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Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
RARE-e-CONNECT - RARE-e-CONNECT
Secure multidisciplinary collaboration and knowledge sharing on rare diseases. For Healthcare Professionals and patients within Cyprus and abroad, large repository of medical centres in Europe and other countries with verified expertise in rare disease groups and rare diseases, Patient life stories, Continuous Medical Education via webinars and automated newsfeeds from key medical databases to stay up to date with important developments and clinical trials in rare diseases.
Author: Super User
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
RAMEDIS: Rare Metabolic Diseases Database
The RAMEDIS system is a platform independent, web-based information system for rare metabolic diseases based on filed case reports
Author: Bielefeld University Faculty
Wisconsin RARE
Wisconsin Rare is a coalition of rare disease stakeholders formed to organize the state's recognition of Rare Disease Day. Collaborate with us February 2017.
Author: Ginaszajnuk Com
Rare Renal | The UK Kidney Association
It is often hard to find detailed information on rare diseases because they affect so few patients. Doctors may only treat a few patients with a rare disease in their whole career. This site aims to provide information and links to 27 different rare renal conditions and their current activity such as patient support groups and research. Please contact us if you are interested
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
swii.ch health | Rare Disease Patient Engagement Agency
Focused on rare diseases and specialty markets, we are a patient engagement agency serving pharmaceutical and biotech clients.
The Rare Village Foundation -Resources for Rare Families
Rare Village is a non-profit foundation dedicated to providing resources for families with rare disease children.
QOL Medical: Changing Lives
QOL Medical is a specialty biopharmaceutical company dedicated to improving the quality of life for patients with rare diseases. Learn more here.
Rare Disease News, Perspectives & Resources - Rare Disease Advisor
more news >> more features >> Rare Care Podcast Browse Rare Disease Advisor's engaging "Rare Care" podcast series, featuring
Author: Ryner Lai; MBBS
Maladies rares - EMRaDi
Euregio Meuse-Rhine Rare Diseases
Rare and Undiagnosed Network
To empower rare & undiagnosed patients and their families with genomic information and community through advocacy, networking and support.
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
eUROGEN - European Reference Network (ERN) for rare and complex urogenital diseases and conditions
European Reference Network (ERN) for rare and complex urogenital diseases and conditions
Other sites like raremedicalnetwork com
My Normal | storytelling for rare disease health
My Normal | storytelling for rare disease health
Author: My Normal
Me, You and PKU – a rare disease, a wonderful life
a rare disease, a wonderful life
Author: Elisakb
Project Sebastian A Rare Disease Foundation Funding Support
We at Project Sebastian gives support, funding and hope to families affected by a child with a rare disease. Provide education, therapies, and counseling.
UK ATTR Amyloidosis Research Association - Journal of Rare Diseases
Journal of Rare Diseases
Author: Jayden Ortiz
Home - Rare Collective
We provide clients with a senior-level suite of rare disease experts.
Author: Rare Collective
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Orphanews - Rare diseases newsletter - OrphaNews - International
Orphanews is the Newsletter of the Rare Diseases Community
AcceleRare – Advancing **** discovery for rare diseases
Advancing **** discovery for rare diseases
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Are you living with a rare disease? | Honeycomb Health
Honeycomb empower patients suffering from rare diseases by providing them with the ability to securely store, access, and share their health information all in one.
3billion | Genetic test for rare disease patients
Patients with rare genetic disease undergo long odyssey to receive a diagnosis. Visit 3billion and find how to order our rare disease genetic testing.
Rare Pepe Collection - Rare Pepe
This is a collection of Rare Pepe imagery. Theses Rare Pepes exist for viewing purposes only. If you would like to request rights to post any of these on 4chan, Reddit, Tumblr, 9gag or any other social media platform or discussion board, please send a request along with the link to the Pepe you would like […]
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
Dolon | Rare diseases strategic pricing and market access consultancy
Treatments for rare diseases face unique challenges in getting to market. Companies developing rare disease treatments need a specialised approach to prepare for pricing and reimbursement negotiations globally. At Dolon, we specialise in strategic pricing and market access for rare and severe diseases.
Organization For Rare Diseases India | ORDI
ORDI was founded to address the many challenges in the management of rare disease in India. A lack of awareness about rare disease even among doctors means that a diagnosis can often take many years.
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Crinetics - Developing Therapies For Rare Endocrine Diseases
Crinetics is here for rare endocrine disease patients who are eager to find therapies that provide effective disease control and more simplicity in their lives.
Keith McArthur – Author. Podcaster. Speaker. Rare Disease Dad.
Author. Podcaster. Speaker. Rare Disease Dad.
What else raremedicalnetwork.com alternative websites
News, Insight, and Clinical Perspective
Rare and genetic disease publisher and learning platform.
Author: Peter Ciszewski
Carion Fenn Network - Syringomyelia, Chiari Malformation, Rare & Chronic Diseases and Seniors Support.
Welcome to Carion Fenn Network. A place to share, learn & support. (Syringomyelia/Chiari Malformation/ Rare & Chronic Diseases & Seniors)
Author: Subscriber SM; CM
US Rare Coin Investments|Tom Pilitowski Rare Coins
US Rare Coin Investments Tom Pilitowski is a high end rare coin dealer since 1979. Provides complete information on rare coins, rare gold coins, early gold.
Rare Genetic Diseases | Ultragenyx
Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases. Founded in 2010, the company has rapidly built a diverse portfolio of product candidates with the potential to address diseases for which the unmet medical need is high, the biology for treatment is clear, and for which there are no approved therapies.
Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
Author: Drawesome
Diseasemaps - World Maps of Chronic and Rare Diseases
Connect with people who share your disease and help each other. World Maps of Chronic and Rare Diseases. The main purpose of the project is to help people with chronic and rare diseases. Living with these diseases is usually hard and it is not always properly understood by society. Therefore, we want to spread awareness about all of them and help people who are nowadays suffering. Through this website, you can check how your disease is spread all over the world.
Ellevation Education | English Language Learners
The only web-based software platform specifically designed for EL educators and the English Learners they serve.
Author: Author
Rare Books Digest
An educational site about rare, used, old and antiquarian books.
Author: AndreChevalier
AllStripes - Be part of the solution for your rare disease
We empower patients and communities to change the way that **** development happens in rare disease.
Rare Disease and Orphan Drugs Journal
Rare Disease and Orphan Drugs Journal (RDODJ) is an international, peer-reviewed, open access journal. RDODJ will report on scientific advances in the genetics of rare diseases, the molecular basis of the pathologies, and translational research on diagnosis, prevention and treatment. In addition, RDODJ aims to provide a forum for scientific studies and discussion covering the important regulatory, socio-economic and human science issues related to rare diseases and orphan drugs.
Author: Daniel Scherman
Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Rare Trait Hope Society - Aspartylglycosaminuria - AGU
AGU (Aspartylglycosaminuria) cure treatment gene therapy. Fund raiser. Rare disease.
GEn1E Lifesciences
GEn1E is a Platform to Advance Treatments for Rare Inflammatory Diseases.
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
EURenOmics - improving the lives of those with rare kidney disease
EURenOmics aims to predict the disease course, develop novel tools for more accurate diagnoses and new and better therapies for rare kidney diseases.
European Reference Network - Eye Diseases
European Reference Network - Rare Eye Diseases
Medical Informed Consent Software, Digital mHealth Informed Consent - Rational Surgical
Rati-Fi® is the only mHealth technology software platform combining both medical informed consent and patient education.
Peak body for Australians with rare diseases including genetic disorders
Many Voices ONE GOAL YOUR NATIONAL STRATEGIC ACTION PLAN FOR RARE DISEASES Read the Action Plan now Rare Voices Australia (RVA) is the peak national body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as
ICORD | International Collaboration on Rare Diseases and Orphan Drugs
ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs.
Author: Published; Last Modified
Other websites similar as raremedicalnetwork.com
Impactful Medicines for Rare Neurological Disorders | Ovid Therapeutics
This is Ovid—where we are boldly transforming the lives of people affected by rare neurological diseases including Angelman syndrome, Fragile X syndrome and rare epilepsies.
Zogenix - Therapeutic Solutions for Rare Diseases
Zogenix is committed to developing and commercializing transformative therapies to improve the lives of patients and their families living with rare diseases.
Jhon E. Cash - Rare Coins, Currency, and Collectibles - Welcome to www.jhonecash.com
Jhon E. Cash Rare Coins, Currency, and Collectibles - Currency Specialties are $5,000 and $10,000 Notes, Star Notes, and Fancy Serial Numbers. Coin Specialties of High-End Rare US Coins, Monster Toned Coins, and US Patterns.
Plexa - Find, Share & Discuss trusted content on Cancer & Rare - Plexa
Plexa - Find, Share & Discuss trusted content on Cancer & Rare Diseases
Rare Earth Potato Company, Charlottetown, PEI
Rare Earth Potato Company provides specialty gourmet potatoes to restaurants, chefs and foodies.
Genodermatoses and rare skin disorders network
Le réseau sur les maladies rares de la peau pour les professionnels et les patients
Cloud-R | Rare disease from a community to data | Italy
Cloud-r digital startup focuses on digital solutions and processes for the collection and analysis of observational data on rare diseases.
Catalyst: A Biopharmaceutical Company Focused on Rare Diseases
Our company is committed to developing novel, safe, and efficacious therapies to improve the lives of people with rare diseases.
Healthcare | Rare Diseases South Africa | Charity
Bridging the gap to improved quality of life for those impacted by Rare Diseases and congenital disorders through advocacy and empowerment.
CENTOGENE - The Rare Disease Company
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
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