Super User
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Crinetics - Developing Therapies For Rare Endocrine Diseases
Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
Rare Disease News, Perspectives & Resources - Rare Disease Advisor
more news >> more features >> Rare Care Podcast Browse Rare Disease Advisor's engaging "Rare Care" podcast series, featuring
Author: Ryner Lai; MBBS
Maladies rares - EMRaDi
Euregio Meuse-Rhine Rare Diseases
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Dolon | Rare diseases strategic pricing and market access consultancy
Treatments for rare diseases face unique challenges in getting to market. Companies developing rare disease treatments need a specialised approach to prepare for pricing and reimbursement negotiations globally. At Dolon, we specialise in strategic pricing and market access for rare and severe diseases.
Project Sebastian A Rare Disease Foundation Funding Support
We at Project Sebastian gives support, funding and hope to families affected by a child with a rare disease. Provide education, therapies, and counseling.
Other sites like rarecollective org
Carion Fenn Network - Syringomyelia, Chiari Malformation, Rare & Chronic Diseases and Seniors Support.
Welcome to Carion Fenn Network. A place to share, learn & support. (Syringomyelia/Chiari Malformation/ Rare & Chronic Diseases & Seniors)
Author: Subscriber SM; CM
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
AllStripes - Be part of the solution for your rare disease
We empower patients and communities to change the way that **** development happens in rare disease.
Rare Medical Network
The only specialty-specific platform for rare disease information and education
My Normal | storytelling for rare disease health
My Normal | storytelling for rare disease health
Author: My Normal
Me, You and PKU – a rare disease, a wonderful life
a rare disease, a wonderful life
Author: Elisakb
Rare Coins and Collectibles - Rare Collectibles TV
Home of the finest rare coins, militaria, vintage movie posters, art & other collectibles
Author: Sign In
UK ATTR Amyloidosis Research Association - Journal of Rare Diseases
Journal of Rare Diseases
Author: Jayden Ortiz
Orphanews - Rare diseases newsletter - OrphaNews - International
Orphanews is the Newsletter of the Rare Diseases Community
AcceleRare – Advancing **** discovery for rare diseases
Advancing **** discovery for rare diseases
Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Peak body for Australians with rare diseases including genetic disorders
Many Voices ONE GOAL YOUR NATIONAL STRATEGIC ACTION PLAN FOR RARE DISEASES Read the Action Plan now Rare Voices Australia (RVA) is the peak national body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as
Impactful Medicines for Rare Neurological Disorders | Ovid Therapeutics
This is Ovid—where we are boldly transforming the lives of people affected by rare neurological diseases including Angelman syndrome, Fragile X syndrome and rare epilepsies.
Are you living with a rare disease? | Honeycomb Health
Honeycomb empower patients suffering from rare diseases by providing them with the ability to securely store, access, and share their health information all in one.
Rare Renal | The UK Kidney Association
It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested
Diseasemaps - World Maps of Chronic and Rare Diseases
Connect with people who share your disease and help each other. World Maps of Chronic and Rare Diseases. The main purpose of the project is to help people with chronic and rare diseases. Living with these diseases is usually hard and it is not always properly understood by society. Therefore, we want to spread awareness about all of them and help people who are nowadays suffering. Through this website, you can check how your disease is spread all over the world.
3billion | Genetic test for rare disease patients
Patients with rare genetic disease undergo long odyssey to receive a diagnosis. Visit 3billion and find how to order our rare disease genetic testing.
Rare and Collectible Books
Rare and collectible books for people who love books and collect them
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
What else rarecollective.org alternative websites
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Woodend Bookshop | Rare & Collectable Second Hand Books
Quality secondhand books, always buying, browsers welcome! We have carefully curated a selection of quality second hand books to suit all interests. Woodend Bookshop has it all, from the rare and collectible first editions to an ever revolving list of bargain literature in all genres!
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
CSL Behring | Rare Disease Biotech Company
CSL Behring is a global biotechnology leader driven by its promise to save and improve lives. We manufacture remedies for serious and rare diseases.
TBTBGLOBAL - Helping the rare and cancer disease communities
We are TBTB Global a company dedicated to help other companies to improve their business and lifestyle of patients dealing with cancer and rare disease.
Credit card collections, creditor judgements, fdcpa - Home
Angels of Debt provides clients with several options to eliminate bad debt. Our experts will evaluate your unique circumstances and will NEVER recommend a program that is not suited for you.
Keith McArthur – Author. Podcaster. Speaker. Rare Disease Dad.
Author. Podcaster. Speaker. Rare Disease Dad.
Rare Pepe Collection - Rare Pepe
This is a collection of Rare Pepe imagery. Theses Rare Pepes exist for viewing purposes only. If you would like to request rights to post any of these on 4chan, Reddit, Tumblr, 9gag or any other social media platform or discussion board, please send a request along with the link to the Pepe you would like […]
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
Sarepta Therapeutics | Biopharmaceutical Company for Rare Diseases
We are focused on the development of precision genetic medicines to treat rare neuromuscular and central nervous system diseases. Learn more about Sarepta.
US Rare Coin Investments|Tom Pilitowski Rare Coins
US Rare Coin Investments Tom Pilitowski is a high end rare coin dealer since 1979. Provides complete information on rare coins, rare gold coins, early gold.
Rare Pizzas Collectible NFTs
On Bitcoin Pizza Day (May 22nd), funded by our Rare Pizzas NFTs, we're throwing the World's Largest Pizza Party Ever! We spent >$300k on pizza in 2021, how much will we spend in 2022?!
Rare Coins - Gold Coins - Rare Coin Dealer - Rare Coins Gold - Albanese Rare Coins
Albanese Rare Coins, Inc. is America's premier dealer of certified coins, rare coins and currencies, with over 11,000 items in stock. Find gold coin values & buy and sell online today! On behalf of our clients, we assemble portfolios of rare investment grade coins for investors seeking diversity of their assets and a potentially high rate of capital appreciation. In fact, we've created some of the world's greatest rare coin portfolios. Albanese Rare Coins is a father and son owned rare coin busi
Rare Genetic Diseases | Ultragenyx
Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases. Founded in 2010, the company has rapidly built a diverse portfolio of product candidates with the potential to address diseases for which the unmet medical need is high, the biology for treatment is clear, and for which there are no approved therapies.
Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
Author: Drawesome
Home - NORD (National Organization for Rare Disorders)
NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.
Other websites similar as rarecollective.org
Aeglea BioTherapeutics | Rare Metabolic Disease | Home
Aeglea BioTherapeutics is a clinical stage company developing enzyme therapies for rare metabolic diseases like Arginase 1 Deficiency and Homocystinuria.
Gene Therapy for Rare Disorders Europe 2021 | Home
Dedicated to realising the commerical potential of gene therapies in the rare disease space. Download the full event guide today.
A Collected Man | Buy & sell rare pre-owned and independent watches
– A COLLECTED MAN
Driven by a passion for horology and the pursuit of beautiful things, A Collected Man, is a platform, for those who love and seek, rare, mechanical watches. We curate objects, that we believe enhance our enjoyment of that rare commodity, time, as ultimately, time is the only true luxury.
Author: A Collected Man
Rare Trait Hope Society - Aspartylglycosaminuria - AGU
AGU (Aspartylglycosaminuria) cure treatment gene therapy. Fund raiser. Rare disease.
Gillis Goldman Fine Art
We connect our clients with rare and outstanding works of art, providing expert advice on buying and collecting.
Home - HEFA Rare Earth Canada Ltd.
A world supplier of rare earth products. The products of Hefa are divided into three groups, seven series and over fifty varieties. The main products include single rare earth oxide, rare earth chloride, rare earth carbonate, rare earth nitrate; rare earth fluoride, mixed rare earth oxide and all kinds of rare earth concentrates; single rare earth metal, battery level mischmetal, hydrogen storage powder; nickel-hydrogen cell and cell group, etc.
Author: WideHope Systems
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
EURenOmics - improving the lives of those with rare kidney disease
EURenOmics aims to predict the disease course, develop novel tools for more accurate diagnoses and new and better therapies for rare kidney diseases.
Assisted Living - AvantGarde Senior Living
At AvantGarde Senior Living we know that each senior who comes through our doors has a unique set of interests and needs. We provide living arrangements that suit your lifestyle with various levels of care and personal assistance.
Bumble Plants - Rare Plants and Pots For Your Home
Bumble Plants is an online nursery for rare houseplants. Our mission is to match plant lovers with the perfect plants that suit their lifestyles and budget.
Author: Bumble Plants Team
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OAKK Beheerd Beleggen zorgt voor een beter rendement voor de financieel adviseur. Vermogensbeheerder in Rotterdam voor zowel Box 1 als Box 3. Lees verder.
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Great Kererū Count 2021 – citizen science in action
The Great Kererū Count is the largest national citizen science project to help gather information on the abundance and distribution of the New Zealand Pigeon
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Accueil - HUMAGOGIE L'humain au coeur de la pédagogie
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SEC4YOU - SEC4YOU
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**** Shop Seattle | Legal **** for Everyone 21+. Need ****?
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Betriebliche Altersvorsorge, Auslagerung Pensionszusagen
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Program do inwentaryzacji środków trwałych - ewidencja, generowanie kodów qr | NaviKolektor
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