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ERN Skin – European Reference Network for rare skin diseases
Latest news July 2021 e-news Webinars e-news April 2021 e-news February 2021 e-news Happy New Year 2021 e-news Autumn 2020 newsletter Spring & Summer 2020 newsletter Winter 2020 newsletter ERN-Skin meetings ERN-Skin webinars Other
ERN BOND – European Reference Network on Rare Bone Diseases
Network ERN BOND is one of the 24 existing European Reference Networks (ERNs). In particular, ERN BOND aims to improve access to high-quality healthcare for patients suffering from rare bone diseases. Mission ERN BOND aims to implement measures that facilitate multidisciplinary, holistic and patient-centred care
Author: Admin
European Reference Network - Eye Diseases
European Reference Network - Rare Eye Diseases
European Reference Network – EURO-NMD – European Reference Network for Neuromuscular Diseases
eUROGEN - European Reference Network (ERN) for rare and complex urogenital diseases and conditions
European Reference Network (ERN) for rare and complex urogenital diseases and conditions
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Endo-ERN | European Reference Network on Rare Endocrine Conditions
Endo-ERN , European Reference Network on Rare Endocrine Conditions, European Reference Network on Rare Endocrine Conditions. Endo-ERN’s mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine disorders in Europe, through facilitating knowledge sharing and facilitating related healthcare and research.
Author: RareEndoERN
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Rare Car Network
The magazine for continuation, re-creation and replica automobile enthusiasts and builders.
Diseases & Conditions - Medscape Reference
The eMedicine point-of-care clinical reference features up-to-date, searchable, peer-reviewed medical articles organized in specialty-focused textbooks, and is continuously updated with practice-changing evidence culled daily from the medical literature.
Author: August
Rare Diseases: Models & Mechanisms Network
rDNA | Rare Disease Network of Alberta
The Rare Disease Network of Alberta (rDNA) is a non-profit corporation that was formed in 2018 to help people understand about rare diseases.
BlueDil Int'l - European Rare Diseases Gateway
BlueDil int’l is able to work for you all over Europe, establishing strong relationship with local stakeholders (scientific community, KOLS) from patient associations to health authorities to simplify local market access process.
Home - Network Private Hire
Continue Reading
Home - European Burden of Disease Network
COST Action CA18218 - Integrating and strengthening capacity in burden of disease assessment across Europe and beyond
About European Huntington's Disease Network
Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community.
News - Adult Children of Alcoholics/Dsyfunctional Families European Committee
… Continue reading →
Author: MarjoFIN
EJP RD – European Joint Programme on Rare Diseases
Other sites like vascern eu
ERN-RITA: European Reference Network for Immunodeficiency, Autoinflammatory, Autimmune and Paediatric Rheumatic diseases
RITA brings together leading European centres with expertise in diagnosis and treatment of rare immunological disorders Primary immunodeficiency (PID), Autoinflammatory disorders, (AID) Autoimmune disease (AI) and Paediatric Rheumatic diseases (PR)
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Specialists in Vascular Disease - Vascular Health Clinics
Vascular Health Clinic’s are the specialists in vascular disease including peripheral vascular disease (PVD), carotid disease and **** prevention.
hATTR Amyloidosis—A Rapidly Progressive, Multisystem Disease
Recognize the signs and symptoms of hATTR amyloidosis to make sure that patients receive a timely diagnosis.
Rare Disease News, Perspectives & Resources - Rare Disease Advisor
more news >> more features >> Rare Care Podcast Browse Rare Disease Advisor's engaging "Rare Care" podcast series, featuring
Author: Ryner Lai; MBBS
Rare Disease Legislative Advocates | EveryLife Foundation for Rare Diseases
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
Rare Disease Database
Hypermobile Ehlers-Danlos syndrome and physiotherapy were the main keywords of the research. [Results] 1, articles emerged from the.
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
Healthe-rnd – European eHealth care model for rare neurodegenerative diseases
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
Rare Diseases Ireland – Supporting rare disease patients and their families in Ireland
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Victoria Vascular Specialists | Vein Treatment for Vascular Diseases
Victoria Vascular provides surgical and non-invasive vein treatment for vascular diseases such as, varicose veins, arterial disease, **** and aneurysms.
ERN TransplantChild – European Reference Network on transplantation in children
TransplantChild - ERN Transplantion on children
Author: Gonzalo Sofío Toro
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
Proxy Network - Proxy Network
Was the iPhone Update Worth It?The iPhone is bound for change, and Apple brings out new updates that help to develop the phone and make it the best it can Continue Reading →
Author: Proxynetwork
en-rbdd European Network of Rare Bleeding Disorders - Home
European Network of Rare Bleeding Disorders
Business Referring Network - Business Referring Network
Orange County Business Referring Network We are always looking for dedicated Orange County business owners to join the Business Referring Network Join Now Focus Of The Business Referring Network The main goal of this group will be to help small business owners. Meeting in person weekly to exchange ideas, meet new people and exchange referrals […]
What else vascern.eu alternative websites
IORD - Indian Organization for Rare Diseases | A not-for-profit organization for Rare Diseases in India.
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
CENTOGENE - The Rare Disease Company
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
Journal of Rare Cardiovascular Diseases
international, quarterly, peer reviewed journal that keeps cardiologists up to date with rare disorders of heart and vessels.
Author: Podolec P
Rare Genetic Diseases | Ultragenyx
Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases. Founded in 2010, the company has rapidly built a diverse portfolio of product candidates with the potential to address diseases for which the unmet medical need is high, the biology for treatment is clear, and for which there are no approved therapies.
Rare Disease Day Australia
HRA Pharma Rare Diseases
Dedicated to Cushing's syndrome and Adrenocortical Carcinoma and providing important medicines: Metopirone (Metyrapone), Ketoconazole HRA, Lysodren (Mitotane).
Centre for Rare Cardiovascular Diseases
Visit the post for more.
Rare Diseases and Orphan Drugs
Radico - Rare Disease Cohorts
L’objectif principal de RaDiCo est le recueil prospectif, dans le domaine des maladies rares (MR), de données phénotypiques extensives à des fins de recherche clinique et épidémiologique en lien avec la recherche translationnelle et fondamentale. Ces données peuvent être diverses : anatomiques (imagerie médicale), biochimiques, moléculaires, etc.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
RECCORD | Recording Courses of Vascular Diseases
RECCORD (Recording Courses of Vascular Diseases) vereint Experten aller Fachrichtungen der Gefäßmedizin in einem übergreifenden Netzwerk und fördert den Austausch von relevanten Informationen und Wissen.
VALDIG | Vascular Liver Disease Group
Expert Vascular Care Services | Azura Vascular Care
Azura Vascular Care specializes in minimally invasive outpatient procedures for the treatment & management of a wide range of vascular conditions. Read on.
Canadian Vascular Network |
The European Society of Vascular Medicine
The ESVM deals with vascular diseases and focuses on prevention, diagnosis, therapy and rehabilitation as well as research and education.
Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
Peak body for Australians with rare diseases including genetic disorders
Many Voices ONE GOAL YOUR NATIONAL STRATEGIC ACTION PLAN FOR RARE DISEASES Read the Action Plan now Rare Voices Australia (RVA) is the peak national body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as
Referable - Unlock your referable network today
Managed talent acquisition and RPO platform for quality referrals. Expand your company's sourcing ecosystem, while automating referral tracking and reporting.
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ENIEC - European Network of Intercultural Elderly Care - Eniec's site
No text is edited or placed here. This is used to display the front-page [...]Read More...
Author: Nikolett Arnold
Home - Emergency Food Network
We are committed to continuing to get as much food as possible out into the community during the COVID-19 crisis. Our FOOD PANTRY MAP is updated daily, and we also have resources for SCHOOL MEAL SITES for children. We are … Continue reading →
The Short Story | The European Short Story Network
The Short Story Welcome to a platform where you will find short stories from some of your favourite writers. Explore our wide collection of books and read stories written by local and international writers. Become a member to join our community today. Read More aBOUT uS The European Short Story Network is a non-profit, pan-European […]
Victorian Infectious Diseases Reference Laboratory
VIDRL is a leading Australian infectious diseases reference laboratory located in Melbourne, Victoria. It is now part of the Peter Doherty Institute for Infection and Immunity (the Doherty). VIDRL provides laboratory services for the Department of Health Victoria, Victorian hospitals and clinics, the Commonwealth Department of Health, and the World Health Organisation. more Test Handbook …
Castleman - Reference Center for Castleman's Disease
Castleman, the reference center for Castleman disease. Information platform on the disease for patients and health professionals.
European Furniture Styles Reference
The European Furniture Styles Handbook. Furniture Styles in Europe from the Middle Ages till modern times.
Home - European Growth Referent
We are your highly skilled migrant
Diploid - Supporting Rare Disease Diagnostics
HCP Login | Rare Metabolic Diseases
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