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Ageing and Neurodegenerative Diseases
Ageing and Neurodegenerative Diseases is an open access multidisciplinary journal, focusing on innovative research advances in the cellular and molecular mechanisms underlying the ageing process and age-related neurodegenerative diseases, such as Alzheimer's disease, Parkinson's disease, amyotrophic lateral sclerosis, etc., and therapeutic interventions in this field.
Author: Wei-Dong Le
European Conference on Rare Diseases - ECRD2020
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, […]
Author: Rare Diseases Europe
Rare Diseases: Models & Mechanisms Network
DIGITAL BIOMARKERS IN NEURODEGENERATIVE DISEASES
Teams’ research goal is to solve the problem of implementing various methods, elements, and approaches to virtual and augmented reality in the context of neurodegenerative diseases. The innovation of approach lies in the development of digital tests in XR (eXtended Reality, including Virtual Reality and Augmented Reality) hi-fidelity rich environments using rapid content prototyping and participatory design approach. These tests will aim to diagnose AD and will be incrementally improved based on clinical results for better diagnostic and predictive power, thanks to Machine Learning and Deep Learning methods.
Disease-Modifying Digital Therapeutics for Neurodegenerative Diseases
My Normal | storytelling for rare disease health
My Normal | storytelling for rare disease health
Author: My Normal
BlueDil Int'l - European Rare Diseases Gateway
BlueDil int’l is able to work for you all over Europe, establishing strong relationship with local stakeholders (scientific community, KOLS) from patient associations to health authorities to simplify local market access process.
Treatment of ALS and other Neurodegenerative Diseases - 2N Pharma
2N Pharma develops novel therapeutic **** candidates to aid treatment of Amyotrophic Lateral Sclerosis ALS Motor Neurone Disease MND LGD.
PhotoPharmics | A New Therapy for Neurodegenerative Diseases
The Biggs Institute for Alzheimer’s & Neurodegenerative Diseases
The region’s first comprehensive dementia center providing patients and families advanced treatments and resources for complete dementia care.
Khure Health: Identifying Rare Disease Patients
Empowering physicians to identify rare disease patients and put them on the right care pathway.
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Are you living with a rare disease? | Honeycomb Health
Honeycomb empower patients suffering from rare diseases by providing them with the ability to securely store, access, and share their health information all in one.
EJP RD – European Joint Programme on Rare Diseases
Chiesi Global Rare Diseases | Products for rare diseases
Rare diseases are characterized by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient...
Escape Bio | Developing Therapeutics for Neurodegenerative Disease
Ontario Neurodegenerative Disease Research Initiative | Home
ONDRI is Ontario's research initiative for neurodegenerative diseases, **** & dementia. Learn about our research, data, collaborating or participating
Home | Neural Coding and Neurodegenerative Disease Lab
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Cambridge Rare Disease Network - Cambridge Rare Disease Network
Author: Suzanne Morris
Rare Disease News, Perspectives & Resources - Rare Disease Advisor
more news >> more features >> Rare Care Podcast Browse Rare Disease Advisor's engaging "Rare Care" podcast series, featuring
Author: Ryner Lai; MBBS
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Rare Disease Legislative Advocates | EveryLife Foundation for Rare Diseases
Rare Disease Foundation
The Rare Disease Foundation is on a mission to find cures and treatments through its innovative patient-centric approach to research. The Foundation also funds and operates programs that provide resources through community and clinical support channels.
Rare Disease Database
Hypermobile Ehlers-Danlos syndrome and physiotherapy were the main keywords of the research. [Results] 1, articles emerged from the.
Rare Diseases International
Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases
Cure Rare Disease
Cure Rare Disease™ is developing customized therapeutics for those who have been diagnosed with rare, genetic diseases that have no treatment or cures. Through partnerships and collaboration, our world-renowned researchers build life-saving therapeutics that are custom to the patient they are made to treat.
ERN Skin – European Reference Network for rare skin diseases
Latest news July 2021 e-news Webinars e-news April 2021 e-news February 2021 e-news Happy New Year 2021 e-news Autumn 2020 newsletter Spring & Summer 2020 newsletter Winter 2020 newsletter ERN-Skin meetings ERN-Skin webinars Other
VASCERN – The European Reference Network on Rare Multisystemic Vascular Diseases
Continue reading
ERICA | The European Rare Disease Research Coordination and Support Action
ERICA , The European Rare Disease Research Coordination and Support Action
ERN BOND – European Reference Network on Rare Bone Diseases
Network ERN BOND is one of the 24 existing European Reference Networks (ERNs). In particular, ERN BOND aims to improve access to high-quality healthcare for patients suffering from rare bone diseases. Mission ERN BOND aims to implement measures that facilitate multidisciplinary, holistic and patient-centred care
Author: Admin
swii.ch health | Rare Disease Patient Engagement Agency
Focused on rare diseases and specialty markets, we are a patient engagement agency serving pharmaceutical and biotech clients.
Cricket Health | A New Model of Care for Kidney Disease
Cricket Health identifies kidney disease early and provides personalized care teams to manage it more proactively. We're making an impact on kidney disease.
Creating Health and Avoiding Disease Is a New Model
Holistic healing to prevent chronic conditions and improve health offers specific protocols to boost immune system for creating wellbeing, vitality, longevity.
Rare Diseases Ireland – Supporting rare disease patients and their families in Ireland
Rare Disease Database, Rare Disease Conditions, Federated Data Sharing
RARE-X, the Rare Disease Database Platform, collects and shares patient-owned health data with researchers across the globe to spur new treatments and cures.
Rare Disease Pharmaceutical Services | Sciensus Rare
We offer bespoke rare disease medicine services; launching & delivering vital medication & clinical services for families that need it most.
Neuronode - Systems Analysis of Key Nodes in Neurodegenerative Disease
Our aim is to achieve a systems-level understanding of protein homeostasis regulation across several neurological diseases where altered protein homeostasis is implicated to understand where the similarities and differences occur. Our hypothesis is that although each ND involves distinct culprit proteins and manifests itself in different ways in different brain cells, there exist key common regulatory nodes driving changes in protein homeostasis.
Author: Peter McCormick
Annexon Biosciences | Neurodegenerative Disorders, Alzheimer's, Huntington's Disease
Annexon Biosciences is creating and developing proprietary therapeutic products that modulate the classical complement pathway.
XIV European Meeting on Glial Cells in Health and Disease | Welcome
XIV European Meeting on Glial Cells in Health and Disease
Author: EventClass GmbH; IT - Lösungen für das Veranstaltungsmanagement - Abstractmanagement; Anmeldungen; Registrierungen; Abstractmanagement
IORD - Indian Organization for Rare Diseases | A not-for-profit organization for Rare Diseases in India.
NGO Committee for Rare Diseases
The NGO Committee for Rare Diseases brings together knowledge and experts to promote rare diseases as a priority in global health, research and social care
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CENTOGENE - The Rare Disease Company
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
Journal of Rare Cardiovascular Diseases
international, quarterly, peer reviewed journal that keeps cardiologists up to date with rare disorders of heart and vessels.
Author: Podolec P
Rare Genetic Diseases | Ultragenyx
Ultragenyx is a clinical-stage biopharmaceutical company committed to bringing to market novel products for the treatment of rare and ultra-rare diseases, with a focus on serious, debilitating genetic diseases. Founded in 2010, the company has rapidly built a diverse portfolio of product candidates with the potential to address diseases for which the unmet medical need is high, the biology for treatment is clear, and for which there are no approved therapies.
Rare Disease Day Australia
HRA Pharma Rare Diseases
Dedicated to Cushing's syndrome and Adrenocortical Carcinoma and providing important medicines: Metopirone (Metyrapone), Ketoconazole HRA, Lysodren (Mitotane).
Centre for Rare Cardiovascular Diseases
Visit the post for more.
Rare Diseases and Orphan Drugs
Radico - Rare Disease Cohorts
L’objectif principal de RaDiCo est le recueil prospectif, dans le domaine des maladies rares (MR), de données phénotypiques extensives à des fins de recherche clinique et épidémiologique en lien avec la recherche translationnelle et fondamentale. Ces données peuvent être diverses : anatomiques (imagerie médicale), biochimiques, moléculaires, etc.
Home - Rare Disease UK
What's the UK Rare Diseases Strategy? Where can I find information & support? How can I fundraise for Rare Disease UK? The latest news from RARE DISEASE UK... Lauren’s Story Living with Hereditary Amyloidosis One in a Million Abigail’s story Will’s Story Our work We work on ...
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Disease and Health
Find everything about health and medical
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Rare diseases Luxembourg , we care 4 rare! - ALAN
We aim to improve the quality of life of individuals and families affected by rare diseases in Luxembourg. Discover how we can help you.
Rare Trait Swiss- AGU Rare Disease: Aspartylglucosaminuria
Rare Trait Swiss is a Non-Profit organization which contribute to raise awareness of an Lysosomal rare disease called AGU. Our goal is to fund the medical research to manufacture the cure for AGU kids and to fund a clinical trial using gene therapy
eUROGEN - European Reference Network (ERN) for rare and complex urogenital diseases and conditions
European Reference Network (ERN) for rare and complex urogenital diseases and conditions
My ehealth Record - Record to My Health JourneyMy ehealth Record – Record to My Health Journey
Record to My Health Journey
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Cleave Therapeutics – VCP/p97 inhibitors for oncology and neurodegenerative diseases
Author: Admin
CIIIEN 2018 - VI International Congress On Research And Innovation In Neurodegenerative Diseases
Diploid - Supporting Rare Disease Diagnostics
HCP Login | Rare Metabolic Diseases
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Allies in Rare Disease - Global Genes
Global Genes mission is to connect, empower and inspire the rare disease community. Learn more about our events, resources and communities.
#WeWearStripes | Rare Disease Day 2021
We created a rare t-shirt to raise awareness among the general public because rare diseases are not so rare, and for the majority of them there is no cure.
Startseite - Rare Diseases Academy 2021
ERN-LUNG | Rare Respiratory Diseases
WELCOME TO ERN-LUNG ERN-LUNG is a patient-centric network of European healthcare providers and patient organisations, committed Europe-wide and globally to reducing morbidity and mortality from rare lung diseases in people of all ages through patient care, advocacy, education, research and knowledge-sharing. A non-profit project of building a clinical care network for all rare diseases of the respiratory
Author: Heidi Menges
Rare Disease Day ® 2021
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Northern Ireland Rare Disease Partnership
Radiorg – Rare Diseases organisation Belgium
Edelweiss Awards 2021 Belgische koepel voor patiënten met een zeldzame ziekte RaDiOrg is de Belgische koepelvereniging voor mensen met een zeldzame ziekte. Wij tellen meer dan 80 verenigingen voor specifieke zeldzame ziekten en tellen ook honderden individuele leden met een ziekte waarvoor geen vereniging bestaat. Onze missie? Zorgen dat de stem van de zeldzame ziekten wordt gehoord door beleidsmakers. Het grote publiek sensibiliseren voor de zeldzame ziekten. De weg wijzen met heldere informatie. Mensen met zeldzame ziekten verbinden. Ruchtbaarheid geven aan de activiteiten voor en door mensen met zeldzame ziekten. We zijn zeldzaam, maar we zijn talrijk! Nieuws Blijf op
Rare Disease Action Forum | RDAF
HCP Login | Takeda Rare Diseases
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